Pancreatic Cancer Group: Introduce yourself and connect with others

I live in Turkey. I know that cancer rates in the US are higher than in Japan. I meant Turkey.

In 2023, I went to the internal medicine department, then the gastroenterology department, then the MRI, CT scan, then the bitter truth, I was told that I had stage 4 pancreatic cancer. a piece of the liver was taken again to be sure, and it was confirmed. first I dreamed, I dreamed, I started to finish my work that had to be finished without telling my family, I started the cleaning operation of bank accounts, my car, etc. other trinkets in order not to leave problematic events to my wife and child, I told my closest friends about the situation (please tell them too, even tell them all the developments), I asked them not to make emotional speeches, if there is anything I can do, I will do your transportation, there is a taxi etc. If I need anything, of course I will let you know, and I asked them not to inform other people about my situation without my permission. of course I told my apartment neighbors to help me if I had a problem day and night. maybe I panicked, it turned out that I was doing the right thing (I even wanted to leave a letter to my siblings and relatives, then I gave up)
I started my new job in oncology department:) 6 heavy chemo (4 hours in the hospital, 48 hours at home) then mr, pad shooting, pancreas tumor shrunk a lot, liver only shrunk. 6 more heavy chemo, mr, pet scan. After 12 chemo was over, We met with my dr, the pancreas was completely cleaned, and there was a shrinkage in the liver (1.1 mm). the council will be convened and it will be decided whether the piece in the liver will be burned or reduced chemo will be done. i hope everyone will overcome this bad disease. maybe the liver will be burned with an interventional surgical intervention (i learned from mayo clinic)
What I experienced during the chemo period;
First, I made my hair (already small) number zero, the effects of the chemotherapy I experienced were hair, nails, bad taste in the mouth, decreased blood values, skin problems, weakness, cold allergy.
If you ask how I got over it, since I couldn't drink water, I drank everything without sugar (soda, cola, soda, fruit juice made at home). as for the lack of appetite, I took care of it by looking at food pictures, thanks to my wife, she made whatever I wanted. I consumed everything in moderation, including sugary foods except pomegranate and grapefruit. there is no information about sugar, on the contrary, consume in moderation, normal cells need sugar.
-I had extreme diarrhea, but I often ate whatever I could find, (apple is very good) I lost 25 kilos.

-I put Vaseline on my toes and fingers, it was very good, my nails shone a little.
-the nerves of the toes and fingers are damaged as in diabetics and there is no pain, but there is a burning sensation and tingling sensation when walking. I take vitamins for this, but they say that improvement can only be achieved in 1 year.

-Conclusion for chemotherapy: If chemotherapy responds to the treatment of the disease, do it, if not, resort to other scientific means, do not turn to unscientific remedies.
-in private hospitals -beware that some drs want overseas tests, sometimes these tests may not work for you, and they are expensive, investigate thoroughly.
- Without the support of my friends and family, this chemo work is unbearable. after each chemo, I went out with my friends.
After 12 chemotherapy, the council convened, it was decided that there was no need for incineration operation, it was decided to continue with mild chemotherapy in pill form.
I said I don't want to go through chemotherapy.
There is a famous clinic in Antalya called varisso that does these burning works, I went directly to that clinic from the hospital, they immediately made an appointment with the teacher Saim Bey. the teacher said briefly; you do not need a burning operation. The burning operation is done when the drugs do not respond to the treatment or when the tumor is larger, you continue the treatment in pill form (not a smart drug, the name is: capecitabine - chemotherapy drug in pill form) as the teacher said. I reluctantly started chemotherapy again, albeit light. for a few days I ate whatever I wanted, I gained a little weight (including dubai chocolate).

As of today, I am taking chemo in pill form at home, it will last for 3 months, then mr, pad extraction. I did not have a problem, sometimes diarrhea, and of course

For me this treatment is nothing. I do what I want, but there is a fatigue, although not as much as before, because it always lowers blood values, and the natural gas works at the highest temperature, I am lucky, I live in antalya.
My treatment continues in antalya training research hospital, the dr is a really good physician, prof. dr. The only problem with the training research hospital is that it is very crowded, but I think the treatment is good in this hospital.

