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Burning Mouth Syndrome. I have it very severe.

Posted by mygrigio @mygrigio, Aug 5, 2011

I am a 76 year old women and have had this condition for almost a year. it is getting worse everyday. been to many doctors and not one of them has heard otf it, I am getting desperate

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carolgail1949 | @carolgail1949 | Dec 7, 2024
In reply to @joybringer1 "@carolgail1949, The drug is Clonazepam, .05 mg. I take one twice a day, one with lunch..." + (show)
@joybringer1

@carolgail1949, The drug is Clonazepam, .05 mg. I take one twice a day, one with lunch and one with dinner. We were talking about BMS. With all good wishes, @joybringer1

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Thank you! I tried a swish but I’ll now try the pills. I’

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sparta71 | @sparta71 | Dec 28, 2024

Hi, everyone. I am a male at the age of 71, had burning tongue for 2 and half years starting with a metal taste in mouth, It has been horrible to go through not knowing how it started and if my tongue will ever heal. During those years I lost taste. Now I can taste a little. I went everywhere to find a cure or something that will quiet the nerves. This has created a social isolation problem because going out means you are always around food so I don't eat outside anymore. Depression has set in during any celebration. I am on a very bland diet, drinking water, meditating, and making sure I don't eat tomato sauces, citrus, and many other restaurant foods. I am now looking into acupuncture and waiting for someone to find a cure for this ailment. Some doctors think it was a variant of Covid that started this because other than this I am very healthy. I have been diagnosed with dyseugia.

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sparta71 | @sparta71 | Dec 28, 2024
In reply to @destinnana "Can anyone add anything that helps to calm burning mouth syndrome down? It feels like my..." + (show)
@destinnana

Can anyone add anything that helps to calm burning mouth syndrome down? It feels like my mouth and throat are on fire . It wears me down.

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I was lucky to have a daughter who is a nurse. She gave me a solution that numbs the tongue for about 30 minutes. It is Lidocaine. It is like a gell that coats your tongue when it is stinging, The stinging or burning has changed my life. I can see why people that have this become socially isolated, then become depresssed, and then they need cognitive therapy. Every time you go somewhere there is always food and drink. I find that this sometimes sets off the burning. I can only hope that they come up with a cure in 2025. I have gone everywhere and the doctors just don't know how to treat this. Hope this helps.

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sparta71 | @sparta71 | Dec 28, 2024
In reply to @dustycat52 "I’ve had BMS for over 17 years. Over time it has lessened because I’ve learned to..." + (show)
@dustycat52

I’ve had BMS for over 17 years. Over time it has lessened because I’ve learned to deal with it. But there are days when it’s so bad that I feel like hitting my head against the wall. There are a couple of good groups on Facebook that give a lot of help and suggestions.

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I am at 2 and half years going on 3 and I know exactly what you mean. Where are these groups on Facebook. I am also learning how to deal with it. Do you know how you got this? Are you taking anything that helps you with the burn?

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sparta71 | @sparta71 | Dec 28, 2024
In reply to @delia74 "I suffered from burning tongue, and not one doctor took me seriously. Did some research and..." + (show)
@delia74

I suffered from burning tongue, and not one doctor took me seriously. Did some research and learned that the blasted medication prescribed by the then-neurologist was behind my suffering. Burning tongue and totally dry mouth. Was so difficult to deal with since I was a language teacher in a high school setting, teaching 6 classes per day. Had to have bottled water placed in various areas of my classroom (I did not stand still while I taught, since I enjoyed interacting with the students). Became intensely bad until I insisted that I would no longer take certain medications, went to another neurologist who crated a tapering schedule for me. Still had periodic episodes of burning tongue but so much milder. Hurt nonetheless. Chips of ice was/is so soothing. Used to chew gum but that created issues with my partial so used non-methylated cough drops/lozenges instead. Over time, the condition ameliorated, and presently I experience it mostly when not sufficiently hydrated. I also learned within the past few months that there is a connection with burning mouth syndrome and a lack of certain essential vitamins, I believe it's the B family. I've been on B12 injections monthly (prescribed by a neurologist who was consulted due to my having so many neurological problems), for nearly 9 yrs now. I gather that those injections contributed to my having obtained relief from my painful symptoms.

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Thank you for the info.

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