1. < Epilepsy & Seizures

Sudden onset of seizures in adult

Posted by 1990mom @1990mom, 2 days ago

My son is 34 years old. He had never experienced a seizure or had any family history of seizures until a week ago. We are looking for a cause but only seem to get treatment for symptoms at ER when have an occurrence...can't get appointment with neuro until January 24th in Colorado and can't get an EEG until the 30th....does anyone have experience getting into Mayos quickly and getting answers quicker?!
Thanks!

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royanthony | @royanthony | 1 day ago

I have all my MRI and neurosurgeon MRI review done in Jacksonville, FL for many years. What is the closest Mayo clinic from where you live? I may be able to assist you from my Jacksonville contacts. From experience,
this is such a change in his lifestyle change. Again from experience, he must be distraught. My blessings. Let's see of we can get some help for him.
Roy Anthony

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1 reply
royanthony | @royanthony | 1 day ago

I read your post again. I had a concussion when I was younger, which can be a trigger for seizures. But my seizures have been confirmed to be a non-cancerous tumor with lesions in the left temporal lobe.

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1 reply
Chris Gautier OR Santosha | @santosha | 9 hours ago

Hi @1990mom
I was diagnosed with epilepsy at the age of 48 (2019). I started with seizures when I was a teenager, but I did not know they were seizures because they were just auras and very smooth, lasting a few seconds. But with time, those seizures have evolved to complex partial ones and got worse. My mother has taken me to many doctors and nothing was diagnosed, living many decades with epilepsy without knowing it.
What caused my epilepsy was an accident I had when I was 5 years old. Epilepsy can take many years to manifest itself, being silent.
Did your son have an accident hitting his head? Car accidents with head trauma for example can lead to epilepsy.
I share here with you a link with the main causes of epilepsy:
https://www.epilepsy.com/causes
If I were in your place, I would take your son to an epilepsy center (Mayo Clinic, Johns Hopkins, and others) to have an evaluation.
My best wishes to you and your son.
Chris (@santosha)

REPLY
1 reply
1990mom | @1990mom | 4 hours ago
In reply to @royanthony "I have all my MRI and neurosurgeon MRI review done in Jacksonville, FL for many years...." + (show)
@royanthony

I have all my MRI and neurosurgeon MRI review done in Jacksonville, FL for many years. What is the closest Mayo clinic from where you live? I may be able to assist you from my Jacksonville contacts. From experience,
this is such a change in his lifestyle change. Again from experience, he must be distraught. My blessings. Let's see of we can get some help for him.
Roy Anthony

Jump to this post

Thanks! Yes, he is very distraught. He has 3 small children and no family close so all of us parents are staying in 2 week timeframes to help out. Looks like the closest Mayo Clinic would be in Arizona. Appears they have a lot more diagnostic services than are available here. While he hates to leave his family, I am encouraging him to go find out a cause if possible and not just treat the symptoms. Any suggestions would be appreciated...he and his wife are trying to be patient with the slow process here but as a parent, I feel the longer he takes these medications that affect the brain, the worse off he will be.
Thanks again!
Deb

REPLY
1 reply
1990mom | @1990mom | 4 hours ago
In reply to @royanthony "I read your post again. I had a concussion when I was younger, which can be..." + (show)
@royanthony

I read your post again. I had a concussion when I was younger, which can be a trigger for seizures. But my seizures have been confirmed to be a non-cancerous tumor with lesions in the left temporal lobe.

Jump to this post

Sorry to hear that... a known cause doesn't always result in good alternative answers...hoping we find a cause that is fixable.

REPLY
1990mom | @1990mom | 4 hours ago
In reply to @santosha "Hi @1990mom I was diagnosed with epilepsy at the age of 48 (2019). I started with..." + (show)
@santosha

Hi @1990mom
I was diagnosed with epilepsy at the age of 48 (2019). I started with seizures when I was a teenager, but I did not know they were seizures because they were just auras and very smooth, lasting a few seconds. But with time, those seizures have evolved to complex partial ones and got worse. My mother has taken me to many doctors and nothing was diagnosed, living many decades with epilepsy without knowing it.
What caused my epilepsy was an accident I had when I was 5 years old. Epilepsy can take many years to manifest itself, being silent.
Did your son have an accident hitting his head? Car accidents with head trauma for example can lead to epilepsy.
I share here with you a link with the main causes of epilepsy:
https://www.epilepsy.com/causes
If I were in your place, I would take your son to an epilepsy center (Mayo Clinic, Johns Hopkins, and others) to have an evaluation.
My best wishes to you and your son.
Chris (@santosha)

Jump to this post

Thanks Chris! I will definitely share your post...sometimes a moms advise isn't always considered the right direction. 😊 Sounds like you have had a rough journey!! I feel for you...can't be easy!!! Thanks again!
Deb

REPLY
royanthony | @royanthony | 4 hours ago
In reply to @1990mom "Thanks! Yes, he is very distraught. He has 3 small children and no family close so..." + (show)
@1990mom

Thanks! Yes, he is very distraught. He has 3 small children and no family close so all of us parents are staying in 2 week timeframes to help out. Looks like the closest Mayo Clinic would be in Arizona. Appears they have a lot more diagnostic services than are available here. While he hates to leave his family, I am encouraging him to go find out a cause if possible and not just treat the symptoms. Any suggestions would be appreciated...he and his wife are trying to be patient with the slow process here but as a parent, I feel the longer he takes these medications that affect the brain, the worse off he will be.
Thanks again!
Deb

Jump to this post

I will make it a priority this afternoon to contact Mayo in Jax to try and get some directions for you and your son. I will update you ASAP with what I can get from them.

REPLY
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