Dealing with a Spouse with a “Mild Cognitive Impairment”

Posted by tryingtimes10 @tryingtimes10, Dec 31, 2024

My husband was diagnosed with MCI in 2019. He is pretty independent, just forgetful of time, dates, location of places, anything electronic & events from our life together (we’ve been married 52 years). It’s all just getting to me. I find myself wanting to be alone so I’m not continuously reminded of these changes. Because my friends/family are out of state, working, or involved with their own families, I really have no one to talk to so I’m seeing a therapist twice a week to deal with the sadness, anger, grief I have over his condition. I just wonder if other women find themselves in this position & how they are dealing with it.

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@jeanadair123

I have responded before but I am starting to see a lot more changes. We so far have only seen his GP he suggested a neurologist but we have not seen one yet. My husband knows he is getting forgetful but we have NEVER discussed dementia or MCL. I realize tonight when the TV was on that he couldn’t read some of the word correctly. Help, where do I go from here? How does one take their partner to a doctor to be evaluated when my husband seems to think he is fine. We are fine as long as I say okay and basically agree with everything he says. I am grateful he still showers his self and dresses himself and does his chores everyday. But sometime during the day I will say something wrong and things get really testy for want of a better word.
What direction should I take now? I have been trying to deal with this on my own? Thanks so much for any suggestions?

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I would suggest you get linked with a neurologist ASAP, if possible one that specializes in geriatrics. Your husband’s PCP should be able to do this for you. The neurologist will likely order a brain scan & send him to a neuropsychologist for testing. That is the only way you will get answers & a treatment plan.

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@mtdt757

I can relate to your situation. My soulmate/husband of 48 years (he is 70) has started showing signs of mild cognitive issues.
Family history has prepared me for this. His father had Alzheimer's. His brother passed away from Lewy body dementia 10 years ago. He was only 67. I applied to a clinical trial, and he was accepted for an initial interview. Was uncomfortable with the amount of time and lack of results. Actually, my husband felt like he was going to be a Lab Rat.
I pursued options with his PC, and he is currently going thru tests with an awesome Neurologist.
My biggest issue is trying to keep my patience under control after the 5th or 6th conversation we just had in the last hour.. about a certain conversation he brought up. I keep repeating the Serenity Prayer

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Thank you for sharing. I’m so glad to hear he is seeing a neurologist you both like. If you aren’t seeing a therapist for yourself, I would encourage you to consider it. I found having someone that was not a friend or family to talk to about my feelings, helpful.

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@jeanadair123

Can I ask who suggested the therapists for you? Was there a specialist type of therapist? I need this also. I can’t believe your words cou,d have been written about me. Thanks jean

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I was beside myself, not in a good place mentally, & having problems coping. I knew I needed a therapist to talk to. My Primary Care Drs. office sent me a list but I could not find anyone on that list who I wanted to see that would accept my coverage. I went to the Psychology Today site & found a counselor there. You might try there. I had to call a number of places to find someone who was accepting new patients & accepted my insurance. Fortunately I like the counselor I am seeing. Know too, you always have the option of seeing someone else if you happen to get linked with a counselor you don’t feel is helpful. You might start by asking your primary care if they have anyone they recommend. If not, try Psychology Today.com wishing you the best.

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@tryingtimes10

Thank you for sharing. I’m so glad to hear he is seeing a neurologist you both like. If you aren’t seeing a therapist for yourself, I would encourage you to consider it. I found having someone that was not a friend or family to talk to about my feelings, helpful.

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I totally agree not sharing my concerns with family. Unfortunately family doesn't understand the daily issues. They only see my husband on holidays..

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Yeah, it’s a fine line knowing what to say. There are so many variables & dynamics involved in family relationships. There are some friends & family members I have not yet said anything to. The ones closest to us, I try to keep up to date without burdening them with my concerns. If you have kids, my own personal opinion is that they need to know. Again, I think that is where therapists can help & why I encourage everyone on this journey to get linked with one.

