I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
Tried as many as I had access to, blue laser , acupuncture, creams etc...none with any effect...
Started out on heavy doses of gabapentin,,,,had some success for a year or two...pain was at a
5 out of 10...about ten years ago the gabapentin was not working,,,so went on pregabalin and hydromorph.
I take 100mg of pregabalin at noon and 9pm, and 6mg of slow release hydromorph at 7am and 7pm.
This has reduced all symptoms from a ten to a workable 2....so for the past ten years or so I have managed
to live with the neuropathy, knowing there is no cure,,,,just an attempt to manage this companion to the
best of our abilities.. Herbert C
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
You would be served well by searching through the history of pages upon pages of people's comments of things they've tried. Having been here for 3/4 of a year now, I have read many conversations about nerve medicines, supplements (do work IF you have a deficiency), marijuana, opioids, MFR (there's a section here on that), getting the right diagnosis as a start (getting the wrong one too!); about doctors, EXERCISE (or not!), and scams. It is an individual path, depending on age, condition, access to medical care, medication reaction, and specific health needs. Most of us plug away for years, on these things, as we age. All these things, and MORE have been posted. Since you are new you maybe haven't had the opportunity to check out the extensive history of "sharing" going on here!
I have uncovered one amazing miracle - for myself - I have Osteo Arthritis for 30 years, bad, turns out my PAIN was from GOUT! learned that through this group and a supplement! I had high uric acid and the doctors never paid attention because X-rays should be for OA. I found out by trying a supplement. But I transitioned to the medicine where my Uric acid levels were better addressed.
The process of aging is a slow burn - literally, metaphorically, and that's a pun! Gotta keep our heads up and support each other when we get stuck. Good luck!
BIG RED FLAGS!!!
• In general, these ingredients are helpful for neuropathy in the correct form, amount, and quality, but no 'one' supplement provides what we need.
• This company does not list the amount of each ingredient, which means it most likely has too much or too little. They use the wrong form of ALA, and they don't list the herbal extracts they use, which can be dangerous for some people.
I take all of these ingredients daily, but from quality medical-grade brands I trust, in the correct form and safe therapeutic amounts. I listed the recommended therapeutic dosages below, but always check with your doctor.
• Turmeric: I take this daily but make my own tonic from fresh turmeric.
• Root extracts: This is vague. I don't recommend taking unknown herbal extracts. They can interact with medication and exacerbate some medical conditions. I take ashwagandha and gotu kola root extracts for inflammation and nervous system health.
• ALA: this should be R-ALA, not ALA, 250 to 500mg 2x daily. (some people experience side effects from ALA, so use caution)
• CoQ10: 100 to 300mg daily.
• L-Carnitine: 1,000 to 3,000mg daily.
• Magnesium Glycinate: 320 to 500mg daily based on age and gender. I hope this answers some questions!
I like your plan and will start to use it as soon as I get off my island and find a few of the ingredients I'm lacking...how much turmeric do you take?
BIG RED FLAGS!!!
• In general, these ingredients are helpful for neuropathy in the correct form, amount, and quality, but no 'one' supplement provides what we need.
• This company does not list the amount of each ingredient, which means it most likely has too much or too little. They use the wrong form of ALA, and they don't list the herbal extracts they use, which can be dangerous for some people.
I take all of these ingredients daily, but from quality medical-grade brands I trust, in the correct form and safe therapeutic amounts. I listed the recommended therapeutic dosages below, but always check with your doctor.
• Turmeric: I take this daily but make my own tonic from fresh turmeric.
• Root extracts: This is vague. I don't recommend taking unknown herbal extracts. They can interact with medication and exacerbate some medical conditions. I take ashwagandha and gotu kola root extracts for inflammation and nervous system health.
• ALA: this should be R-ALA, not ALA, 250 to 500mg 2x daily. (some people experience side effects from ALA, so use caution)
• CoQ10: 100 to 300mg daily.
• L-Carnitine: 1,000 to 3,000mg daily.
• Magnesium Glycinate: 320 to 500mg daily based on age and gender. I hope this answers some questions!
I think the biggest problem is neuropathy is a symptom of something else and not a disease in and of itself. What works for one person won’t necessarily work for another. My symptoms are caused by inflammation and I seme-successfully controlled the pain with supplements that targeted inflammation, then when that was no longer enough added LDN to the supplements and got another 10 months. Now that combination is not enough (either my body has grown a tolerance to what I am taking or it is progressing) and I am back at the search for relief.
So if you want to try something, ask your doctor about LDN - it worked wonders for me for about a year, and did nothing for my father with type-2 diabetic neuropathy, so your mileage may vary.
I have neuropathy for 3 years and the drug I use is GABAPENTIN and it always works after a couple of hours. I saw an add today on tv that claims fix my neuropathy. The name of it was NERVE ALIVE and it very expensive. What do know about that drug?
I have neuropathy for 3 years and the drug I use is GABAPENTIN and it always works after a couple of hours. I saw an add today on tv that claims fix my neuropathy. The name of it was NERVE ALIVE and it very expensive. What do know about that drug?
