Fibromyalgia pain: Let's connect

The answer may be, Daaa? My muscles (thigh, calf) have burning pain and weakness when I walk for more than a minute or so. I"ve been checked for PAD, no problem. Spine does not have significant stenosis. Are these symptoms part of fiber?

@parus Good question! I had my first dose 2 weeks ago, and go back this coming Sunday for the 2nd dose, using Pfizer. Frankly, anymore, I am having trouble figuring what may be a flareup, and what may be the myriad of things going on with me. Fibro is the least of my concerns, honestly. Some days are good, some okay, some just rotten.

I'll watch what happens this weekend.
Ginger

Hank, Yes it is Fibromyalgia! I see it refered to with those letters. I appreciate the link to the discussion. After three days of looking I have finally found someone who is farmiliar with both Lyme and Fibromyalgia in ABQ. Talked to her briefley this morning, Saturday! She knows our medical system I am on! She also asked me about possibly Mold Exposure! Which I have thought about before but never found how to get tested! She and I are going to have a conultation visit next Thursday!
Will keep you posted!
From The Land of Enchantment!
Sundance(RB)
PS, Again, You are such a helpful and considerate person to have on MayoConect!

Elavil is no longer on the market and Amitriptyline is and since it is an old drug, it’s way cheaper. I was just prescribed this but uneasy about taking it because I have tried so many other stuff that did nothing but make me worse. Norco, not an option in Florida due to the opioid epidemic and that was the only thing that gave me a better quality of life. CBD, lyrics, cymbalta, and about 20 other anti depressants,muscle relaxer,etc did nothing. My depression and pain is at the worst now and mood shifts and triggers that cause me to become so angry that they can be explosive. Doctor said he wanted me to take these to help my pain,depression and insomnia etc. I am tired of meds and already take lunesta to sleep but pain prevents quality of what sleep I do get. Virus makes things harder because what if I have a reaction and there is no help then what. I pray for God to tell me what to do. It might be be the one that works but then again I did try it in 2017 and I felt like I had a hangover the next day and felt crappy. Then again the multiple doctors had me on so many different drugs, I don’t know if it was that or combination of the hundreds of things going wrong in my body that was dismissed and every time I saw someone I was told to take this or that drug instead of getting to the root issues. Curious if anyone with fibro, ptsd, depression, nerve damage, spinal stenosis,peripheral nerve damage etc had good results. Thx

Hi @parus

I had my first vaccination for COVID in mid-January and will be getting my second one tomorrow. I did have fatigue and muscle/joint pain for a few days. I will be interested in hearing about your experience as well.

@hopeful33250 Unknown at this time as to side effects. Back in 4 weeks.
I had my little guy for a while on Sunday-so delightful and refreshing. Dad had time to visit too after completing errands. I so enjoy the imagination at this age. We soar together! This week we were hunting Big Foot. I stay in my camper (the kitchen) where Big Foot cannot get to me. Think you get the picture. Still chuckling from the imaginary hunt.

@sundance6 You mentioned Lyme disease. I know I mentioned somewhere in the connect community a while back that I had Lyme disease in 1983 and when my immune system is compromised the Lyme rears its head with the burning in my legs that is inconsolable until my immune system straightens back around. This disease lingers in the system-at least it has in mine.

In my research the bacteria for Lyme never leaves your system! I was stricken with it 2 1/2 years ago! Very few days go by when I don't have some kind of symptoms. I've been working with a Dr. Rawls in NC using various herbs. It takes a bit for them to kick in, but I have noticed a change after a month.
Also researching Lyme I have found Body Work is a wonderful help!
Right now I am working with a Lady who does "The Trager Approach"! Works gently with your joints and muscles! It's helped me both physically and mentally!
Cost is very reasonable, $100 for 90 minutes here! Could be something different elsewhere. The technique is about 70 years old.
If not Trager I would suggest some kind of body work. There are plenty of very good licensed therapist !
From The Land of Enchantment !
Sundance(RB)

@sundance6 I looked for Trager approach practitioners near me, but the closest one is 100 miles away. Definitely not doable. Besides my fibro which is kicking up [waether changes this time of year have a lot to do with it], I have a yet-to-be-determined issue in left hip area. Could be pinched nerve, could be arthritis related, could be multiple myeloma related. I have used self-administered deep tissue massage with my knuckles, to hopefully break my pain cycle. Sleep is fairly elusive right now.

@parus How wonderful to see your grandson and son this past weekend. Around here there are honest-to-goodness BigFoot hunts, and local lore speaks of sightings of creatures undefinable by common words.
Ginger.

Ginger may I ask you what area of the country you are in? I'm located in New Mexico. I would be happy to ask my Trager practionaire if she may have a list!
It is amazing how it helps the pains and symptoms we have from Fibro/Lyme!
It not only helps the body but the mind! If it makes sense that your body appreciates the kindness that you give it!
Sundance(RB)