Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

@lioness

@lacy2 Glad you found your notes on tapping I too have a bi der full of tapping notes I,LL see if I have anything but you could go on and ask Nick on the tapping website I'll post if I find anything

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.THANK YOU 🌺

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@lacy2 I don't have anything in my notes about dentist or allergy Sorry but as I said do some research in the tapping site .I also am having Dental issues but can take the inj to have teeth pulled .Why don't you just come up with your issue tap on karate chop and go from there Fear tapping Tap on allergy ? If I can make contact with them I will also there is tapping for others also .

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@lacy2 I couldn't find anything for dental I sent an email to Nick hopefully I,LL get a response next week Tuesday I start with Dentist for my journey

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@lioness

@lacy2 I couldn't find anything for dental I sent an email to Nick hopefully I,LL get a response next week Tuesday I start with Dentist for my journey

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Hi @lioness I have spent many hours researching different numbing agents dentists use , pages and pages, and read a few case studies etc that were easy for average person to read... there seems nothing that could be used to "freeze" my gum to have tooth out - molar - which is sore and I think I am going to have to tell dentist/oral surgeon what my issues are, get the tooth out, and deal with side effects. My nerves are bad enough right now and been on bed last few weeks... I am not :scared" of dentists, just think that this internal tremors on top of not-bad-as-some neuropathy is connected to the lidocaine, epinephrine and other "stuff" have been given over the months: but would have to go to larger municipality to have skin tests done which I cant do and dont have time to wait as dont want to get infection in tooth as all antibiotics make my fecal incontinence worse and i dont want to get c.diff again. I am not only between a rock and a hard place; the rock is getting heavier. I really appreciate your help.. even if they "put me to sleep" I could have reaction to what they use... I am scared stiff. 👵🏻

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@lacy2

Hi @lioness I have spent many hours researching different numbing agents dentists use , pages and pages, and read a few case studies etc that were easy for average person to read... there seems nothing that could be used to "freeze" my gum to have tooth out - molar - which is sore and I think I am going to have to tell dentist/oral surgeon what my issues are, get the tooth out, and deal with side effects. My nerves are bad enough right now and been on bed last few weeks... I am not :scared" of dentists, just think that this internal tremors on top of not-bad-as-some neuropathy is connected to the lidocaine, epinephrine and other "stuff" have been given over the months: but would have to go to larger municipality to have skin tests done which I cant do and dont have time to wait as dont want to get infection in tooth as all antibiotics make my fecal incontinence worse and i dont want to get c.diff again. I am not only between a rock and a hard place; the rock is getting heavier. I really appreciate your help.. even if they "put me to sleep" I could have reaction to what they use... I am scared stiff. 👵🏻

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@lacy2 I'm so sorry to hear this May I make a suggestion but talk with your Dentist about taking pain medicine before you get this tooth extracted.The Dentist may have some good suggestions about this and a substitute analgesic for you .Take a nerve pill to calm you down. TAPPING ON YOUR FEAR does help may take several times and do just before Dental appt .When is your appointment? I see mine next Tuesday.I think mine are infected right now will call him Monday to see what I can do or if I need antibiotics right now .Email me anytime I care

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@lioness

@lacy2 I'm so sorry to hear this May I make a suggestion but talk with your Dentist about taking pain medicine before you get this tooth extracted.The Dentist may have some good suggestions about this and a substitute analgesic for you .Take a nerve pill to calm you down. TAPPING ON YOUR FEAR does help may take several times and do just before Dental appt .When is your appointment? I see mine next Tuesday.I think mine are infected right now will call him Monday to see what I can do or if I need antibiotics right now .Email me anytime I care

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@lioness Thank you. I was supposed to have 2nd molar out last Tuesday, but the week before I had a flashback to Sept.27 when had stitch in hand etc. at emerge and woke up shaking head to toe; since restarting dental work over the past months (my previous long time dentist became ill and passed away so teeth neglected); I had multiple fillings and one extraction Dec. 28. So I wondered if the numbing medication dentist used has changed my neuropathy (which I could overcome without meds) to this shaking inside and increased pain.
So I called hospital and it was epinepherine-laced lidocaine; and : tooth out end of December , liocaine; and the 4 separate appointments, fillings: Arnacaine.... I have no idea IF these ....caine medications exasperated my neuropathy but from reading have to be careful also if patient has thyroid problems, i have hypothyrid: if they have P.N, if they are on Clonazepam.