Anything you see on TV that claims to fix your neuropathy is a scam. A fake, phony, and a fraud. Just do a google search for "reviews of Nerve alive". Look for independent reviewers. Sorry to burst this bubble. If these things really worked, they would not have to be advertised.
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
I have suffered with sciatica for 7 years and it is getting worse. I now have other nerve pain in my hands, legs, feet and hips. I've waited for Drs appointments for months and had shots (epidurals) in my spine. Medications such as Gabapentin seem to calm the pain a bit but make my intellect dull. Do you think Nerva viva would help?
So I’m in the same boat - neuropathy in both feet, non-diabetic and continues to get worse.
I work on my feet and up to 8 hours. I have a terrible time finding shoes that fit( high arches, narrow feet and hammertoes …
Had foot surgery 10 years ago.
I have read very positive reviews about Calmare or “ Scrambler” therapy. Painless, non invasive and drug free. Developed by 2 Johns Hopkins doctors- approved by FDA. 15 years - I am desperate to find relief. My pain in concentrated in my toes and ball of foot. That’s it -
A lot of doctors ( my neurologist for one) have never heard of this therapy-
I refuse to take gabapentin but will give Lyrica a try -
Google Calmare therapy to find more information-
I had been active most of my life ( marathon runner)Amateur Soccer player and aerobics.
Initially my career required a certain heel height and that combined with cabin pressure just made my feet worse.
It’s intermittent pain.
I am desperate for relief-
I just completed 5 treatments for scrambler therapy. I have neuropathy from past chemo and diabetes type 2. The treatments did not work for me. But they did seem to wake up my nerves. The treatments are not painful. It is worth a try for you as everyone is different. I am using essential oils, am considering a tens unit. I am on gabapentin. Take a tramadol at bedtime only. Helps for the most part. Neuropathy is a difficult illness .
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Tried as many as I had access to, blue laser , acupuncture, creams etc...none with any effect...
Started out on heavy doses of gabapentin,,,,had some success for a year or two...pain was at a
5 out of 10...about ten years ago the gabapentin was not working,,,so went on pregabalin and hydromorph.
I take 100mg of pregabalin at noon and 9pm, and 6mg of slow release hydromorph at 7am and 7pm.
This has reduced all symptoms from a ten to a workable 2....so for the past ten years or so I have managed
to live with the neuropathy, knowing there is no cure,,,,just an attempt to manage this companion to the
best of our abilities.. Herbert C
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1 ReactionYou would be served well by searching through the history of pages upon pages of people's comments of things they've tried. Having been here for 3/4 of a year now, I have read many conversations about nerve medicines, supplements (do work IF you have a deficiency), marijuana, opioids, MFR (there's a section here on that), getting the right diagnosis as a start (getting the wrong one too!); about doctors, EXERCISE (or not!), and scams. It is an individual path, depending on age, condition, access to medical care, medication reaction, and specific health needs. Most of us plug away for years, on these things, as we age. All these things, and MORE have been posted. Since you are new you maybe haven't had the opportunity to check out the extensive history of "sharing" going on here!
I have uncovered one amazing miracle - for myself - I have Osteo Arthritis for 30 years, bad, turns out my PAIN was from GOUT! learned that through this group and a supplement! I had high uric acid and the doctors never paid attention because X-rays should be for OA. I found out by trying a supplement. But I transitioned to the medicine where my Uric acid levels were better addressed.
The process of aging is a slow burn - literally, metaphorically, and that's a pun! Gotta keep our heads up and support each other when we get stuck. Good luck!
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Helpful -
Hug
7 ReactionsI like your plan and will start to use it as soon as I get off my island and find a few of the ingredients I'm lacking...how much turmeric do you take?
You did not mention if it works
I have neuropathy for 3 years and the drug I use is GABAPENTIN and it always works after a couple of hours. I saw an add today on tv that claims fix my neuropathy. The name of it was NERVE ALIVE and it very expensive. What do know about that drug?
Anything you see on TV that claims to fix your neuropathy is a scam. A fake, phony, and a fraud. Just do a google search for "reviews of Nerve alive". Look for independent reviewers. Sorry to burst this bubble. If these things really worked, they would not have to be advertised.
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Helpful -
Hug
3 ReactionsHas anyone tried Nerve Freedom supplement. I couldn’t find out if it is a scam. It says it will cure PN but you have to keep taking it
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1 ReactionIs Nerva Vivo safe, effective, a scam?
I have suffered with sciatica for 7 years and it is getting worse. I now have other nerve pain in my hands, legs, feet and hips. I've waited for Drs appointments for months and had shots (epidurals) in my spine. Medications such as Gabapentin seem to calm the pain a bit but make my intellect dull. Do you think Nerva viva would help?
I just completed 5 treatments for scrambler therapy. I have neuropathy from past chemo and diabetes type 2. The treatments did not work for me. But they did seem to wake up my nerves. The treatments are not painful. It is worth a try for you as everyone is different. I am using essential oils, am considering a tens unit. I am on gabapentin. Take a tramadol at bedtime only. Helps for the most part. Neuropathy is a difficult illness .
-
Like -
Helpful -
Hug
3 Reactions