1. < Hypertrophic Cardiomyopathy (HCM)

Anyone take new drug Camzyos (mavacamten) for HCM?

Posted by captainterry @captainterry, May 25, 2022

Since FDA approval in April has anyone (non-clinical trial patient) actually obtained a prescription and had it filled? If so, when and where was the cardiologist located? Is the registration process for doctor/patient/Rx taking a long time for this much anticipated drug?
Thanks from a fellow patient!

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mbi | @mbi | 3 hours ago
In reply to @jess51 "I have on Camzyos for 2 -3 years now. It works really well for me at..." + (show)
@jess51

I have on Camzyos for 2 -3 years now. It works really well for me at the 5mg dose. If I forget to take it I really notice the moment I go for a walk. The difference is huge. I have no side effects that I am aware of although I did for the first week or two. Just minor things, minor dizziness and some tingling in the legs. If I forget to take it becomes immediately obvious upon exertion. Hoping that it continues to be a solution for me.

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I was just diagnosed with HCM
And am thinking about ablation.
Does Camzyos make it better, or only relieve symptoms?

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