For all I know the dental meds have nothing to do with internal tremors etci BUT maybe they do... so research comes up with : everything they use can cause problems - surprise, surprise. So tomorrow I am phoning the Oral Surgeon and of course made mistake of checking that out and it could be even worse side effects (yes, I have Generalized Anxiety). Talk abut: a little learning is a dangerous thing!

Decision made (I think) is to put myself in their hands and whatever happens, happens, I cant go around with a sore tooth that MIGHT require antibiotic, would rather it out asap; been there done that ten years ago and allergic to Ampicillin etc. from dentist.

HOnestly, listing all these things (plus my other list) makes me feel I should join Whiners Anonymous.. but as far as I know, I didn't knowingly cause any of my illnesses, and so appreciate being able to discuss on here without being told to :
suck it up, buttercup" - which has been said to me by those who aren't ill !! Hope you and all have a good rest of the weekend. J.

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@lacy2

@lioness Thank you. I was supposed to have 2nd molar out last Tuesday, but the week before I had a flashback to Sept.27 when had stitch in hand etc. at emerge and woke up shaking head to toe; since restarting dental work over the past months (my previous long time dentist became ill and passed away so teeth neglected); I had multiple fillings and one extraction Dec. 28. So I wondered if the numbing medication dentist used has changed my neuropathy (which I could overcome without meds) to this shaking inside and increased pain.
So I called hospital and it was epinepherine-laced lidocaine; and : tooth out end of December , liocaine; and the 4 separate appointments, fillings: Arnacaine.... I have no idea IF these ....caine medications exasperated my neuropathy but from reading have to be careful also if patient has thyroid problems, i have hypothyrid: if they have P.N, if they are on Clonazepam.

For all I know the dental meds have nothing to do with internal tremors etci BUT maybe they do... so research comes up with : everything they use can cause problems - surprise, surprise. So tomorrow I am phoning the Oral Surgeon and of course made mistake of checking that out and it could be even worse side effects (yes, I have Generalized Anxiety). Talk abut: a little learning is a dangerous thing!

Decision made (I think) is to put myself in their hands and whatever happens, happens, I cant go around with a sore tooth that MIGHT require antibiotic, would rather it out asap; been there done that ten years ago and allergic to Ampicillin etc. from dentist.

HOnestly, listing all these things (plus my other list) makes me feel I should join Whiners Anonymous.. but as far as I know, I didn't knowingly cause any of my illnesses, and so appreciate being able to discuss on here without being told to :
suck it up, buttercup" - which has been said to me by those who aren't ill !! Hope you and all have a good rest of the weekend. J.

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@lacy2 I like your post and sounds like you are in a better place now Roosevelt said The only thing you have to fear is fear itself .I like this quote We can overcome fear just make up your mind to let it go .Glad your calling Dr tomorrow ,same here. Let me know how things go

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@lacy2

@lioness Thank you. I was supposed to have 2nd molar out last Tuesday, but the week before I had a flashback to Sept.27 when had stitch in hand etc. at emerge and woke up shaking head to toe; since restarting dental work over the past months (my previous long time dentist became ill and passed away so teeth neglected); I had multiple fillings and one extraction Dec. 28. So I wondered if the numbing medication dentist used has changed my neuropathy (which I could overcome without meds) to this shaking inside and increased pain.
So I called hospital and it was epinepherine-laced lidocaine; and : tooth out end of December , liocaine; and the 4 separate appointments, fillings: Arnacaine.... I have no idea IF these ....caine medications exasperated my neuropathy but from reading have to be careful also if patient has thyroid problems, i have hypothyrid: if they have P.N, if they are on Clonazepam.

