I have been on Dupixent for two weeks. Had my first COPD exacerbation and diagnosis back in April. Have been on prednisone almost continuously since then. Every time I tried to wean off severe symptoms came back. Dupixent so far has been a game changer. Off prednisone for a week. I'm feeling much better. FEV1 76 and oxygen about 95. I take Breztre and nebulas twice a day.
I think using supplemental O2 is a GOOD thing and helps us keep our bodies functioning as well as possible. Sure, it’s a hassle, but you can develop heart problems and lose brain cells and develop other problems if your body doesn’t have as much O2 as it really needs to keep above 90% ALL the time.
If one has a GOOD Portable Oxygen Concentrator (POC) that is light enough and supplies enough O2, there’s not much problem getting out and about. I have a Inogen One G5 and it’s about 5 pounds with a double-battery and it allows me to be out and about and run all my errands, including shopping at Costco. I use my stationary unit at 4 or 5 liters continuous flow while exercising so I can be sure that I am able to keep saturated at or above 90% all the time.
I travel about 30,000 miles/year with my supplemental O2. As long as I have a continuous flow device where ever I sleep, the POC can keep me saturated for altitude and casual exercise, like walking slowly. My O2 provider mails me a stationary concentrator at each of my destinations so I always have it handy; when I’m done, I ship it back with the label & packaging he provided. I sleep MUCH better with a continuous flow system than a pulse dose (I’ve tried it).
Well, I have mild arthralgia or stiff joints as a side effect of the Dupixent. It’s a known side effect of many biologics (maybe all?)
Last night, D decided to try putting some Voltaren (a topical cream that is anti-inflammatory), and it really helped. I put more on this morning and will use it mornings and evenings.
If anyone wants it, it’s sold at many drug stores & online but Costco has the lowest price generic version. 🙂
I'm sorry if you weren't told this upfront.
When I started Dupixent last October, I was told that it would take weeks to see any benefits. Fast forward, I've seen great improvement for my esophagitis, bloodwork shows eosinophils all now in normal range, and CT showed inflammation in airway and lungs much improved.
Wanting immediate relief or improvement is understandable. Being patient is difficult.
For me, Dupixent started showing benefits soon after I started taking it. I guess we are all different in how soon (or slowly) we may see benefits.
Patience is important in any new treatment plan.
Dupixent has been great for me but we are all different. If the treating provider thinks it MAY help and it can he obtained at am affordable copay (in my case $0), it seems very worthwhile to give it a try. That’s why I tried it, plus the 3 exacerbations last year scared all of us.
Dupixent has been great for me but we are all different. If the treating provider thinks it MAY help and it can he obtained at am affordable copay (in my case $0), it seems very worthwhile to give it a try. That’s why I tried it, plus the 3 exacerbations last year scared all of us.
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I have been on Dupixent for two weeks. Had my first COPD exacerbation and diagnosis back in April. Have been on prednisone almost continuously since then. Every time I tried to wean off severe symptoms came back. Dupixent so far has been a game changer. Off prednisone for a week. I'm feeling much better. FEV1 76 and oxygen about 95. I take Breztre and nebulas twice a day.
I think using supplemental O2 is a GOOD thing and helps us keep our bodies functioning as well as possible. Sure, it’s a hassle, but you can develop heart problems and lose brain cells and develop other problems if your body doesn’t have as much O2 as it really needs to keep above 90% ALL the time.
If one has a GOOD Portable Oxygen Concentrator (POC) that is light enough and supplies enough O2, there’s not much problem getting out and about. I have a Inogen One G5 and it’s about 5 pounds with a double-battery and it allows me to be out and about and run all my errands, including shopping at Costco. I use my stationary unit at 4 or 5 liters continuous flow while exercising so I can be sure that I am able to keep saturated at or above 90% all the time.
I travel about 30,000 miles/year with my supplemental O2. As long as I have a continuous flow device where ever I sleep, the POC can keep me saturated for altitude and casual exercise, like walking slowly. My O2 provider mails me a stationary concentrator at each of my destinations so I always have it handy; when I’m done, I ship it back with the label & packaging he provided. I sleep MUCH better with a continuous flow system than a pulse dose (I’ve tried it).
Well, I have mild arthralgia or stiff joints as a side effect of the Dupixent. It’s a known side effect of many biologics (maybe all?)
Last night, D decided to try putting some Voltaren (a topical cream that is anti-inflammatory), and it really helped. I put more on this morning and will use it mornings and evenings.
If anyone wants it, it’s sold at many drug stores & online but Costco has the lowest price generic version. 🙂
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1 ReactionThe one thing they don't tell you about Dupixent.
It takes 12 weeks to learn if it's working or not.
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3 ReactionsI'm sorry if you weren't told this upfront.
When I started Dupixent last October, I was told that it would take weeks to see any benefits. Fast forward, I've seen great improvement for my esophagitis, bloodwork shows eosinophils all now in normal range, and CT showed inflammation in airway and lungs much improved.
Wanting immediate relief or improvement is understandable. Being patient is difficult.
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Helpful -
Hug
5 ReactionsFor me, Dupixent started showing benefits soon after I started taking it. I guess we are all different in how soon (or slowly) we may see benefits.
Patience is important in any new treatment plan.
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4 ReactionsI start my dupixent in about a week. so I will follow up and say how it is going for me.
and I also was told it will take from 1-3 months for any significant improvement.
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1 ReactionBest of luck to you…please update on your Dupixent experience… I would like my husband to try if your experience is a good one.
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1 ReactionDupixent has been great for me but we are all different. If the treating provider thinks it MAY help and it can he obtained at am affordable copay (in my case $0), it seems very worthwhile to give it a try. That’s why I tried it, plus the 3 exacerbations last year scared all of us.
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3 ReactionsI can afford it, much like you. $0. I did my second dose yesterday. I'll just be patient.