Has anyone seen a sudden onset of seizures in an adult?

Posted by 1990mom @1990mom, Jan 13 6:24am

My son is 34 years old. He had never experienced a seizure or had any family history of seizures until a week ago. We are looking for a cause but only seem to get treatment for symptoms at ER when have an occurrence...can't get appointment with neuro until January 24th in Colorado and can't get an EEG until the 30th....does anyone have experience getting into Mayos quickly and getting answers quicker?!
Thanks!

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

@tlb101175

My son started Depakote when he was around 10. We tried taking him off when he was 18. After about a month or 2 of being off the meds, even though he didn't have any seizures I had the doctor do an eeg and it showed seizure activity. We put him back on Depakote and he has been taking it ever since. He is 23.

Jump to this post

I think everyones situation is different. My EEG's were negative and all other tests were negative including any brain damage. Can a person have a few seizures in their life and then never again? Of course. This is not rocket science, a tremendous amount is unknown in this area. Each patient has to decide for themselves after gaining knowledge and talking to their doctor what their best course of action is. Not all people have continuing seizures. I am planning to cut down on my keppra in a very slow and methodical manner and keep my fingers crossed. God Bless
ray hippele

REPLY
@hippele

where did the physical damage to your brain come from?

Jump to this post

I see 3 possibilities: 1. The original meningioma 2. The stroke, (the meningioma bled and I had a hemorrhagic stroke and some stroke survivors develop epilepsy. ) 3. The surgery to remove the meningioma and stop the bleeding.

I never asked, but I came home from rehab with a prescription for anti seizure med’s, which means that my neurosurgeon thought it likely that I would need them. And I did.

REPLY
@methel

I see 3 possibilities: 1. The original meningioma 2. The stroke, (the meningioma bled and I had a hemorrhagic stroke and some stroke survivors develop epilepsy. ) 3. The surgery to remove the meningioma and stop the bleeding.

I never asked, but I came home from rehab with a prescription for anti seizure med’s, which means that my neurosurgeon thought it likely that I would need them. And I did.

Jump to this post

...that all makes sense and to continue the pills makes sense. like I said, everyone's situation is different and every individual person has to decide how to move forward...thanks and God Bless

REPLY
@1990mom

Thanks! Yes, he is very distraught. He has 3 small children and no family close so all of us parents are staying in 2 week timeframes to help out. Looks like the closest Mayo Clinic would be in Arizona. Appears they have a lot more diagnostic services than are available here. While he hates to leave his family, I am encouraging him to go find out a cause if possible and not just treat the symptoms. Any suggestions would be appreciated...he and his wife are trying to be patient with the slow process here but as a parent, I feel the longer he takes these medications that affect the brain, the worse off he will be.
Thanks again!
Deb

Jump to this post

My son had a sudden onset at 17 (not quite an adult). We are lucky enough to live in AZ and after not feeling great about the original neurologist we saw in town, I was able to get him in to Mayo neurology. The first thing they did was get him into their epilepsy monitoring unit. We still don’t know the “why’s” but they do have him on the correct medicines and he has now been seizure free for 13 mos (when he started was having grand mals weekly). I love the neurology team at Mayo in AZ.

REPLY
@hippele

I think everyones situation is different. My EEG's were negative and all other tests were negative including any brain damage. Can a person have a few seizures in their life and then never again? Of course. This is not rocket science, a tremendous amount is unknown in this area. Each patient has to decide for themselves after gaining knowledge and talking to their doctor what their best course of action is. Not all people have continuing seizures. I am planning to cut down on my keppra in a very slow and methodical manner and keep my fingers crossed. God Bless
ray hippele

Jump to this post

My neurologist explained that adults who get sudden adult onset seizures , 70% will be free of all seizures in 5 years or less ..
With continual monitoring by my Doctor and correct combo of seizure medication, my seizures were far and few in between by my 2nd year .. on my 4th year , I did not experience anymore events .. I have thankfully been seizure free for 10 years now ..

REPLY
@jodycharles

My neurologist explained that adults who get sudden adult onset seizures , 70% will be free of all seizures in 5 years or less ..
With continual monitoring by my Doctor and correct combo of seizure medication, my seizures were far and few in between by my 2nd year .. on my 4th year , I did not experience anymore events .. I have thankfully been seizure free for 10 years now ..

Jump to this post

are you still taking seizure medication or have you weened off? generally accepted notion by doctors is if you are seizure free after 2yrs you can be weened off medication. thanks and God Bless
ray hippele

REPLY
@hippele

are you still taking seizure medication or have you weened off? generally accepted notion by doctors is if you are seizure free after 2yrs you can be weened off medication. thanks and God Bless
ray hippele

Jump to this post

Hey Ray ,
Yes , neurologist slowly weaned me off those meds ..
Took about to year to finish that process . No issues since .
Blessings,
Jody

REPLY

@hippele
I wouldn't decrease your medication until you have discussed it with your neurologist. He/she may have valid reasons why you need to continue taking them.
If you decrease them and you drive I hope you stop.
If someone has started having seizures again, most of the time you can just restart your medication and again gain control. But sometimes depending on how long a person has been off meds, (if you end up stopping) triggers, epilepsy or brain may change and occasionally your previous meds will no longer be effective. I would not make medication changes without consulting with my physician.
Take care/good luck,
Jake

REPLY
@jakedduck1

@hippele
I wouldn't decrease your medication until you have discussed it with your neurologist. He/she may have valid reasons why you need to continue taking them.
If you decrease them and you drive I hope you stop.
If someone has started having seizures again, most of the time you can just restart your medication and again gain control. But sometimes depending on how long a person has been off meds, (if you end up stopping) triggers, epilepsy or brain may change and occasionally your previous meds will no longer be effective. I would not make medication changes without consulting with my physician.
Take care/good luck,
Jake

Jump to this post

Hi Jake,
My main point I was and am making is what I said in a previous post "Each patient has to decide for themselves after gaining knowledge and talking to their doctor what their best course of action is. " It is your life and your body. I consider my doctors consultation and plenty of web research and then I make my own decision, not the other way around. There is a poison in every pill and a person has to decide whether the benefits of taking a pill(s) outweighs the potential side effects and your health. God Bless.....
ray hippele

REPLY

Thanks for all the info and input!! My son had his Dr gradually stop the meds and had another seizure 6 days after last dose....back in it again but having headaches with meds...Dr believes those will eventually stop...fingers crossed!

REPLY
Please sign in or register to post a reply.