Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

We used to read about the wait times in other countries. But not ours. What happened.

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@oregongirl

@dals, I am so sorry to hear of the road you have traveled. I believe I could say I know some of what you have faced. Every doctor has said, well, I don't know maybe your need more rest, or lets check this and that. How many years did I walk this earth and did not know I had RA. Now I found out I am at Stage 3 on Kidney Disease...How long has that gone overlooked. I finally have an appt at the Pain Clinic at the University. I really don't want any narcodics. But, a stronger dose of Ibprophen. I pray that you have some relief. Even a day of no pain will make you feel like there is a chance that you will someday be pain free.

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I also use the combination of Tramadol, but had to reduce gabapentin due to stomach upset. I think gabapentin works for me the best .

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@oregongirl

We used to read about the wait times in other countries. But not ours. What happened.

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Makes you wonder Yes Tramadol is but you can control how much u take ,it's not a cure all but what is?

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@oregongirl

@dals, I am so sorry to hear of the road you have traveled. I believe I could say I know some of what you have faced. Every doctor has said, well, I don't know maybe your need more rest, or lets check this and that. How many years did I walk this earth and did not know I had RA. Now I found out I am at Stage 3 on Kidney Disease...How long has that gone overlooked. I finally have an appt at the Pain Clinic at the University. I really don't want any narcodics. But, a stronger dose of Ibprophen. I pray that you have some relief. Even a day of no pain will make you feel like there is a chance that you will someday be pain free.

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That's fine everyone's make up is different Gabapentin didn't work for me at all but Cymbalta does so far

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@parus

Greetings once again ye troopers of fibro. I had a surprise. I am not much into fb, but I belong to a couple of art groups that are good ones-I think. Amazing the talent that is out there. I posted a painting I had been working one and the administrator made it the cover photo. With all of the pain, etc. this brightened my day. This is the watercolor that became the cover photo for the week. I will add it here for you fibro folks or anyone else stopping by.

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@oregongirl, I was referencing a cow that Parus had posted a few weeks ago! I can see now how that looked like I mistook that horse for a cow in the flow of this conversation!

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@oregongirl

@dals, I am so sorry to hear of the road you have traveled. I believe I could say I know some of what you have faced. Every doctor has said, well, I don't know maybe your need more rest, or lets check this and that. How many years did I walk this earth and did not know I had RA. Now I found out I am at Stage 3 on Kidney Disease...How long has that gone overlooked. I finally have an appt at the Pain Clinic at the University. I really don't want any narcodics. But, a stronger dose of Ibprophen. I pray that you have some relief. Even a day of no pain will make you feel like there is a chance that you will someday be pain free.

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@oregongirl I am one of those who got no benefit from gabapentin, but my pain management doc always said it made my pain medicine more effective so I kept taking it. When my Dad developed dementia, his neurologist told him to discontinue it immediately and that got me to thinking about getting off of it. My brain fog was so much better almost overnight when I weaned all the way off - I was on the highest dosage recommended. There are trade offs for pretty much every medicine we take and everyone has to make their own choices based on the info they have and how their body reacts. My experience was that any benefit I was getting from it was not worth the mental costs now and possibly in the future.

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@parus

Greetings once again ye troopers of fibro. I had a surprise. I am not much into fb, but I belong to a couple of art groups that are good ones-I think. Amazing the talent that is out there. I posted a painting I had been working one and the administrator made it the cover photo. With all of the pain, etc. this brightened my day. This is the watercolor that became the cover photo for the week. I will add it here for you fibro folks or anyone else stopping by.

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Glad you figured that was a horse.lol

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@dais

It worked! I was diagnosed with Fibro and Chronic Migraines at Mayo Clinic about 5 years ago. Before I went to the Mayo it was a rollercoaster ride of different specialists, pain clinics, neurologists. They all had different diagnosis and "treatments ". Just like others in the post, it has just been a blur of different drugs and procedures that didn't work. Going to the Mayo was such a blessing because I finally received answers and help. (I still go every three months) BUT, I feel like I have gotten to the point of no return. The pain is so intense and unrelenting lately...like every cell in my body is screaming. I was hoping to reach out to people who know what I'm going through. That may have new ideas or words of wisdom. I have a great family, friends, etc. but they don't know what it is really like and some days I just can't fake it anymore. So sorry to be so wordy...thank you

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Thank you for the suggestions of stretching and ho t showers. I need to get back to doing those simple things that
actually help. Tramodol and meloxicam have not worked for me. I do take oxycotin. Iwill try the tumeric tea.

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@oregongirl

@dals, I am so sorry to hear of the road you have traveled. I believe I could say I know some of what you have faced. Every doctor has said, well, I don't know maybe your need more rest, or lets check this and that. How many years did I walk this earth and did not know I had RA. Now I found out I am at Stage 3 on Kidney Disease...How long has that gone overlooked. I finally have an appt at the Pain Clinic at the University. I really don't want any narcodics. But, a stronger dose of Ibprophen. I pray that you have some relief. Even a day of no pain will make you feel like there is a chance that you will someday be pain free.

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Im so sorry you have to endure so much. I have taken so many nerve type meds and nsaids my stomach can't do them anymore. Oxycotin is the only med that has helped my pain. I am going to try and get back to relaxation techniques and try turmeric. I don't have RA but my husband does and he takes Enbril which helps him a lot. I do have OA and have one knee replaced and the other is bone on bone. It is so hard to deal with the everyday pain and Im sad to read everyone's story but it is healing to finally be able to talk about it. Thank you.

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@dais

It worked! I was diagnosed with Fibro and Chronic Migraines at Mayo Clinic about 5 years ago. Before I went to the Mayo it was a rollercoaster ride of different specialists, pain clinics, neurologists. They all had different diagnosis and "treatments ". Just like others in the post, it has just been a blur of different drugs and procedures that didn't work. Going to the Mayo was such a blessing because I finally received answers and help. (I still go every three months) BUT, I feel like I have gotten to the point of no return. The pain is so intense and unrelenting lately...like every cell in my body is screaming. I was hoping to reach out to people who know what I'm going through. That may have new ideas or words of wisdom. I have a great family, friends, etc. but they don't know what it is really like and some days I just can't fake it anymore. So sorry to be so wordy...thank you

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I think yo,u'll like it ,its ginger@turmeric tea

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