Ah, probably why it hurts when I get the needle inserted whereas I normally don't feel it when I get normal vaccines. Oh well, it's just a momentary discomfort and I think the medication is helping me.
Your right! It's a momentary discomfort part of which is anticipating the discomfort. Probable a total of 30 seconds of discomfort.......well worth the benefits one reaps. The medication itself is viscous so the bore of the needle needs to be a little bigger to allow the medication to be injected!
Just got my Frio cold pack and am using it with a dummy plastic tube about the size of my dupixent and a temperature probe. It’s keeping the inside of the tube below 77, between 72 to now 75 many hours after I started using it. I will soak it to refresh before I go to sleep and check it again in the morning.
Well, cold pack continues to keep 72-75 which is safely within the tolerance for Dupixent. It mainly resembles a puffy pencil case and should be fine for my current travel needs.
This is not a pill, it is an injected medication that has a loading dose of 600mg which would be 2 injections, then 1 every two weeks thereafter. the injection is sub-cutaneous, meaning it is just under the skin/fat and not into the muscle.
Well, after a TON of run-around by DupixentMyWay toll-free number, I’ve finally been told they do NOT have any sample Dupixent Pens (like sample Epi-pens), so that we can practice so that we always get the appropriate dose when we administer the Dupixent pen.
They suggested we reach out to our pharmacist and/or MD to get any potential sample pens, or watch the video or read the instructions. I was very disappointed with a that a medicine they charge so much for they can’t provide a sample auto-inject pen, like Epi-Pen always does! They don’t even have to provide one every time, but surely if it is requested, they should be able to make a sample available!
Anyway, I was able to ask an APRN I know and she will give me one of the spares demo pens she has so I can practice and stop pull in the pen off my body too soon and losing some of my dose (I’ve had that problem 3 of 3 attempts so far).
I have been on Dupixent for two weeks. Had my first COPD exacerbation and diagnosis back in April. Have been on prednisone almost continuously since then. Every time I tried to wean off severe symptoms came back. Dupixent so far has been a game changer. Off prednisone for a week. I'm feeling much better. FEV1 76 and oxygen about 95. I take Breztre and nebulas twice a day.
I think using supplemental O2 is a GOOD thing and helps us keep our bodies functioning as well as possible. Sure, it’s a hassle, but you can develop heart problems and lose brain cells and develop other problems if your body doesn’t have as much O2 as it really needs to keep above 90% ALL the time.
If one has a GOOD Portable Oxygen Concentrator (POC) that is light enough and supplies enough O2, there’s not much problem getting out and about. I have a Inogen One G5 and it’s about 5 pounds with a double-battery and it allows me to be out and about and run all my errands, including shopping at Costco. I use my stationary unit at 4 or 5 liters continuous flow while exercising so I can be sure that I am able to keep saturated at or above 90% all the time.
I travel about 30,000 miles/year with my supplemental O2. As long as I have a continuous flow device where ever I sleep, the POC can keep me saturated for altitude and casual exercise, like walking slowly. My O2 provider mails me a stationary concentrator at each of my destinations so I always have it handy; when I’m done, I ship it back with the label & packaging he provided. I sleep MUCH better with a continuous flow system than a pulse dose (I’ve tried it).
Well, I have mild arthralgia or stiff joints as a side effect of the Dupixent. It’s a known side effect of many biologics (maybe all?)
Last night, D decided to try putting some Voltaren (a topical cream that is anti-inflammatory), and it really helped. I put more on this morning and will use it mornings and evenings.
If anyone wants it, it’s sold at many drug stores & online but Costco has the lowest price generic version. 🙂
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Lol oh yes we will survive it. 🥰
Your right! It's a momentary discomfort part of which is anticipating the discomfort. Probable a total of 30 seconds of discomfort.......well worth the benefits one reaps. The medication itself is viscous so the bore of the needle needs to be a little bigger to allow the medication to be injected!
Just got my Frio cold pack and am using it with a dummy plastic tube about the size of my dupixent and a temperature probe. It’s keeping the inside of the tube below 77, between 72 to now 75 many hours after I started using it. I will soak it to refresh before I go to sleep and check it again in the morning.
Well, cold pack continues to keep 72-75 which is safely within the tolerance for Dupixent. It mainly resembles a puffy pencil case and should be fine for my current travel needs.
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Like -
Helpful -
Hug
1 ReactionThis is not a pill, it is an injected medication that has a loading dose of 600mg which would be 2 injections, then 1 every two weeks thereafter. the injection is sub-cutaneous, meaning it is just under the skin/fat and not into the muscle.
-
Like -
Helpful -
Hug
1 ReactionWell, after a TON of run-around by DupixentMyWay toll-free number, I’ve finally been told they do NOT have any sample Dupixent Pens (like sample Epi-pens), so that we can practice so that we always get the appropriate dose when we administer the Dupixent pen.
They suggested we reach out to our pharmacist and/or MD to get any potential sample pens, or watch the video or read the instructions. I was very disappointed with a that a medicine they charge so much for they can’t provide a sample auto-inject pen, like Epi-Pen always does! They don’t even have to provide one every time, but surely if it is requested, they should be able to make a sample available!
Anyway, I was able to ask an APRN I know and she will give me one of the spares demo pens she has so I can practice and stop pull in the pen off my body too soon and losing some of my dose (I’ve had that problem 3 of 3 attempts so far).
I have been on Dupixent for two weeks. Had my first COPD exacerbation and diagnosis back in April. Have been on prednisone almost continuously since then. Every time I tried to wean off severe symptoms came back. Dupixent so far has been a game changer. Off prednisone for a week. I'm feeling much better. FEV1 76 and oxygen about 95. I take Breztre and nebulas twice a day.
I think using supplemental O2 is a GOOD thing and helps us keep our bodies functioning as well as possible. Sure, it’s a hassle, but you can develop heart problems and lose brain cells and develop other problems if your body doesn’t have as much O2 as it really needs to keep above 90% ALL the time.
If one has a GOOD Portable Oxygen Concentrator (POC) that is light enough and supplies enough O2, there’s not much problem getting out and about. I have a Inogen One G5 and it’s about 5 pounds with a double-battery and it allows me to be out and about and run all my errands, including shopping at Costco. I use my stationary unit at 4 or 5 liters continuous flow while exercising so I can be sure that I am able to keep saturated at or above 90% all the time.
I travel about 30,000 miles/year with my supplemental O2. As long as I have a continuous flow device where ever I sleep, the POC can keep me saturated for altitude and casual exercise, like walking slowly. My O2 provider mails me a stationary concentrator at each of my destinations so I always have it handy; when I’m done, I ship it back with the label & packaging he provided. I sleep MUCH better with a continuous flow system than a pulse dose (I’ve tried it).
Well, I have mild arthralgia or stiff joints as a side effect of the Dupixent. It’s a known side effect of many biologics (maybe all?)
Last night, D decided to try putting some Voltaren (a topical cream that is anti-inflammatory), and it really helped. I put more on this morning and will use it mornings and evenings.
If anyone wants it, it’s sold at many drug stores & online but Costco has the lowest price generic version. 🙂
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Like -
Helpful -
Hug
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