Fibromyalgia and adhesion & fascial issues

Posted by kach @kach, Apr 9, 2021

I have fibromyalgia and have had widespread skeletal muscle pain for a number of years. This past year, I started having pain issues due to adhesive capsulitis (freezing of my shoulder and ankle), myofascial adhesions, and plantar fasciitis. Is anyone else with fibromyalgia experiencing these type of issues? I am wondering if they are related to my fibromyalgia or some other underlying problem.

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

My suggestion would find a pain clinic in your area. I would talk to them about trigger point injections. When you're talking about myofascia, that involves massages and trigger point injections to relieve the muscle pain. I don't know if what you're describing is a nerve pain when you say it feels like ants, but the is gabapentin for nerve pain you could look into. The symptoms in fibromyalgia can easily be mistaken for something else going on. There's a specific condition that has to do with myofascia, there is a specific condition that have to do with multiple skeletal pain there's lots of different conditions that overlap with symptoms that have to do with fibromyalgia so you might check into some further testing. I would highly suggest a rheumatologist and or a neurologist. Anyway just my two cents worth hopefully you found this helpful.

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@orlanda

There is specific medication for fibromyalgia. The pain comes from nerve endings and the lumps under the skin in the muscle are common especially in severe cases. Talk to a physician --preferably a rheumatologist who specializes in FM.

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I have posted this before, probably in another thread. From the Mayo web site:

Antidepressants. Duloxetine (Cymbalta) and milnacipran (Savella) may help ease the pain and fatigue associated with fibromyalgia. Your doctor may prescribe amitriptyline or the muscle relaxant cyclobenzaprine to help promote sleep.

Anti-seizure drugs. Medications designed to treat epilepsy are often useful in reducing certain types of pain. Gabapentin (Neurontin) is sometimes helpful in reducing fibromyalgia symptoms, while pregabalin (Lyrica) was the first drug approved by the Food and Drug Administration to treat fibromyalgia.

Hope this helps!

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@moaweys1010

How can we recover from this. It’s spreaded all over my body now and it’s only getting worse. I’m having trouble swallowing my face feels like there’s ants all
Over.

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I have similar symptoms. I was tested by a Neurologist for nerve damage and also went to a Rheumatologist. I feel the ants crawling all over my body, as well as burning at times, and severe pain in my feet and legs. These are just part of my symptoms. But these do sound like your symptoms. I was negative for Small fiber neuropathy, and my EMG is normal, as well as all MRIs. This is what they tell me. I have been diagnosed with Fibromyalgia and Migraine Associated Vertigo. I suggest you go to a few different doctors and see what they come up with. At least it will help you rule out that really scary things like MS or ALS.
Best of luck to you,
Kat

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@moaweys1010

How can we recover from this. It’s spreaded all over my body now and it’s only getting worse. I’m having trouble swallowing my face feels like there’s ants all
Over.

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The problem swallowing and the feeling of ants don’t sound like fibro symptoms to me. Coincidentally, I have Sjogren’s, fibro and a swallowing disorder. To my knowledge, the swallowing disorder is not connected to the other problems.

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I've had fibro for about 20 years. I had a frozen left shoulder about 15 years ago and a physical therapist worked on the shoulder over several weeks to loosen it. I had a complete recovery, but it was extremely painful (a real 10 out of 10) experience. I've also had carpal tunnel that a PT was able to work out by calming the fascia in my arms. I was seeing a physiatrist back then who told me that he thought I had a combination of fibro and Myofascial Pain Syndrome, and the MPS was causing my pain. He was the most knowledgeable doctor I've seen, but he retired years ago and I've never found a doctor since who wanted to treat me with anything but meds.

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In reply to @granolagodddess "This site is useless." + (show)
@granolagodddess

This site is useless.

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It’s only useless if you don’t understand how this site works.

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@moaweys1010

I have knots in my glutes, and they don’t seem to go away after vigorous massages. The glutes have become weak so I can’t sit for long before I start to experience pain in my buttocks and legs. I don’t know how to reverse this can someone please advice how to get rid of glute knots and what medication can I use for sleep as well as strengthening myself.

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Have you tried a heating pad or Ultrasound Treatments? These really helped me with relaxing the muscles.

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Added: Theraworx (non-script) Foam is magnesium based and relaxes the muscles. Available through Amazon or Walmart or other drug stores. Greatly helped me to stop the muscle cramping.

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@amandajro

Hello @kach and welcome to Mayo Clinic Connect. I am glad you have joined members on Connect to get support and feedback on your fibromyalgia and other symptoms to see if others have found they are potentially related.

I see that @whattodo has already reached out to share. Other members who have been active recently in the fibromyalgia discussions include @faithann64 @healingone @migizii @parus @rwinney @sandytoes14 @babette and others who may have experiences they can share with you.

How long have you had fibromyalgia?

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Saludos:
Desde el 2021 comencé con síntomas. Dolores silenciosos.

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@c101

Have you tried a heating pad or Ultrasound Treatments? These really helped me with relaxing the muscles.

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Correction to above. If muscles are cramping, ice is better. If muscles are very sore due to inflammation, heat is better. Also, you can sleep with a pillow under your legs (if you are on your back), between your legs if you are on you side. This takes the pressure off the lower back which will ease the cramping. Also can elevate the feet. If you do not have a bed that will automatically fold the feet up, just take a piece of luggage or other object to put between the mattresses to raise the feet up (this again takes pressure off the back).

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