1. < Fibromyalgia

Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

lioness | @lioness | May 2, 2018
In reply to @grandmar "Hi All, I went for my 3 week post lumbar injection follow up. My pain doc,..." + (show)
@grandmar

Hi All,

I went for my 3 week post lumbar injection follow up. My pain doc, who led me to believe there were still a couple of more tricks up his sleeve, said he really does not know what else he can do. He did suggest giving me another shot only in a different place since the last 2 shots did not help. He also suggested that I discuss the possibility of surgery with my neurosurgeon (since I am doing better since my cervical surgery).

My hubby and I went back and forth about whether or not I should take another shot. Hubby thinks since the doc did not sound too confident, why should I? After going over it in my mind, I've decided to try. Before I even entertain another surgery, I want to make sure shots are no longer an option.

So, in about 2 weeks I will get my shot and in 3 weeks I will see the surgeon. I should know what is happening by then.

Ronnie (GINSBERGr)

Jump to this post

I had not one but 2shots yesterday the one on the left side still hurts I'm debating about calling him

REPLY
Parus | @parus | May 2, 2018
In reply to @grandmar "Hi All, I went for my 3 week post lumbar injection follow up. My pain doc,..." + (show)
@grandmar

Hi All,

I went for my 3 week post lumbar injection follow up. My pain doc, who led me to believe there were still a couple of more tricks up his sleeve, said he really does not know what else he can do. He did suggest giving me another shot only in a different place since the last 2 shots did not help. He also suggested that I discuss the possibility of surgery with my neurosurgeon (since I am doing better since my cervical surgery).

My hubby and I went back and forth about whether or not I should take another shot. Hubby thinks since the doc did not sound too confident, why should I? After going over it in my mind, I've decided to try. Before I even entertain another surgery, I want to make sure shots are no longer an option.

So, in about 2 weeks I will get my shot and in 3 weeks I will see the surgeon. I should know what is happening by then.

Ronnie (GINSBERGr)

Jump to this post

My doctors slough me off and blame everything on depression. I do NOT have a history of pain w/ depression. For now I have ceased trying. Still having thyroid issues and cannot see the specialist in another city. I CANNOT make the drive. All of the merging and never know what doctor I will see-very stressful. Larger medical groups are taking over the smaller dependable doctors. The days of private practice are gone. Why? I believe it is because of all the lawsuits and doctors can no longer deal with the expense of malpractice insurance.
I am so sorry-we are here to encourage and support.

REPLY
lioness | @lioness | May 2, 2018
In reply to @parus "Fibro for now is the enemy-tuckered to the point of not even wanting to try. Depression..." + (show)
@parus

Fibro for now is the enemy-tuckered to the point of not even wanting to try. Depression has roared and my strength wanes. Pathetic. shame on me for being weak.

Jump to this post

Parus ,what all are you taking?

REPLY
grandmaR | @grandmar | May 2, 2018
In reply to @grandmar "Hi All, I went for my 3 week post lumbar injection follow up. My pain doc,..." + (show)
@grandmar

Hi All,

I went for my 3 week post lumbar injection follow up. My pain doc, who led me to believe there were still a couple of more tricks up his sleeve, said he really does not know what else he can do. He did suggest giving me another shot only in a different place since the last 2 shots did not help. He also suggested that I discuss the possibility of surgery with my neurosurgeon (since I am doing better since my cervical surgery).

My hubby and I went back and forth about whether or not I should take another shot. Hubby thinks since the doc did not sound too confident, why should I? After going over it in my mind, I've decided to try. Before I even entertain another surgery, I want to make sure shots are no longer an option.

So, in about 2 weeks I will get my shot and in 3 weeks I will see the surgeon. I should know what is happening by then.

Ronnie (GINSBERGr)

Jump to this post

Yes, he has an MRI to see where to inject. He also uses a florescope (spelling?) to guide the needle and to take a picture.
Sounds like the shots work for you. There should not be any reason for surgery. But, I am not a doctor.

REPLY
grandmaR | @grandmar | May 2, 2018
In reply to @grandmar "Hi All, I went for my 3 week post lumbar injection follow up. My pain doc,..." + (show)
@grandmar

Hi All,

I went for my 3 week post lumbar injection follow up. My pain doc, who led me to believe there were still a couple of more tricks up his sleeve, said he really does not know what else he can do. He did suggest giving me another shot only in a different place since the last 2 shots did not help. He also suggested that I discuss the possibility of surgery with my neurosurgeon (since I am doing better since my cervical surgery).

