Anyone take new drug Camzyos (mavacamten) for HCM?

Posted by captainterry @captainterry, May 25, 2022

Since FDA approval in April has anyone (non-clinical trial patient) actually obtained a prescription and had it filled? If so, when and where was the cardiologist located? Is the registration process for doctor/patient/Rx taking a long time for this much anticipated drug?
Thanks from a fellow patient!

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mpjg | @mpjg | 2 days ago

I'm 71 years old, dislike taking medications, but have been on Camzyos since 8/2024. I also take 25 mg metoprolol and 100 mcg synthroid. I was started on 5 mg Camzyos and couldn't believe how much better I felt and was functioning. However, due to a rapid gradient decrease after just 1 month, my dose was reduced to 2.5 mg. Being on 2.5 mg was almost like not being on any Camzyos. After a stress echo showed that my gradient increased on exertion, I was returned to 5 mg and again feel great. Honestly, I have not experienced any side effects from the Camzyos.