Neuropathy treatments: How to avoid scams?

@haj
A number of seizure medications have visual side effects, some have actually caused blindness. Probably most notable is Sabril. I took gabapentin too but it wasn't effective for my neuropathy or seizures. Exactly why gabapentin causes visual problems isn't fully known.
You might want to be checked out by an ophthalmologist just to set your mind at ease. I have taken anticonvulsants for nearly 60 years now.
Jake

Welcome @eeriwa, Here's a list of discussions currently in the Neuropathy Support Group - https://connect.mayoclinic.org/group/neuropathy/.

What type of neuropathy and symptoms do you have?

Feet feel numb especially in the evening.

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

My husband was hospitalized 158 days due to Covid. He has several lingering issues but the neuropathy in his hands and feet is the worst. We have tried every supplement recommended for neuropathy and none of them have helped.

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Pudendal pain

Surely some people have found something that has helped with this awful disease. It would be so encouraging to here from anyone who could offer hope. It would even help to hear about those who have tried so called cures that have failed, at least that would warn others not to waste their money. I for one cannot just give in.

After suffering stabbing pain for years and getting little help, I attended a seminar regarding "Stem Cell Therapy." At the seminar, there were a lot of near guarantees of how great these Stem Cell injections have been for people who were suffering from Neuropathy. Even the person who presented the seminar had a story of how he was cured from a near bedridden state from being a Bull Rider to a complete recovery!!??? All of us attending, who were suffering ate that story like apple pie! A 95% cure rate was also on the brochure. I bit and went to the Regeneration Clinic for my "Trial test" and told by Dr. Jamison that indeed I had Neuropathy (Which I already knew!) I had. I believed in the 95% cure. However, the cost was $10K and sadly it did not work! Buyer beware!!! $10K is a lot of money to lose for a working man!!

It is borderline criminal for all these scammers to prey on us who are suffering from intense pain. I almost fell for one that involved decompression therapy. The chiropractor sent me for a CT scan which, according to him, showed all kinds of bulging and herniated discs(even though my MRI did not show anything like that). Of course, the treatments were not covered by insurance. $9000+ with easy monthly payments. Luckily, I said I needed to go home and think about it. A cooler head said "NO". This is how most of these scams work. Please, everyone, don't fall for such things.