My husband has mobility issues. Any tips?

Posted by cmdw2600 @cmdw2600, Feb 21, 2023

My husband (age 72) was diagnosed with Parkinson’s about 6 years ago. I feel his progression is slow even though he would say otherwise. He is still driving and playing golf-although poorly. He does go to the gym, but he is weak and feels that he cannot improve in this area. He is of a healthy weight, maybe a bit too thin, and we have a healthy diet. He currently takes Sinemet, and a drug that is not as well known called Gocoveri. This drug seems to control what he referred to as “bobble head”. His hand tremors are pretty well controlled with the Sinemet.

My question is this: does anyone have tips for getting out of bed, getting off the sofa, getting out of the car? I’d like him to get some kind of physical therapy for these situations but am not certain how to proceed. He does not use a walker, cane or Nordic sticks.

Anything that has worked for anyone out there?

Thank you! Cindy

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

@bjleffelman

Cindy,
Does your husband have allot of "OFF" times with his drugs? That is another very issue my husband deals with and it is very difficult to deal with that.
Thank you,
Barb

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My husband says he does not have “off” time, but I m not certain he’s correct. He also believes his medication doesn’t help but I know that’s not true.

We now have a motorized lift chair that he sleeps in because it’s too difficult to get out of bed, even with a bed rail. That was working for a while but now he’s struggling to get out of the chair. He fell over the weekend due to temporary loss of balance.

I must admit I am very worried about the future.

Best wishes to all on this forum. Cindy

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Hello,

You'll need to copy and paste. The first program is slow, so fast forward show to wherever you may find information relevant. This guy (John Argue) has taught me how to sit down and stand up from a couch and chair.


https://www.youtube.com/watch?v=4cxZgi90bEA
https://www.youtube.com/watch?v=AqzcQ-LQJFk
Good luck!

I find YouTube a fabulous resource for Parkinson's disease sufferers. I especially find Laurie Mischley's presentations and webinars valuable and inspirational. .

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@melaniego

Have you been living with Parkinson's? If so, for how long? I'm 58 and just diagnosed last year. DEvastated and terrified.

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My spouse was diagnosed in 2018. He has changed alot this year. Spouses and Caregivers do feel anxious and sometimes concerned about the changes. It is very hard to see the changes. Walking and getting other conditions that intensify their condition is so overwhelming to the both of us, The best to you and keep yourself healthy and updated. Medications work for awhile and some don't ! Report changes to your physician and do your research and stay informed. Connect with the local chapter of Parkinsons Association. Write your symptoms down and any side effects. This connection group has been a God moment for me! Hugs to you !💓

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@cmdw2600

Adding to my question above regarding mobility, what about general weakness? My husband used to love playing golf, but now he is frustrated because his weakness prevents him from ever having a good game. This may seem like a small issue as he is still able to drive and get out of the house, however, he also struggles with basic tasks like opening a package or water battle-no strength. He does go to a gym and do some weight machines, but he claims nothing will ever help him regain his strength due to Parkinson’s.

Can anyone offer advice or opinions? Is he correct?

Cindy

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My spouse and I used to go to the local YMCA. They had a Parkinsons program. We went three times a week. It helped us both. I tagged him. In other words I made sure the weights were right and helped him count or if I noticed a problem we would always do the workout together. I did it as a caregiver. Our insurance helped and I was free. He was evaluated first for his abilities prior. This was before the pandemic. He cannot do those things as he has no stamina. Using his hands for fine motor thing's is a problem now. He has had to stop lots of little things this past year due to progression of his Parkinsons and other illnesses. This has not helped his moral . I ordered some weights that are coming today. I have started working with him on a chair with exercises. He has done well with showing him..not so much in remembering. But I am sure he will at least have movement. Standing is hard and I feel he will need his walker more and more. I hope that helps. Hugs to you both.

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@1died2x

I know the frustrations. I can't open a water bottle so my wife does. I can't do lots of things. I try to concentrate on what I CAN do and quit looking at who I was and concentrate on who I am. I am 78 years old and I can walk so I do. I watch my diet. I study things that interest me and I walk again. Getting old is not fun. Getting old with PD is less fun. NOT DEAD YET. Be greatful to be alive. Its tough being old with PD - do you have another choice? Watch the movies you never had a chance to watch when busy. Do it while walking on a treadmill. I know I am mean and unsympathetic. Just enjoy what you have because you will still have it happy or sad. Be happy.

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I don't think you are mean. I call it being realistic and working with what you can do. Optimism is a great trait to have. Kudos to you!

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Hello
I just wanted you to be aware of a Webinar from The Davis Phinney Foundation in February. The topic of the Webinar is, "OVERCOMING HURDELS IN EXERCISE. Here is a link to register. If you are not available on the date of the Webinar, you can still register and a link will be sent to you so that you can view the recording.
http://dpf.convio.net/site/MessageViewer;jsessionid=00000000.app20127b?em_id=21801.0&dlv_id=31406&pgwrap=n&NONCE_TOKEN=7C33C474A74A359E1E633B6B7A841335

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