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Moderator

Pancreatic Cancer Group: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, Dec 3, 2019

Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Pull up a chair. Let's start with introductions.

When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

Moderator
Colleen Young, Connect Director | @colleenyoung | 1 day ago
In reply to @suelannon "Thanks for your response. We started out at University of Penn in Phila. After we were..." + (show)
@suelannon

Thanks for your response. We started out at University of Penn in Phila. After we were told that they didn't think this was Cancer, we went to a Surgeon at Jefferson in Phila. so I feel like we are dealing with very reputable hospitals. Pre-Surgery his Ca19-9 results were as follows :
April 2024 639
June 2024 1720
Early July 2024 1886 ( All of this and we were still told they did not think it was Cancer )

July 2024 1887 ( This is when we went to Jefferson , Pre-surgery )
July 19,2024 403 ( Post Surgery - Unfortunately, they did not get clean Margins but did not know this until after the Pathology Report came back )

September 2024 632
October 2024 859

He has had no treatment at all due to the Drain.

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@suelannon, what treatment is being recommended for your husband next?

REPLY
kickcancer49 | @kickcancer49 | 9 hours ago
In reply to @mnewland99 "Sorry to hear about your diagnosis, but happy to hear that you are diagnosed early. Does..." + (show)
@mnewland99

Sorry to hear about your diagnosis, but happy to hear that you are diagnosed early. Does your oncologist suggest surgery in the future for you?
Which chemo treatment are you on? For most of them you can expect nausea for which there are good antinausea drugs out there like Zofran. You can also expect a bit of constipation or the runs or a combination of both, but their effects may be mild as in my case.

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Hi Marie! I was told to get Prochlorperazine for the nausea. I am going to have surgery after chemo. I believe I only have 5 more treatments to go! I just hope I don’t have too many side effects!

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