I registered to the discussion and information exchange section of cancer patients in mayo clinic (the largest cancer hospital in the usa). my advice to cancer patients is to register in that section, there is really good information. don't misunderstand, no cure has been found, but patients give good advice to each other. for example, burning cancer tumors, I suggested some drugs to my dr (krea etc.) and he accepted, and the following;
hair loss and numbness of the fingers and toes, which are side effects of chemotherapy, nervous pains were a form of treatment for this. do not do without consulting your doctor.
https://letswinpc.org/...ment/ice-prevent-neuropathy/
nutrition guide for people undergoing chemotherapy and cancer treatment;
https://www.cookforyourlife.org/
For example; my friends could not find the mushroom that is touted to be used in the treatment of cancer, which is currently the most circulated mushroom, in Japan and it is only sold on the internet, (we even have it on trendyol), because there is no proven study, according to statistics, the cancer rate in Japan is higher than our country.
Stay connected to life, of course there are emotional crises in between, spend time, do hobbies etc. that you love, this is life, do not get stuck in the question of why me.
Now I only have a fart problem, I gained 8 kilos, my treatment continues at home. At the end of January, MR will be taken and the final situation will be clear. I wish everyone good health. Turkey/Antalya

I apologize for spelling mistakes.

Translate deepL

In 2023, I went to the internal medicine department, then the gastroenterology department, then the MRI, CT scan, then the bitter truth, I was told that I had stage 4 pancreatic cancer. a piece of the liver was taken again to be sure, and it was confirmed. first I dreamed, I dreamed, I started to finish my work that had to be finished without telling my family, I started the cleaning operation of bank accounts, my car, etc. other trinkets in order not to leave problematic events to my wife and child, I told my closest friends about the situation (please tell them too, even tell them all the developments), I asked them not to make emotional speeches, if there is anything I can do, I will do your transportation, there is a taxi etc. If I need anything, of course I will let you know, and I asked them not to inform other people about my situation without my permission. of course I told my apartment neighbors to help me if I had a problem day and night. maybe I panicked, it turned out that I was doing the right thing (I even wanted to leave a letter to my siblings and relatives, then I gave up)
I started my new job in oncology department:) 6 heavy chemo (4 hours in the hospital, 48 hours at home) then mr, pad shooting, pancreas tumor shrunk a lot, liver only shrunk. 6 more heavy chemo, mr, pet scan. After 12 chemo was over, We met with my dr, the pancreas was completely cleaned, and there was a shrinkage in the liver (1.1 mm). the council will be convened and it will be decided whether the piece in the liver will be burned or reduced chemo will be done. i hope everyone will overcome this bad disease. maybe the liver will be burned with an interventional surgical intervention (i learned from mayo clinic)
What I experienced during the chemo period;
First, I made my hair (already small) number zero, the effects of the chemotherapy I experienced were hair, nails, bad taste in the mouth, decreased blood values, skin problems, weakness, cold allergy.
If you ask how I got over it, since I couldn't drink water, I drank everything without sugar (soda, cola, soda, fruit juice made at home). as for the lack of appetite, I took care of it by looking at food pictures, thanks to my wife, she made whatever I wanted. I consumed everything in moderation, including sugary foods except pomegranate and grapefruit. there is no information about sugar, on the contrary, consume in moderation, normal cells need sugar.
-I had extreme diarrhea, but I often ate whatever I could find, (apple is very good) I lost 25 kilos.

-I put Vaseline on my toes and fingers, it was very good, my nails shone a little.
-the nerves of the toes and fingers are damaged as in diabetics and there is no pain, but there is a burning sensation and tingling sensation when walking. I take vitamins for this, but they say that improvement can only be achieved in 1 year.

