Burning mouth syndrome (BMS): Is this an autoimmune disease?

Baclofen was calming and also helped with the metal taste plus helps a little with pain. You might try focusing your mind on something else. Put an ice pack on your body anywhere but not upper body. Your thoughts will transfer to the cold on your body. Put a rubber band on your arm and when you taste the metal flip the rubber band to transfer your thought to that pain. You may have other ideas of things you can do to transfer your thoughts to something else in lieu of the metal taste. Have you tried different toothpaste and different mouth washes. Have you tried Tom’s toothpaste and mouthwash. Do you chew sugarless gum yourself of the metal taste. Have you tried Tom’s toothpaste and mouth rinse? Dry mouth is a biggie and drinking more water and using mouth moisturizer spray. One benefit of baclofen is if when you drink water you have repeated urgency to pee, well baclofen calms your bladder so you don’t have to pee so much. I get episodes of thinking I have a UTI and sometimes I do and sometimes I don’t. I use a hormone vaginal cream and use my baclofen to calm my bladder.

Really feel for you. I hope you can figure it out. The neurologist I went to for the burning prescribed the baclofen. You only want to take the very lowest dose of 5mg. Keep trying and pray.

My burning mouth started after a CT scan WITH CONTRAST!

My nutritionist told me to ONLY drink bottled water because of the fact I’m autoimmune. She said by the time you get any notice from the town that you need to boil your water because something is wrong with it you’ve already drank it for god knows how long the nasty infected water. And of course being autoimmune you could be very sick. Or worse. So I stick to bottled water despite the cost….and it’s definitely an expense I wish i didn’t have because it’s about $250 a year just for water to drink. 🙄

I drink sufficient amounts of water and it’s bottled, purified water.

I have tried several types of toothpaste, mouth moisturizer, sugarless gum, and rinses, that made no difference. Gum tastes good when I’m chewing it, but the bitter taste still overrides it. Dentists and doctors have examined my mouth and find nothing unusual.

I have an appointment with an allergist in a couple of months. That is really designed for my nasal congestion. I have a lot of drainage, stuffy, then pours water. Trying to figure out if I’m allergic to something.

I haven’t heard of baclofen. I’ll explore it. Thanks.

Do you take Benadryl for your nasal drainage. Curious if Benadryl helps your burning?

I had a long list of what my burning mouth started after. The diagnosis of reflux ( silent) and Barrett’s was so far removed from items on my list. I am wondering if coating your mouth and tongue while taking sucralfate liquid to coat esophagus makes a difference in the metal taste after using it for a couple of months along with a ppi. I certainly found my miracle reflux treatment for my burning mouth and metal taste and overly sensitive nose smells.

I never had any burning in my mouth. The only burning I had was intermittent burning of a quarter size spot on my right foot that I had for years. Was told by doctors it was not neuropathy. Idk. I don’t see that as related, but it has almost diminished.

I can’t rule anything out, because I don’t know what it is, but to me….the taste doesn’t seem to be from a substance in my mouth. It feels like it is from my tastebuds. My lips taste like the bitter, it seems like it’s in my gums even. Also, when it hit, it was sudden. Bam! Suddenly my mouth was tasting this horrible metallic taste. I was upright, driving my car and no substance was in my mouth. This is why it seems to be nerve fibers affected. The ENT feels covid damaged the nerves.

All of my doctors and dentist thought I was dealing with a nerve issue. Trigenial nerve but did not spell that right. I was given amitripline and gabapentin first then changed to pregabalin and several other medicines my doctors tried for nerve damage.I just shared my experience. None of my doctors thought reflux treatment would work. We just tried and it took about 2 months for me to improve. 4 months out now and I am sharing my experience. I don’t ever notice anything coming up into my mouth from esophagus. To me it seems like my esophagus was so damaged by the reflux that the metal taste, overly sensitive smells, burning mouth, tongue, and tooth sensations start at the damaged esophagus from the reflux and that sends the nerve signals to my mouth. My mouth tissues and tongue would swell and just hurt so bad. I hope you find your answers. I went through so much HELL and searched for answers for so many years…I just wanted to make others aware. Look online for Reflux and metal taste in your mouth. Metal taste in your mouth is a symptom of reflux.print out the article and take it to your doctor. I recommend an esophagus scope because when you have reflux you could have Barrett’s. My doctor did not think an esophagus scope would help me at all. Well it helped get my final diagnosis after almost 4 years of searching. Remember that treatment for reflux results can take from a few weeks to a couple of months. Sucralfate liquid 4 times a day with ppi 40 mg twice daily and baclofen 5mg 4 times daily sure gave me results. Good luck!