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@tryingtimes10

Thank you for sharing. I’m so glad to hear he is seeing a neurologist you both like. If you aren’t seeing a therapist for yourself, I would encourage you to consider it. I found having someone that was not a friend or family to talk to about my feelings, helpful.

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I believe in exercise and diet also for the both of us. I belong to our Rec Center
Love the aquatic kick boxing class..swimming
Hot tub and sauna. It's been my therapy

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@tryingtimes10

Thank you for sharing. I’m so glad to hear he is seeing a neurologist you both like. If you aren’t seeing a therapist for yourself, I would encourage you to consider it. I found having someone that was not a friend or family to talk to about my feelings, helpful.

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Thank you,

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@mtdt757

Hugs.. My husband realizes his memory issues. He still drives(loves google maps) . He functions on a daily basis. It the memory that frustrates him. Never say (don't you remember)
He appreciates the fact that I am navigating the doctor and neurologist appointments.
Hopefully you can get with a good doctor

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Thank you for that exact sentence: “Never say (don’t you remember”

It is SO hard.

We are not at the stage where many in this group are…my husband still drives to familiar places, and helps with dinner clean up, shovels the sidewalk etc. But he talks to me all day long! Now that I am trying to learn how to do our finances (he’s always done them) sometimes I’m in the middle of something my brain struggles with when he asks the question yet a 4th time in a ten minute span. I need to remember to think a few seconds before I reply. And thank you to mtdt757 (above) for reminding me of the Serenity prayer. It has always been a favorite of mine. I need it now more than ever. He used to pick on me for stuff so the “don’t you remember?” Part sometimes just slips out of my mouth like the gentle sarcasm joking we used to do with each other. The changes are so subtle that sometimes I forget he is changing from the person I’ve been married to for 51 years.

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@2me

Thank you for that exact sentence: “Never say (don’t you remember”

It is SO hard.

We are not at the stage where many in this group are…my husband still drives to familiar places, and helps with dinner clean up, shovels the sidewalk etc. But he talks to me all day long! Now that I am trying to learn how to do our finances (he’s always done them) sometimes I’m in the middle of something my brain struggles with when he asks the question yet a 4th time in a ten minute span. I need to remember to think a few seconds before I reply. And thank you to mtdt757 (above) for reminding me of the Serenity prayer. It has always been a favorite of mine. I need it now more than ever. He used to pick on me for stuff so the “don’t you remember?” Part sometimes just slips out of my mouth like the gentle sarcasm joking we used to do with each other. The changes are so subtle that sometimes I forget he is changing from the person I’ve been married to for 51 years.

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I need to add I know I should be grateful he talks to me so much…one day that will not happen, and I do realize it. He has no hobbies. We will join the Senior Center but I doubt he will go without me. I have always needed a little “alone” time…but need to kick myself in the big-girl pants and realize that isn’t going to happen much anymore. Done venting, and thank you. I know “guilt” is not good, but….

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My best friend's husband died three years ago. She used to get so mad at him because he wouldn't talk. Now she understands why but at the time she was very frustrated as she's a big talker herself. My husband interrupts me all the time and tells me things I've heard a million times and I get very frustrated. I wish he'd just be quiet. We don't get to pick and choose, I guess. But don't feel guilty. Everyone going through something like this will have plenty to feel guilty about. It's the situation, it's not us. We're just normal people trying to cope with a very unnatural problem. My husband has no friends, no kids, a brother across the country, and he wears the same clothes everyday and hasn't cut his beard in months. He looks like Rip Van Winkle. But he's gregarious and talks to everyone and anyone he runs into, especially at his favorite coffee shop. He wore out his welcome at his beloved Science Center. I just hope the coffee shop people will tolerate him for a long time. Without that I don't know what either of us would do. Feel what you feel and don't apologize. No one is judging you here.

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