Burning Mouth Syndrome. I have it very severe.

Thank you! I tried a swish but I’ll now try the pills. I’

Hi, everyone. I am a male at the age of 71, had burning tongue for 2 and half years starting with a metal taste in mouth, It has been horrible to go through not knowing how it started and if my tongue will ever heal. During those years I lost taste. Now I can taste a little. I went everywhere to find a cure or something that will quiet the nerves. This has created a social isolation problem because going out means you are always around food so I don't eat outside anymore. Depression has set in during any celebration. I am on a very bland diet, drinking water, meditating, and making sure I don't eat tomato sauces, citrus, and many other restaurant foods. I am now looking into acupuncture and waiting for someone to find a cure for this ailment. Some doctors think it was a variant of Covid that started this because other than this I am very healthy. I have been diagnosed with dyseugia.

I was lucky to have a daughter who is a nurse. She gave me a solution that numbs the tongue for about 30 minutes. It is Lidocaine. It is like a gell that coats your tongue when it is stinging, The stinging or burning has changed my life. I can see why people that have this become socially isolated, then become depresssed, and then they need cognitive therapy. Every time you go somewhere there is always food and drink. I find that this sometimes sets off the burning. I can only hope that they come up with a cure in 2025. I have gone everywhere and the doctors just don't know how to treat this. Hope this helps.

I am at 2 and half years going on 3 and I know exactly what you mean. Where are these groups on Facebook. I am also learning how to deal with it. Do you know how you got this? Are you taking anything that helps you with the burn?

Thank you for the info.

Please discuss trying klonopin with your doctor. Has worked very well for me. Anti seizure medication.

What dosage and form of klonopin do you take?

I was 3.5 years into burning trying many different medications. After obtaining a scope of my esophagus I have reflux and Barrett’s. I have to treat long term but 60 days of Prilosec 40 mg twice daily and sucralfate 10 ml before meals and at bedtime has pretty much eliminated the burning. When slight burning comes thru I chew 1 pepsid complete. Of course I have followed all recommendations for lifestyle changes, eating, drinking, etc. and raise head of your bed 6 to 8 inches and eat small meals and don’t eat late in day. Your doctor can try these medications on you before a scope. It takes patience and a good 30 days to start to see results. I drink lots of warm water to wash away acid. I also take 5 mg baclofen at night to help with reflux. Good luck. I tried allergy tested, replacing crowns, root canal and finally even pulling a tooth and stopping all medications to see if medications were making the burning worse. When I do get a little bit of burning during day, if I do get burning, I chew 1 pepsid complete. Of course no big meals, don’t eat late at night, no drinking, no smoking, no spicy foods,…read up on what to do to help reflux. My reflux was silent as I never knew I had reflux.

3 years in, Trident sugarless gum helps, lidocaine mixture numbs, Halls sugarless cough drops also helps. Hope this helps. I hope this helps.

Did you try sulfracrate for your stomach