I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
@womanflowers38 all I can say is there are so many “solutions” advertised for relief from neuropathy pain that are bogus. They are rip-offs
Nothing can heal neuropathy.
I use Aspercream, or any other cream that has lidocaine. That kills the pain.
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
If its out there I tried it. I have severe neuropathy from chemo drugs. Most things from accupuncture, chiro, herbals, lotions, etc... nothing relieved; however I am on Gabapentin and Duloxetine. I notice that if I miss a dose that pain is MUCH higher and if I take it before bed, I can actually sleep through the night.
I had breast cancer many years ago and a short time later my feet started to tingle. Eventually my feet got worse and then my hematologist said the neuropathy was caused from one of the chemotherapy used for my breast cancer. You can’t win!
If you do a search for a treatment option called Scrambler Therapy, you'll see that it was initiall500. y designed to help chemotherapy patients. It "reprograms" pain signals into nonpain signals. It takes ten sessions, each session lasting about an hour. There are not a lot of places offering this therapy. It has been FDA cleared but is not covered by insurance. The cost is about $3500.00. Of course not everyone gets relief. Its success rate is about 80%. Something to look into. What is pain relief worth?
@scain ....Hopefully my experience dealing in the past with same issues will help you..
-a neurologist will do zillion of tests, the most important is a large nerve electrical conduction test-if positive -the neuro will tell you there's no treatment for peripheral neuropathy and put you on Gababentin...a neuro is not doing test for small fiber neuropathy...
-a podiatrist will do a skin biopsy for small fiber neuropathy ( SFN)-if positive-the podiatrist will tell you there's no treatment and put you on Gababentin...or propose to put you on TEENS unit...
After going thru all these for three years and due to my excruciating symptoms- I was desperate and almost suicidal...but God providence guided me to a clinical pain institute doing Sanexas treatment ( google it) and B12 shot straight into my feet..it turned out my peripheral nerves were starving for B12 which was prevented by metformin to be absorbed....of course my primary not even wanted to hear about it although my B12 in system was double level.
After just three month and twice /week treatment with Sanexas (stopped metformin and replace it with jardiance ) and some other life style changing -I'm completely healed...
Hope this help!
If its out there I tried it. I have severe neuropathy from chemo drugs. Most things from accupuncture, chiro, herbals, lotions, etc... nothing relieved; however I am on Gabapentin and Duloxetine. I notice that if I miss a dose that pain is MUCH higher and if I take it before bed, I can actually sleep through the night.
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
I have toyed with this for a long time but I take a lot of other medication. Sometimes I am still really tempted. I am very interested to hear from you.
Connect
Connect
Like
Helpful
Hug
I have neuropathy in fingers. This morning I saw a on line advertisement about a product called Nerve Forte.
Does it really work?
@mtn9pr
I'd save my money if I were you.
Yesterday I saw a product that would CURE neuropathy in 30 seconds, yeah right.
Jake
-
Like -
Helpful -
Hug
1 ReactionHere's a search of Connect for members who have mentioned Nerve Forte - https://connect.mayoclinic.org/search/comments/?search=nerve%20forte
@womanflowers38 all I can say is there are so many “solutions” advertised for relief from neuropathy pain that are bogus. They are rip-offs
Nothing can heal neuropathy.
I use Aspercream, or any other cream that has lidocaine. That kills the pain.
-
Like -
Helpful -
Hug
1 ReactionIf its out there I tried it. I have severe neuropathy from chemo drugs. Most things from accupuncture, chiro, herbals, lotions, etc... nothing relieved; however I am on Gabapentin and Duloxetine. I notice that if I miss a dose that pain is MUCH higher and if I take it before bed, I can actually sleep through the night.
If you do a search for a treatment option called Scrambler Therapy, you'll see that it was initiall500. y designed to help chemotherapy patients. It "reprograms" pain signals into nonpain signals. It takes ten sessions, each session lasting about an hour. There are not a lot of places offering this therapy. It has been FDA cleared but is not covered by insurance. The cost is about $3500.00. Of course not everyone gets relief. Its success rate is about 80%. Something to look into. What is pain relief worth?
-
Like -
Helpful -
Hug
1 ReactionWere your feet numb?
My feet were very numb from knee down...still some numbness but no complain-it will take a while till numbness will be completely gone.
Have you tried Marjuana? I seem to get some relief from using it. If that interest you, let me know and I will tell you how it helps me.
-
Like -
Helpful -
Hug
1 ReactionI have toyed with this for a long time but I take a lot of other medication. Sometimes I am still really tempted. I am very interested to hear from you.