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Erosive Osteoarthritis
I have been trying to get answers for many years to find out why my OA in my hands is so painful and debilitating. It doesn't look as bad to the eye as many other people I have met that also have OA but have huge joint nodes but say it's not too painful. I had the traditional basal thumb surgery on left and right hands,left went well 10yrs ago but right which I had one yr later has never been pain free.. About 6 mths ago the pain in the back of my right wrist became so much worse at the same time a large lump appeared.I thought this was probably a Ganglion then a few weeks later a softer round lump appeared on the dip joint on the inside of my right little finger which as made the joint very swollen. Eventually got Xrays of both hands which have now been diagnosed as Erosive Osteoarthritis which I have never heard of. Prognosis doesn't look good with this type of OA. Has anyone else been diagnosed with this and do I ask to be referred to a Rheumatologist ? How do I deal with this ? Is there any meds I can take for pain and to slow down the progression ? Thank you
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Anything over 20 mg of boron can be toxic and cause issues.
something that I have found that helps with the pain is a little off the shelf, but before I knew even knew what I had my hands were hurting, and I went to my acupuncturist he was able to keep them from hurting so bad I still have the nodules I still have the disease, but I don’t have a lot of pain now he cautioned me to say that this might not work for everybody and I can’t even figure out how bad mine is or how far along it is all of you may have really much worse symptoms than I do, but if you believe in Acupunture, you might give it a try.
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2 ReactionsThanks very much. I haven't tried acupuncture but it certainly sounds like it works great for a lot of people. Something to keep in mind as I have OA in every joint. I've had my big toes fused, both knees replaced, have a hip replacement coming in January and will eventually need a shoulder replacement. Anything I can do to put those off is appreciated.
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1 ReactionI can’t find anyone, including my rheumatologist, that knows anything about this. Anybody out there have this, and have any information about how bad it is how fast it is how debilitating it is? If you do, please let me know. I’m just feel like I’m hanging here in outer space with no foundation. I have no idea what I can do and what I can’t do what makes it worse if anything and I know it’s incurable and there’s nothing I can do. I just don’t wanna make it worse.
@disparks, this is the only best thing I've heard about Prolia. https://www.nature.com/articles/s41591-024-02822-0
Thank you for this info
Hello @dlsparks, I moved your most recent post about erosive osteoarthritis to an existing discussion where you met other members discussing this diagnosis:
"Erosive Osteoarthritis"
- https://connect.mayoclinic.org/discussion/erosive-osteoarthritis/
@chris7121 , @parrotqueen, @heyjoe415, @mememc52 and @ljbrindle are a few members who have posted in this discussion and may have some more insight to offer.
@dlsparks, if you are comfortable sharing, have you been officially diagnosed with this type of osteoarthritis, but your current provider has no more insight to offer?
Exactly.
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1 ReactionTry chart cherry capsules. I got the tip from somebody at the Mayo Clinic online for him here. It was a complete miracle for my 30 years of osteoarthritis. The doctors were all lazy. I’m loaded with OA so they just said go home and exercise. You can’t exercise with all that pain although I did it anyway. Turns out it wasn’t the OA that was giving me the pain. It was the gouts arthritis. So after I did the Art cherry capsules for a few months, I asked the doctor to put me on the allopurinol which she didn’t want to do because she felt my symptoms were being controlled enough on the tart cherry capsules. However, she didn’t really know what that meant, and my uric acid levels were still Not normal. So she finally agreed to put me on the allopurinol and I’ve been very very very, very happy it cured a whole lot of other things and so it seems like my inflammatory reaction that I’ve been complaining about for 30 years was due to Gowdy arthritis not OA, and not RA.
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1 ReactionI have erosion osteo-arthritis, it's rare, not understood by medical and non-medical people. It is in my left femur, makes standing and walking difficult. I try my best to eat foods recommened for arthritis, try to avoid sugar but it is difficult. Gels, rubs help. Salonpas, Voltarian, pain relief drugs have been helpful. Some Teas are calming. Yes, hanging there is a good description, that's what I do.