For all I know the dental meds have nothing to do with internal tremors etci BUT maybe they do... so research comes up with : everything they use can cause problems - surprise, surprise. So tomorrow I am phoning the Oral Surgeon and of course made mistake of checking that out and it could be even worse side effects (yes, I have Generalized Anxiety). Talk abut: a little learning is a dangerous thing!

Decision made (I think) is to put myself in their hands and whatever happens, happens, I cant go around with a sore tooth that MIGHT require antibiotic, would rather it out asap; been there done that ten years ago and allergic to Ampicillin etc. from dentist.

HOnestly, listing all these things (plus my other list) makes me feel I should join Whiners Anonymous.. but as far as I know, I didn't knowingly cause any of my illnesses, and so appreciate being able to discuss on here without being told to :
suck it up, buttercup" - which has been said to me by those who aren't ill !! Hope you and all have a good rest of the weekend. J.

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Hi and I’ve read a few of the posts and you’re not alone as others of us can relate. The “...caine” meds always gave me instant heart racing until it wore off and that was before I had any health related issues (now I have a huge list too from car accident injuries/TBI). Internal tremors are on my radar because I think that’s what’s started up in my body and I’m not sure what can be done. I spoke to my new family medicine doctor but she had no input other than adding “shaking” to my long list of diagnosis’s. I have a lot of specialist doctors but not sure which ones deal with this or what to do about it. You mentioned tremors and I’m new to having them so thought I’d write. I hope your upcoming appointments go ok!!

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@rachel6

Hi and I’ve read a few of the posts and you’re not alone as others of us can relate. The “...caine” meds always gave me instant heart racing until it wore off and that was before I had any health related issues (now I have a huge list too from car accident injuries/TBI). Internal tremors are on my radar because I think that’s what’s started up in my body and I’m not sure what can be done. I spoke to my new family medicine doctor but she had no input other than adding “shaking” to my long list of diagnosis’s. I have a lot of specialist doctors but not sure which ones deal with this or what to do about it. You mentioned tremors and I’m new to having them so thought I’d write. I hope your upcoming appointments go ok!!

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@rachel6 Thank you. I would have thought to myself that internal shaking would be the least of my list of problems.. its not painful . but its because its on top of other things , and I suppose I am thinking if I can find out what caused them, can avoid in future, especially if they get worse.
Although at 77 my brain is not working as it did, I am suddenly "realizing" things out of the blue; such as --- why over the years since i was 15 and had my first tooth filling did I never even ask : what is in the syringe???? So even up until as recent as Dec.27th I still didnt ask ! We or I research medications - oral, but I never thought to find out what dentists and anaesthetists use (and what quantities (and additives like epinephrine which I discovered is to help stop bleeding and lengthens the time the ....caines are effective). ... who knew? Not me! Wonder how many people go to doctors because of medical condition from a visit to the dentist or surgeon (e.g. mole removal) forgetting that meds used then could cause physical (and mental) problems!! It never ends!

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@lacy2

@rachel6 Thank you. I would have thought to myself that internal shaking would be the least of my list of problems.. its not painful . but its because its on top of other things , and I suppose I am thinking if I can find out what caused them, can avoid in future, especially if they get worse.
Although at 77 my brain is not working as it did, I am suddenly "realizing" things out of the blue; such as --- why over the years since i was 15 and had my first tooth filling did I never even ask : what is in the syringe???? So even up until as recent as Dec.27th I still didnt ask ! We or I research medications - oral, but I never thought to find out what dentists and anaesthetists use (and what quantities (and additives like epinephrine which I discovered is to help stop bleeding and lengthens the time the ....caines are effective). ... who knew? Not me! Wonder how many people go to doctors because of medical condition from a visit to the dentist or surgeon (e.g. mole removal) forgetting that meds used then could cause physical (and mental) problems!! It never ends!

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Exactly! Every symptom is heightened because there’s so many layers of symptoms going on at once. ReSEARCHing is good. I’ve learned so much from people in these groups which have led me to get properly diagnosed for some issues. Keep us posted on how things go. You sound smart & sweet.

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