Pancreatic Cancer Group: Introduce yourself and connect with others

Hello
All my treatment was at Mayo on Rochester, they are excellent in personal care and the Doctors are outstanding.
I had 9 rounds of aggressive chemotherapy before surgery and 3 after.
I’ll have to check concerning mutations
Thank you

@1954now
From what I’ve read, you were able to receive care from one of the best facilities around! I wish you continued good care. My husband and I are always surprised that we really don’t have facilities on the west coast that offer the same level of care. I guess the best drs aren’t really concerned with getting that warm, sunny weather that California has to offer as he thought! Hoping that all changes once City of Hope finishes building their hospital next year that received a huge endowment for pancreatic research.

Hello. I am caregiver for my husband who was diagnosed with pancreatic cancer in Feb. 2023. He had both chemotherapy and a Whipple Procedure. He is doing pretty well and blood tests and CT scans show no signs of cancer. He’s on enzyme therapy. But we still have concerns with his digestion.

Hello All...yesterday, I had a second type of scan. This time, I had to drink some kind of liquid and the Doc's included contrast. Rather than a tube machine, this was a donut machine. I received a report on process already but it had too many medical terms for this simple mind to understand with any kind of clarity. I speak with the specialist again tomorrow for review of the findings and to make a decision on the next step of the staging.

I'm so happy that a majority of the medical professionals I've dealt with seem to have a calling for helping others. That's evident in how they've treated me through this process. Helpful, flexible, and understanding.

TK

Hi, my name is Dana.
I was diagnosed with stage I or II pancreatic cancer in June of 2023. It was approximately 2cm on the head of my pancreas. I did 3 months of chemo and had whipple surgery in January of 2024 at UCSF in San Francisco. All of the margins were clear after surgery. My surgeon wanted me to do another 3 months of chemo after the surgery. I did that and my tumor marker CA19-9 was normal at 35. My scans have been clear for 10 months. My oncologist decided to just watch it and do scans every 3 months. The problem is my CA 19-9 started to go up, and now my oncologist is suggesting more chemo, which I do not really want to do. Anyone else have this problem?

@carneydh
Congrats on catching your tumor in the early stages - that is key to fight this thing. Secondly is to have good oncology and surgical team and to be aware of what your mutations are as they signify the aggressiveness of the type you have and what treatment for drs to use. Mine are KRAS12D, TP53, and some type of ATM mutation. After my surgery and 12 cycles of fulfirnox chemo my cancer after 4.5 months without chemo came back as a lesion in my liver. These are difficult to see on a CT and easier to see on MRI, particularly when they are small. I’m now on GA chemo basically since January of this year (cisplatin was dropped from my chemo cocktail in September) and I received MRIdean radiation in October of this year for lesion on my liver). My CA19-9 went from a 6 to 3840 in 4.5 months. What is yours?