Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Anyone want to talk about Raynaud's Syndrome? My daughter has a severe case of it. I would like to start a support group here on Connect to find others, share our stories, treatments and managing daily life.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

@lynn0948

I have just recently started symptoms of Raynaud's. So far only in my fingers. They go white and numb. I have had Sjogren's Syndrome for 28 years then, developed neuropathy in 2004 and now have been diagnosed with LUPUS and RA. I am not sure but, I think the Raynaud's corresponds with the RA. There is nothing I do for the condition. I just wait for it to pass. The fingers usually go back to normal within a few minutes. It is very annoying.

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I've had Raynauds for 40 years. Started in Alaska i think with frost bite. Left hand. Temp goes below 60 degrees inside or out and my fingers turn white, then blue. Generally I ignore it. Sometimes I'll put a glove on. It resolves in less than 2 minutes. My Doc noticed it years ago and shrugged.
I was just diagnosed with reactive arthritis from salmonella poisoning. Hasn't seemed to affect Raynauds one way or the other.

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@lynn0948

I have just recently started symptoms of Raynaud's. So far only in my fingers. They go white and numb. I have had Sjogren's Syndrome for 28 years then, developed neuropathy in 2004 and now have been diagnosed with LUPUS and RA. I am not sure but, I think the Raynaud's corresponds with the RA. There is nothing I do for the condition. I just wait for it to pass. The fingers usually go back to normal within a few minutes. It is very annoying.

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@lynn0948 Welcome to Mayo Clinic Connect! This group is really great and will work with you to solve any problems that come up.

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Hi There,
My figure has been partially numb for over a week due to expose to cold and it doesn't seems to be going, could it be Raynaud's?
My concern is my daily work get my fingers to be exposed to the cold weather. I change work and this is my first experience with the cold weather.

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Hi There,
My figure has been partially numb for over a week due to exposure to cold and it's not going could it be Raynaud's?
Unfortunately, my current work exposes my fingers to the cold weather, I have darker skin so I can't see the changes in the colour of my fingers as one of the symptoms. I changed work recently and this is my first experience with the cold weather.
Can Raynaud last that long if my finger numbness is due to Raynaud?

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@colleenyoung

Thanks for getting this discussion group dedicated to Raynaud's Syndrome started, @windwalker.

I'd like to invite @thomasesmom @lila25 @lauren123 @bswtwa @poppy73 @denia @olga1dubrovsky2_babies and @kdubois to join the group. Why not start by introducing yourself. Do you have primary or secondary Raynaud's? How do you help prevent an attack? What do you do to manage it?

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Where does the United States rank in healthcare?

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@myallslodge

Hi There,
My figure has been partially numb for over a week due to expose to cold and it doesn't seems to be going, could it be Raynaud's?
My concern is my daily work get my fingers to be exposed to the cold weather. I change work and this is my first experience with the cold weather.

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Please protect your fingers. Amazon sells heated gloves for Reynaud's syndrome. When you see red, then white, then blue, it means that blood flow is being restricted to your capillaries. It can be painful when your hands warm up again.

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I've had Raynauds for years. It affects both my hands and feet. I'm super careful to keep them all warm. Like, today, high will only be 21° here. I own several pairs of gloves in several thickness. I also keep a thin pair indoors by my chair. The rest of my body can be warm in the evenings while relaxing (tv, reading), but my hands will be cold. Also use my heating pad when need to.

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@julieblanford

I've had Raynauds for years. It affects both my hands and feet. I'm super careful to keep them all warm. Like, today, high will only be 21° here. I own several pairs of gloves in several thickness. I also keep a thin pair indoors by my chair. The rest of my body can be warm in the evenings while relaxing (tv, reading), but my hands will be cold. Also use my heating pad when need to.

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My wife has had cold hands and feet for several years. Yes, several pairs of gloves and in winter warm boots when being outdoors for longer time.

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Everyone here must understand that their are two types of Raynauds. Raynauds Phenomenon is when you have an autoimmune condition that is responsible for the swelling, color changes, pain and circulation problems. I have had this (secondary condition) for over 40 years. There is no cure, cause is unknown but it can be managed with medication, warmth, diet and exercise.

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Hi! I'm new here. I have Raynaud's secondary to Sjogren's syndrome. It has evolved over the years, but it pretty much affects every area Raynaud's usually strikes. The worst is my feet in the winter. Once they're cold there's no warming them up. The past few years I started getting chiblains, which really scared me because I thought my circulation was getting worse (and the little blisters hurt), but it turns out I was just heating my skin too quick by using a heating pad. Now I warm them slowly and don't get chiblains anymore. It was frustrating when my cardiologist put me on a beta blocker for tachycardia, then my Rheumatologist told me that's the worst drug for Raynaud's. I also have ADHD and need Adderall to function, which is also not recommended with Raynaud's. It's a losing battle. I have also found even small amounts of alcohol exacerbate facial flushing and the burning sensation, so I avoid it altogether.

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