-Conclusion for chemotherapy: If chemotherapy responds to the treatment of the disease, do it, if not, resort to other scientific means, do not turn to unscientific remedies.
-in private hospitals -beware that some drs want overseas tests, sometimes these tests may not work for you, and they are expensive, investigate thoroughly.
- Without the support of my friends and family, this chemo work is unbearable. after each chemo, I went out with my friends.
After 12 chemotherapy, the council convened, it was decided that there was no need for incineration operation, it was decided to continue with mild chemotherapy in pill form.
I said I don't want to go through chemotherapy.
There is a famous clinic in Antalya called varisso that does these burning works, I went directly to that clinic from the hospital, they immediately made an appointment with the teacher Saim Bey. the teacher said briefly; you do not need a burning operation. The burning operation is done when the drugs do not respond to the treatment or when the tumor is larger, you continue the treatment in pill form (not a smart drug, the name is: capecitabine - chemotherapy drug in pill form) as the teacher said. I reluctantly started chemotherapy again, albeit light. for a few days I ate whatever I wanted, I gained a little weight (including dubai chocolate).

As of today, I am taking chemo in pill form at home, it will last for 3 months, then mr, pad extraction. I did not have a problem, sometimes diarrhea, and of course

For me this treatment is nothing. I do what I want, but there is a fatigue, although not as much as before, because it always lowers blood values, and the natural gas works at the highest temperature, I am lucky, I live in antalya.
My treatment continues in antalya training research hospital, the dr is a really good physician, prof. dr. The only problem with the training research hospital is that it is very crowded, but I think the treatment is good in this hospital.

I registered to the discussion and information exchange section of cancer patients in mayo clinic (the largest cancer hospital in the usa). my advice to cancer patients is to register in that section, there is really good information. don't misunderstand, no cure has been found, but patients give good advice to each other. for example, burning cancer tumors, I suggested some drugs to my dr (krea etc.) and he accepted, and the following;
hair loss and numbness of the fingers and toes, which are side effects of chemotherapy, nervous pains were a form of treatment for this. do not do without consulting your doctor.
https://letswinpc.org/...ment/ice-prevent-neuropathy/
nutrition guide for people undergoing chemotherapy and cancer treatment;
https://www.cookforyourlife.org/
For example; my friends could not find the mushroom that is touted to be used in the treatment of cancer, which is currently the most circulated mushroom, in Japan and it is only sold on the internet, (we even have it on trendyol), because there is no proven study, according to statistics, the cancer rate in Japan is higher than our country.
Stay connected to life, of course there are emotional crises in between, spend time, do hobbies etc. that you love, this is life, do not get stuck in the question of why me.
Now I only have a fart problem, I gained 8 kilos, my treatment continues at home. At the end of January, MR will be taken and the final situation will be clear. I wish everyone good health. Turkey/Antalya

I apologize for spelling mistakes.

Translate deepL

Hello All,
I've recently been advised that I have a 5cm mass in my pancreas tail, diagnosed as Adenocarcinoma, high-grade. The surgeon highly suggested a second opinion as to whether surgery was even an option, (given my overall health). Problem is, I really don't know where to turn to find a second opinion that checks the boxes for me, namely insurance, Medicare and Part A and Medigap, location, SW Wisconsin. Any trustworthy websites folks can recommend that I can use to filter for a pancreatic specialist and second opinion. thanks for any insight....Toesz

Hello. I am caregiver for my husband who was diagnosed with pancreatic cancer in Feb. 2023. He had both chemotherapy and a Whipple Procedure. He is doing pretty well and blood tests and CT scans show no signs of cancer. He’s on enzyme therapy. But we still have concerns with his digestion.

What issues are you having with digestion? Are you taking enzymes? Have you changed your diet to significantly reduce fat intake as our newly reconstructed digestive systems can’t handle fat.

My doctor said that you can eat everything except foods that are too fatty and are problematic for chemotherapy. He also said to experiment and stay away from food that causes a lot of diarrhea and abdominal pain. I am on Creon. Sometimes with diarrhea, sometimes without diarrhea, life goes on.

https://www.datapandas.org/ranking/cancer-rates-by-country