My hubby and I went back and forth about whether or not I should take another shot. Hubby thinks since the doc did not sound too confident, why should I? After going over it in my mind, I've decided to try. Before I even entertain another surgery, I want to make sure shots are no longer an option.

So, in about 2 weeks I will get my shot and in 3 weeks I will see the surgeon. I should know what is happening by then.

Ronnie (GINSBERGr)

Jump to this post

It is not unusual for an injection to become more painful the next day. That is because part of what is injected numbs the area. Then, it is not unusual for the shot to start to work a week later.
In the meantime, use heat and/or cold on the affected area.
If you still feel uncomfortable, it certainly is not unreasonable to call the doc for input.
Feel better!

REPLY
grandmaR | @grandmar | May 2, 2018
In reply to @parus "Fibro for now is the enemy-tuckered to the point of not even wanting to try. Depression..." + (show)
@parus

Fibro for now is the enemy-tuckered to the point of not even wanting to try. Depression has roared and my strength wanes. Pathetic. shame on me for being weak.

Jump to this post

Who says you are being weak. Chronic pain is exhausting both physically and emotionally. You're NOT weak, YOU ARE EXHAUSTED!!

REPLY
raina | @raina | May 2, 2018
In reply to @parus "Fibro for now is the enemy-tuckered to the point of not even wanting to try. Depression..." + (show)
@parus

Fibro for now is the enemy-tuckered to the point of not even wanting to try. Depression has roared and my strength wanes. Pathetic. shame on me for being weak.

Jump to this post

I too have fibro, so I understand the struggle of dealing with pain and depression. But you are not pathetic or weak. Yes, it's difficult to do normal daily activities, but giving up is not an option for us. I have moments when I am sad not just because of the overwhelming pain I'm feeling but also for not being able to do all the fun activities my family used to enjoy. I don't know you, but the fact that you recognized that you are weak in itself tells me that you are a strong person who is dealing with pain. Hang in there.
Walking for 30 minutes every day helps me feel better. Try it and see if it makes a difference.

REPLY
Mamacita, Alumna Mentor | @mamacita | May 2, 2018
In reply to @parus "Fibro for now is the enemy-tuckered to the point of not even wanting to try. Depression..." + (show)
@parus

Fibro for now is the enemy-tuckered to the point of not even wanting to try. Depression has roared and my strength wanes. Pathetic. shame on me for being weak.

Jump to this post

Keeping busy helps me a lot.  I try to go to a heated pool as often as I can.  Sometimes I just curl up with a heating pad. Lots of activities and responsibilities help keep me going.  On days when I have a flare, I just do my best.  If I can't get things done I will turn it into a mental health day, and be good to myself!

REPLY
lioness | @lioness | May 2, 2018
In reply to @grandmar "Hi All, I went for my 3 week post lumbar injection follow up. My pain doc,..." + (show)
@grandmar

Hi All,

I went for my 3 week post lumbar injection follow up. My pain doc, who led me to believe there were still a couple of more tricks up his sleeve, said he really does not know what else he can do. He did suggest giving me another shot only in a different place since the last 2 shots did not help. He also suggested that I discuss the possibility of surgery with my neurosurgeon (since I am doing better since my cervical surgery).

My hubby and I went back and forth about whether or not I should take another shot. Hubby thinks since the doc did not sound too confident, why should I? After going over it in my mind, I've decided to try. Before I even entertain another surgery, I want to make sure shots are no longer an option.

So, in about 2 weeks I will get my shot and in 3 weeks I will see the surgeon. I should know what is happening by then.

Ronnie (GINSBERGr)

Jump to this post

Thanks I'm on a neat my pad and saw how it helped

REPLY
lioness | @lioness | May 2, 2018
In reply to @parus "Fibro for now is the enemy-tuckered to the point of not even wanting to try. Depression..." + (show)
@parus

Fibro for now is the enemy-tuckered to the point of not even wanting to try. Depression has roared and my strength wanes. Pathetic. shame on me for being weak.

Jump to this post

One thing that helps me is magnesium us fibro folks need more then regular people I take about 450 mg a day before bedtime.but flare ups, nothing helps Epsom salts bath is about the only thing that helps me

REPLY
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