Strange symptoms rapidly worsening -back pain, vibrating legs and body

I don't have what you have but have had burning legs, arms, plus going numb and that has been happening since I had the Shingrix Vaccine in 2019, and latest neurologist state I have generalized acquired sensory polyneuropathy, demyelinating. Yet, not referred to anyone to get help. Called twice today to get a referral no one called me back. Can't stand the pain and it's mostly at night. Always at night as a matter of fact. I can't stand it.

Well it started with the feet like fire shooting up to my legs chest, etc. It's escalted to burning feeling, tingling, numbness, now affecting my arms, etc. Neurology said it was neuropathy which I got in 2019 after taking the Shingrix Vaccine, and it has steadily gotten worse. Just had a test of my neck with an MRI but they didn't include the spine which I know I have a lot of damage. I asked why and the answer because of insurance. Also had another nerve study test done. At night when laying or daytime when laying down it's horrible. During the day I'm fine as long as I'm standing upright. If I just lay there and don't move it continues and feels like I'm on fire. I cannot stand it, and I won't take gabapentin, or Lyrica. So I take nothing now. Got an appointment for an ultrasound consultation tomorrow to see if I'm a candidate and if so, if insurance pays for it and depending on copay will try it. Not putting any faith into it. I've tried frequencies using RIFE technology which I'm doing now but not sure I'm adding the right frequencies since I'm no better, Tens, Red Light Light Therapy, Supplements, etc., and nothing has worked. It's getting worse! The feeling is feet, legs, now arms, hands, etc. Burning, Pins & Needles!

@blearyeyes Hi, thank you for your comment. I am sorry you experienced that. Unfortunately for me I don't have an answer yet. I had a normal lumbar MRI with no abnormalities noted at all.

Kat, I get similar sensations around my abdomen. It feels like my muscles get tight in my lower back and in my abdomen. It feels like someone is giving me an uncomfortable hug.

I also forgot to mention I've been having extreme heat sensitivity for the past few months. I've had all the tests to rule out things such as hyperthyroidism etc. I will have hot flashes and start sweating from the central area of my face profusely.

Last year Simon Med Imaging ran a special here in AZ; $600 for lumbar, thorasic, cervical and brain MRI's with and without contrast for anyone wanting or needing all areas covered. This price, of course, was predicated on patient paying upfront on date(s) of service. This is MUCH less than what they charge and get from insurance companies. Perhaps your insurer might reimburse you in the end if you file on your own, perhaps not. You might look this with imaging clinics in your area.

Am so tired if insurance companies interfering with patient care. HMO's more than all of the others.

Hi,

I've made a post in another group but I am convinced that I may have a form of neuropathy, so I thought I would post here and see if anyone has any advice or has experienced similar symptoms.

I am in my late 20s and have been having strange symptoms for a few years that have been having a waxing and waning kind of pattern. The symptoms include tingling, whole body fasciculations, muscle tightness and spasms. Most recently for the past few months, I have been having terrible hot flashes with excessive sweating on the central areas of my face, terrible neck and back pain (tightness with sharp stabbing, burning areas of pains in random areas of my spine), and worse tingling/fasciculations/spasms. My muscles have started shaking when doing things such as if I squat down or lean my head on my arm, when this sort of thing never happened previously. When I sit down my entire lower body feels like it's vibrating. I haven't received a diagnosis, and I don't know what to do at the point as everything seems to be worsening and I'm at my wits end. I have had all sorts of testing and everything has come back normal. It is worsening so fast that I'm considering going to the ER but I know it would probably be a massive money sink without much benefit. Has anyone experienced anything similar or have any advice?

I am having the same symptoms that have been going in for a year and only getting worse. My pain was so bad I stopped being able to eat, lost 15#, and had to have my GB removed for lack of function. The hot flashes started recently. My hands and feet will be ice cold but sweating. The weird muscle hugs are getting worse and my limbs are starting to tingle and buckle. Did you ever get an answer? I just got a referral for MRI finally after 2 CT and other testing.