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Strange symptoms rapidly worsening -back pain, vibrating legs and body
I have been having extremely weird symptoms and I've been having a hard time getting in to see a neurologist. I have been having extremely bad low back pain for about 6 months now with weird tingly sensations in the area. It has progressed and gotten severe and now am having muscle spasms in my legs and pelvic area. I am now also experiencing a vibrating sensation in my pelvis and both legs if I sit down. If I lay back and put any pressure on my spine, I am now experiencing it throughout my whole body. It only occurs when putting pressure on my back. If I lay down on my stomach it doesn't occur. Has anyone heard of this?
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@tennis123 I wonder whether you are able to exercise or not? I know when I do not stretch upon waking and perform my HEP then and before bed. If I don’t I get nerve twitches I have found. What kind of home exercise program do you follow?
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1 ReactionOh my god. Are you me lol? I have one of the exact same theories and even got prescribed antivirals b/c I had a borderline positive herpes titer. I've been having random flares of back pain in different parts of my back. When it first started it felt like a hot area or burning like inside of my spine in my lower back. I didn't really think much of it when it began the first couple of times but then it kept happening but now I regret it because of my current symptoms. I have noticed tiny little skin rashes in the area but they've never really looked like herpes lesions and were never painful. I wonder if I've been having herpes flares without major skin symptoms, if thats even possible. I never had a major outbreak that I can remember.
I am still semi convinced I have MS or CIDP or something but my MRIs didn't support a diagnosis of MS. I have an EMG scheduled for next Monday. It is terrifying because I KNOW something is majorly wrong and I'm so tired of waiting because it keeps getting worse and people around me are starting to notice because they can see me tremoring. I am getting annoyed and angry because I feel like at some point it should be considered serious enough to expedite these tests for a young person that could end up suffering from permanent neurologic sequelae. Every day that I have these symptoms and almost trip from a foot drop or feel like my legs are giving out from underneath me or feel like I'm losing my balance that I should go to the ER and beg for help but then I chicken out and don't go because I am embarrassed lol.
I had similar symptoms and after seeing several neurologists who could not help me I found out that from a back surgeon that leaking annular tears ( had 3 ) can cause this problem. Had those taken care of and have had some relief.
Thank you so much! I’ll look into that. I really appreciate that you took the time to respond. Take care!
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1 ReactionI will also look into that! Thanks! How were they treated? Mainly supportive care/rest?
Sounds like SS to me n
Sjogren syndrome?
Hello. Did you ever get a diagnosis? Do you mind if I ask what prescription and dose antivirals you were given? After months and tests and spinal tap and labs and doctor appointments, I am being treated as though I am a hypochondriac with anxiety. No one takes me seriously and as I write this I am tingling with the painful current which is and has been pretty much constant now for 7 months. I take gabapentin at night to knock myself out, but it does absolutely nothing to stop the burning prickly sensation. I have pleaded to be treated for Elsberg syndrome, but the doctors I’ve seen haven’t even heard of it. My .v zoster IgG was 2213 and .hsv2 IgG was 8.42.
I certainly hope you found someone who could help you by now.
@tennis123 I am a spine surgery patient and had a tough time getting a correct diagnosis. I had cervical stenosis causing spinal cord compression in my neck. That can cause pain and jumping muscles anywhere in the body. Have you had an MRI to get an image of the entire spine? That is important to find where a problem is and to rule out others. Spine problems are tricky and can confuse surgeons. 5 surgeons missed my diagnosis and only one got it right. I had decompression surgery that fixed the problem.
I don't have what you have but have had burning legs, arms, plus going numb and that has been happening since I had the Shingrix Vaccine in 2019, and latest neurologist state I have generalized acquired sensory polyneuropathy, demyelinating. Yet, not referred to anyone to get help. Called twice today to get a referral no one called me back. Can't stand the pain and it's mostly at night. Always at night as a matter of fact. I can't stand it.