I have just listened to a very, very long advert for “Nerve Freedom” capsules
Is this just another scam product. Anyone out there tried it?
I’ve already got a cupboard full of pills that have proved to be a waste of time.
Hi,
Look for the scientific proof and not anecdotal evidence, that is my guide. If it can't be backed up with verified scientific proof, look no further. If science hasn't found a cure how would anyone else! Just treating the symptoms is all you can expect, if you are lucky. There is no cure that I'm aware of yet.
Cheers
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
I had breast cancer many years ago and a short time later my feet started to tingle. Eventually my feet got worse and then my hematologist said the neuropathy was caused from one of the chemotherapy used for my breast cancer. You can’t win!
@scain ....Hopefully my experience dealing in the past with same issues will help you..
-a neurologist will do zillion of tests, the most important is a large nerve electrical conduction test-if positive -the neuro will tell you there's no treatment for peripheral neuropathy and put you on Gababentin...a neuro is not doing test for small fiber neuropathy...
-a podiatrist will do a skin biopsy for small fiber neuropathy ( SFN)-if positive-the podiatrist will tell you there's no treatment and put you on Gababentin...or propose to put you on TEENS unit...
After going thru all these for three years and due to my excruciating symptoms- I was desperate and almost suicidal...but God providence guided me to a clinical pain institute doing Sanexas treatment ( google it) and B12 shot straight into my feet..it turned out my peripheral nerves were starving for B12 which was prevented by metformin to be absorbed....of course my primary not even wanted to hear about it although my B12 in system was double level.
After just three month and twice /week treatment with Sanexas (stopped metformin and replace it with jardiance ) and some other life style changing -I'm completely healed...
Hope this help!
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
I find lifestyle change makes the biggest difference apart from meds.
Healthy diet. ZERO sugar including honey, artificial sweeteners, nothing. I found major improvements.
Careful on salt too. Eat anti inflammatory.
I wasn’t able to wear socks on my left foot for a few years, until I found out that these gel socks prevents most of the pain and I can now wear shoes and socks at work. None of my neurologists have heard of this solution, so I pass it on and hope it’ll help some of you.
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
I have the Abbot electric impulse device implanted in my back and can find no improvement. Nothing I have tried helps. My doctors have prescribed everything. Jeff
I have just listened to a very, very long advert for “Nerve Freedom” capsules
Is this just another scam product. Anyone out there tried it?
I’ve already got a cupboard full of pills that have proved to be a waste of time.
BIG RED FLAGS!!!
• In general, these ingredients are helpful for neuropathy in the correct form, amount, and quality, but no 'one' supplement provides what we need.
• This company does not list the amount of each ingredient, which means it most likely has too much or too little. They use the wrong form of ALA, and they don't list the herbal extracts they use, which can be dangerous for some people.
I take all of these ingredients daily, but from quality medical-grade brands I trust, in the correct form and safe therapeutic amounts. I listed the recommended therapeutic dosages below, but always check with your doctor.
• Turmeric: I take this daily but make my own tonic from fresh turmeric.
• Root extracts: This is vague. I don't recommend taking unknown herbal extracts. They can interact with medication and exacerbate some medical conditions. I take ashwagandha and gotu kola root extracts for inflammation and nervous system health.
• ALA: this should be R-ALA, not ALA, 250 to 500mg 2x daily. (some people experience side effects from ALA, so use caution)
• CoQ10: 100 to 300mg daily.
• L-Carnitine: 1,000 to 3,000mg daily.
• Magnesium Glycinate: 320 to 500mg daily based on age and gender. I hope this answers some questions!
BIG RED FLAGS!!!
• In general, these ingredients are helpful for neuropathy in the correct form, amount, and quality, but no 'one' supplement provides what we need.
• This company does not list the amount of each ingredient, which means it most likely has too much or too little. They use the wrong form of ALA, and they don't list the herbal extracts they use, which can be dangerous for some people.
I take all of these ingredients daily, but from quality medical-grade brands I trust, in the correct form and safe therapeutic amounts. I listed the recommended therapeutic dosages below, but always check with your doctor.
• Turmeric: I take this daily but make my own tonic from fresh turmeric.
• Root extracts: This is vague. I don't recommend taking unknown herbal extracts. They can interact with medication and exacerbate some medical conditions. I take ashwagandha and gotu kola root extracts for inflammation and nervous system health.
• ALA: this should be R-ALA, not ALA, 250 to 500mg 2x daily. (some people experience side effects from ALA, so use caution)
• CoQ10: 100 to 300mg daily.
