Is anyone using Dupixent for COPD?

Posted by taipan @taipan, Jun 21, 2023

I read this pill is quite effective

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Ah, probably why it hurts when I get the needle inserted whereas I normally don't feel it when I get normal vaccines. Oh well, it's just a momentary discomfort and I think the medication is helping me.

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Lol oh yes we will survive it. 🥰

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Your right! It's a momentary discomfort part of which is anticipating the discomfort. Probable a total of 30 seconds of discomfort.......well worth the benefits one reaps. The medication itself is viscous so the bore of the needle needs to be a little bigger to allow the medication to be injected!

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Just got my Frio cold pack and am using it with a dummy plastic tube about the size of my dupixent and a temperature probe. It’s keeping the inside of the tube below 77, between 72 to now 75 many hours after I started using it. I will soak it to refresh before I go to sleep and check it again in the morning.

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Well, cold pack continues to keep 72-75 which is safely within the tolerance for Dupixent. It mainly resembles a puffy pencil case and should be fine for my current travel needs.

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This is not a pill, it is an injected medication that has a loading dose of 600mg which would be 2 injections, then 1 every two weeks thereafter. the injection is sub-cutaneous, meaning it is just under the skin/fat and not into the muscle.

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I have copd and I am looking for anyone who tried this medication DUPIXENT?

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I have copd and I am looking for anyone who tried this medication DUPIXENT?

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I started Dupixent in October and have taken 6 injections so far. My breathing is better but it's my understanding it can take up to 16 weeks in your system for the maximum benefit. I'm being patient.

I also have eosinophilic esophagitis and I've seen great improvement since starting the Dupixent.

The injections can be uncomfortable but that 30 seconds is worth the benefits to me. I've had no side affects. Everyone is different and reacts differently to medications.

There has been a lot of discussion about Dupixent here. Go to the search bar at the top of the page and type in Dupixent and you'll see other discussions. Those might be of help to you.

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I have copd and I am looking for anyone who tried this medication DUPIXENT?

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The issue in finding data,comments etc on the use of Dupixent for COPD is scarce as it has only been approve for use with COPD patients since late summer. So when reading through the literature etc. you have to look at the information available on the use of the drug with asthma and Type II eosinophilic inflammation. I have COPD at a Stage IV and started on it on 11/23 ....it worked great until 5/24 then the effects begin to wan and I was experiencing terrible increase in congestion almost continually. The Pulmo said to stop it and see if the congestion improved, it did not. I don't know that a simple serology test to see if I had formed antibodies to it may have helped but it was not ordered. At this point, I think that yes it will help COPD patients that have type II inflammation (same as for the asthma). Basically I was a treatment failure with the Dupixent for some unknown no sought after reason. I would encourage you to try.....you lose nothing and have everything to gain. Good Luck

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I have copd and I am looking for anyone who tried this medication DUPIXENT?

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I’ve had 4 injections so far, taken every 2 weeks. You or someone on your behalf has to inject. You can get the epi-pen style or pre-filled syringes. I have the former while a friend prefers the syringes.

For me, it has increased my resting O2 saturation rates from 92-93 up to 95-96, which was remarkable and surprising to me.

Also, a week ago, I was exhausted and on the verge of flaring but just rested for about 24 hours, mostly in my bedroom and fully recovered without needing to reach out to my MD or any medication changes.

Dupixent My Way can give you access to a nurse who can come to your home and train you on how to inject yourself. You can pick the medication up at the specialty pharmacy, any pharmacy you specify or have it delivered to your home. It’s packaged in a small styrofoam cooler with ice packs and needs to be kept refrigerated.

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Well, after a TON of run-around by DupixentMyWay toll-free number, I’ve finally been told they do NOT have any sample Dupixent Pens (like sample Epi-pens), so that we can practice so that we always get the appropriate dose when we administer the Dupixent pen.

They suggested we reach out to our pharmacist and/or MD to get any potential sample pens, or watch the video or read the instructions. I was very disappointed with a that a medicine they charge so much for they can’t provide a sample auto-inject pen, like Epi-Pen always does! They don’t even have to provide one every time, but surely if it is requested, they should be able to make a sample available!

Anyway, I was able to ask an APRN I know and she will give me one of the spares demo pens she has so I can practice and stop pull in the pen off my body too soon and losing some of my dose (I’ve had that problem 3 of 3 attempts so far).

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