I am having the same symptoms that have been going in for a year and only getting worse. My pain was so bad I stopped being able to eat, lost 15#, and had to have my GB removed for lack of function. The hot flashes started recently. My hands and feet will be ice cold but sweating. The weird muscle hugs are getting worse and my limbs are starting to tingle and buckle. Did you ever get an answer? I just got a referral for MRI finally after 2 CT and other testing.