Oral lichen Planus: What home remedies or medications help you?

Does it continue to work for you?? What was your exact dosage in those two pills per day?

Your comment has given me hope. I will keep trying to make peace with this ailment

Hi
I've had OLP SINCE 2020. Steroids just don't cut it with any help at all.
Now I think that I'm getting an ulcer on my bottom lip.
Has anyone had this issue?
Getting any medical officer who has even heard of OLP let alone seen it - well it just doesn't happen here in Queensland.

Hello, I need to know if anyone has tried hydrogen peroxide rinses for OLP? If it works, what was the peroxide strength, what ratio of water to peroxide to mix and how many times a day to rinse? Thanks for any information!

@doc24 Welcome to Mayo Clinic Connect! How did you find the site? We’re glad you found us! Do you currently use peroxide for OLP? Where did you hear about it? Be sure to get involved in the discussions.

Greetings- I am new to this forum and discussions, but am very happy to have found it. I spend a lot of time researching OLP and stumbled upon this site in my research. I have had OLP since 2023. I was also diagnosed with Lichen Sclerosis affecting vagina. I am a 64 year old (otherwise) very healthy woman.It's been a long and painful journey as is the case for so many others here. I have been prescribed a multiple amount of medications for this over the past 2 years by a DMD at MCV hospital. Only a couple have given me any relief at all. The meds include Dexamethasone, Clobetasol ointment and cream, Lidocaine rinse.I have modified my diet, tried seeing Ayurvedic Drs; I am currently taking Ayurvedic supplements. I am seeing some slow progress with this. When I was diagnosed in 2023, my symptoms were much worse ie: sores inside cheek area, gums bleeding, constant pain. At the beginning of this year my gums began bleeding a lot again and I had open sores at the baseline of my back gum area. It is now slowly getting better with the current treatments I am using. I found a company called WelDental in Carlsbad,CA and am using their water flossing tablets in my waterpik, as well as their toothpaste tablets. The pockets and sores at my gum base, including receding gum line, are improving since starting using this about 6 weeks ago. Brushing my teeth and any dental hygiene is so challenging. I use a very soft toothbrush I ordered from them as well. I was only able to use children's bubblegum flavored toothpaste prior. I have read from this company that using hydrogen peroxide to rinse mouth with is not good..kills all the good bacteria supposedly. There is a lot of valuable information on their site and I recommend giving them a look. I had to cancel my dental appointments this year because it's impossible to let anyone touch my gum areas since they are very fragile and bleed easily. I am very interested in an earlier post I saw here regarding Valtrex. I still have an old prescription re-fill that was given when 1st diagnosed with OLP. I have not used it yet and I plan to try it..? Does anyone else have experience with this? I also have nail issues as well as hair issues from the LP. It's a constant battle. I was vaccinated for Covid-19 in March 2023, I got Covid in April 2023 , and then my OLP symptoms started immediately after. Nonstop ever since. The only thing that has helped with the vaginal issues has been Clobetasol cream. And it's not constant. It flares up and then it settles..Not sure what causes the flare-ups. I do believe this can be cured, somehow, some way....I wish all of you better health and relief from this terrible condition.

Hi, new to this group. I've had OLP since early 2018. I was diagnosed by an oral tissue specialist at the Anschutz campus, CU school of medicine. He put me on hydroxychloroquine (HCQ) for a maintenance drug and it has helped immensely. I've not had to use clobetasol, nystatin or dexamethasone for 2-3 yrs. I will occasionally use tacrolimus on red spots. Currently on 200 mg pill, 2 times daily. I have to be very careful about sun exposure, as my lips can develop sores very quickly, and heat alone can cause flare ups on my lips So, I use Elta MD UV lip balm, spf 36....it is zinc based (becomes transparent as it's absorbed, so you only have white lips for a while), and a WIDE brim hat. In the winter I use a buff up over my lips, as cold and wind can affect my lips. One must get quarterly blood work while on HCQ, as it can affect kidneys, blood work must look at eGFR and creatinine.

@ladonnai Welcome to MayoClinicConnect Clinic Connect. We’re glad to have you join us especially when you’re so knowledgeable! This is a great group of people! So, welcome!
Btw, how did you find Connect?
P.S. Anschutz is a great hospital, isn’t it?!

Hello, I was diagnosed in 2020 before COVID. I have been seeing a wonderful dermatologist at University of WI. I have been on hydroxychloroquine since diagnosed. It has been very helpful. I too had bleeding gums, ulcers on cheeks and tongue. About 3 years ago we added a drug that is primarily used for psoriasis issues called Ortezla. Fortunately my insurance covered it, very expensive. On both medications I have occasional ulcers on my cheeks. My lower back molar gums are chronically a little sore and fragile. The tip of my tongue always feels like it was burned, annoying but I’m used to it. I can’t tolerate foods with any hot spices or food that is very hot temperature. My cheeks are fragile so if I’m not careful with my diet they can get flared up. Dexamethasone swish or topical steroid ointment helps. I need to avoid too many acidic foods and rough food like tortilla chips. Stress can cause a flare up too. Good luck on your journey. I uses toothpaste called CloSYS it is sulfate free.

I’ve been dealing with erosive OLP for years. I never found a home remedy that helped at all. I have been going to a dermatologist at UAB (Birmingham) for about two years now, and have recently started Acitretin, which can have sone pretty significant side effects, but after 4 months it is the first medicine to ever have calmed the sores in my mouth and on my tongue. One side effect is dry, dry lips. So dry they flake and peel. I have found that using lanolin ointment — the same stuff in the tube that nursing mothers use — helps tremendously with dry lips. This was a huge find for me! OLP sucks. Good luck!