• L-Carnitine: 1,000 to 3,000mg daily.
• Magnesium Glycinate: 320 to 500mg daily based on age and gender. I hope this answers some questions!
I have just listened to a very, very long advert for “Nerve Freedom” capsules
Is this just another scam product. Anyone out there tried it?
I’ve already got a cupboard full of pills that have proved to be a waste of time.
Fred here in Coloraod with mynlast experience and please that All of us neuropathy suffers reach out to JFK for possible help from Germany and ay other countries who might have some really great ideas/solutions for this terrible condition!!! In my humble opine big farma and the Feds have wowrked together to promote/allow all these false doctors and non-regulated companies to rip all of us off and to no avail!!!
Lack of dependency on all these claims that are false annd misleading on
illnesses. Semper Fi.
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
I am guessing that "Mama Bear Oasis (Magnesium Body Butter" ), advertised for neuropathy relief, is yet another magic solution that doesn't work. Has anyone tried this for an extended period with improvement noted?
Connect
Connect
Like
Helpful
Hug
Hi,
Look for the scientific proof and not anecdotal evidence, that is my guide. If it can't be backed up with verified scientific proof, look no further. If science hasn't found a cure how would anyone else! Just treating the symptoms is all you can expect, if you are lucky. There is no cure that I'm aware of yet.
Cheers
-
Like -
Helpful -
Hug
5 ReactionsI had breast cancer many years ago and a short time later my feet started to tingle. Eventually my feet got worse and then my hematologist said the neuropathy was caused from one of the chemotherapy used for my breast cancer. You can’t win!
-
Like -
Helpful -
Hug
2 ReactionsThank you so much for the great info. I will research your info. Glad to hear you are doing better. Susan
I find lifestyle change makes the biggest difference apart from meds.
Healthy diet. ZERO sugar including honey, artificial sweeteners, nothing. I found major improvements.
Careful on salt too. Eat anti inflammatory.
I wasn’t able to wear socks on my left foot for a few years, until I found out that these gel socks prevents most of the pain and I can now wear shoes and socks at work. None of my neurologists have heard of this solution, so I pass it on and hope it’ll help some of you.
-
Like -
Helpful -
Hug
1 ReactionI have the Abbot electric impulse device implanted in my back and can find no improvement. Nothing I have tried helps. My doctors have prescribed everything. Jeff
-
Like -
Helpful -
Hug
1 ReactionThat is a standard FDA disclaimer.
-
Like -
Helpful -
Hug
1 ReactionBIG RED FLAGS!!!
• In general, these ingredients are helpful for neuropathy in the correct form, amount, and quality, but no 'one' supplement provides what we need.
• This company does not list the amount of each ingredient, which means it most likely has too much or too little. They use the wrong form of ALA, and they don't list the herbal extracts they use, which can be dangerous for some people.
I take all of these ingredients daily, but from quality medical-grade brands I trust, in the correct form and safe therapeutic amounts. I listed the recommended therapeutic dosages below, but always check with your doctor.
• Turmeric: I take this daily but make my own tonic from fresh turmeric.
• Root extracts: This is vague. I don't recommend taking unknown herbal extracts. They can interact with medication and exacerbate some medical conditions. I take ashwagandha and gotu kola root extracts for inflammation and nervous system health.
• ALA: this should be R-ALA, not ALA, 250 to 500mg 2x daily. (some people experience side effects from ALA, so use caution)
• CoQ10: 100 to 300mg daily.
• L-Carnitine: 1,000 to 3,000mg daily.
• Magnesium Glycinate: 320 to 500mg daily based on age and gender. I hope this answers some questions!
-
Like -
Helpful -
Hug
3 ReactionsSame here - especially the ALA not being specified as to type and amount, and the root extracts being like you said, vague.
-
Like -
Helpful -
Hug
1 ReactionHi again,
Fred here in Coloraod with mynlast experience and please that All of us neuropathy suffers reach out to JFK for possible help from Germany and ay other countries who might have some really great ideas/solutions for this terrible condition!!! In my humble opine big farma and the Feds have wowrked together to promote/allow all these false doctors and non-regulated companies to rip all of us off and to no avail!!!
Lack of dependency on all these claims that are false annd misleading on
illnesses. Semper Fi.
I am guessing that "Mama Bear Oasis (Magnesium Body Butter" ), advertised for neuropathy relief, is yet another magic solution that doesn't work. Has anyone tried this for an extended period with improvement noted?