Post-Intensive Care Syndrome (PICS) - Let's talk
Have you heard of Post-Intensive Care Syndrome? Sometimes it's called post ICU syndrome or PICS. PICS is defined as new or worse health problems after critical illness. These problems can affect your mind, body, thoughts, and/or feelings.
On Connect we would like to bring together people who have been affected by critical illness, and hopefully lighten the burden you bear. Patients and family members welcome.
Grab a cup of tea, or beverage of your choice, and let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Intensive Care (ICU) Support Group.
Hi @lynngs44 I’m sorry to hear that your new heart is failing. Facing the end must be so hard for your entire family. May I ask how old your daughters are? How are they dealing with this unfair reality?
Hello. Thank you for your kind words. Unfortunately, with the pancreas transplant failing and all of the complications, we've been down this road before but this time is very different. My heart has been perfect since the first day I received it seven years ago so I was shocked to learn it is now failing. My daughters are 22 and 26 so that additional seven years that I've had with them has been such a miracle. But yet even now, they still feel so young and still need their me in their lives. I began keeping a notebook for them, writing things down, thoughts, recipes, just everything I know they will one day wish they had. It's devastating for all of us but we just keep making the most of every day we have together.