Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

@arcounselman

Hi,
I am 67 and have been treated for AFib for about 8 years.

I have been relatively symptom free for that time with the medications prescribed.

I recently had a COVID vaccine and developed daily AFib symptoms.

Has anyone else experienced a connection between vaccines and the uptake of AFib symptoms?

Jump to this post

Of course there is a connection. Sto consuming anything with caffeine if you have been.

REPLY
@arcounselman

Hi,
I am 67 and have been treated for AFib for about 8 years.

I have been relatively symptom free for that time with the medications prescribed.

I recently had a COVID vaccine and developed daily AFib symptoms.

Has anyone else experienced a connection between vaccines and the uptake of AFib symptoms?

Jump to this post

Hi.

This doesn't address your question (which leads me to wonder whether the vaccines played a role in my AF). Rather, I'm just wondering what meds you've been on, and whether you were still in AF but without symptoms.

I went into persistent AF (first known AF occurrence) in late May. Metoprolol reduced (but did not stop) the fibrillation, and stopped the symptoms.

I had a successful cardioversion last week (despite not being to take amiodarone). Waiting to see how long it lasts.

Cheers.

REPLY

The vax may cause heart issues but for me, COVID did! So for me the vaccination is an absolute necessity.

REPLY
@lauriea2024

My name is Laurie and I’ve been diagnosed with SVT. It initially started with random episodes of a pulse rate around 165 that lasted about a minute. I work out everyday and have had stress tests, echos, ekgs, you name it and my heart function is fine except for these random bouts. Now I’ve had 4 episodes in the last month with my pulse in the 180s that lasted only up to ten minutes. It is terrifying! My cardiologist said as long as they are asymptomatic, which they are, I am fine.
My primary care thinks it may have something to do with COVID vaccines.
My other fear is that I have an anaphylactic reaction to IV contrast, so an ablation or a cath are pretty much out of the question.
Has anyone else experienced anything like this? COVID vaccine related?
Ways to cope?
Thanks in advance!

Jump to this post

Hi, I am just curious. If you are asymptomatic, how do you know to take your pulse? Rates in the 180s are pretty hard to count out.

REPLY

Hi everyone. I'm Gael, a 73 year old woman with a long history of irregular heartbeat, apparently due to aortiv valve regurgitation. I also have hypertension and am taking three medications for it. That said, I have not seen a cardiologist in over five years because my husband and I were caring for my bedbound mother. She died a year ago and then my dear husband died a month later. I am thinking of going to the Mayo clinic nearest me to get all of this checked out. The arrythmia causes me panic attacks and makes it nearly impossible to do the things I want and need to do in life. Does anyone have similar experience? Is there anything that can definitively be done to make life easier with this condition? Thank you for any perspective on this.
Gael

REPLY
@gaelgreen

Hi everyone. I'm Gael, a 73 year old woman with a long history of irregular heartbeat, apparently due to aortiv valve regurgitation. I also have hypertension and am taking three medications for it. That said, I have not seen a cardiologist in over five years because my husband and I were caring for my bedbound mother. She died a year ago and then my dear husband died a month later. I am thinking of going to the Mayo clinic nearest me to get all of this checked out. The arrythmia causes me panic attacks and makes it nearly impossible to do the things I want and need to do in life. Does anyone have similar experience? Is there anything that can definitively be done to make life easier with this condition? Thank you for any perspective on this.
Gael

Jump to this post

Have you had an ECG showing the arrhythmia? Have you consulted a cardiologist? Are you on a DOAC (Direct Oral Anti-Coagulant)? You should avail yourself of all three immediately if your answer is no to any of them. Please consult a cardiologist right away. You don't want your heart's substrate, the underlying tissue, to begin remodeling itself due to the persistent AF. It makes AF much harder to treat, and it invites a progression toward mitral valve prolapse and more fibrosis, but it also invites heart failure, or heart insufficiency.

REPLY
@gloaming

Have you had an ECG showing the arrhythmia? Have you consulted a cardiologist? Are you on a DOAC (Direct Oral Anti-Coagulant)? You should avail yourself of all three immediately if your answer is no to any of them. Please consult a cardiologist right away. You don't want your heart's substrate, the underlying tissue, to begin remodeling itself due to the persistent AF. It makes AF much harder to treat, and it invites a progression toward mitral valve prolapse and more fibrosis, but it also invites heart failure, or heart insufficiency.

Jump to this post

Hello, and thank you for the information. I had an EKG and nothing was found. No AF. I was told by a cardiologist five years ago that I have aortic valve regurgitation, but nothing was suggested at the time but strict blood pressure control, which I have done. I am seeing a cardiologist after the new year. I have had severe palpitations all my life, sometimes more severe, seemingly unrelated to anything. They found no abnormal beats other than hundreds of PVCs, which make me breathless and panicky and close to fainting at times. It is a misery at times and I am hoping to get some advice and help when I see the doctor. I do hope there is more to offer five years later. Thank you so much for your informative reply! Gael

REPLY
@dalebout123

No. I don't have a cardiologist or pumonologist...just my primary care doc who is a DO. I guess the heart monitor or the apnea thing I put on my finger for the night indicated low oxigen. I don't really know as my doc doesn't spend a lot of time with me. He has his medical assistant call me to tell me what to do next.

Jump to this post

I don't know what your options are in your area or with your insurance, but as a nurse who has observed physicians for all my career, and now as a "patient" myself, I strongly recommend that if you feel "something is not right with your body" that you should find a physician that will listen! There is nothing more discouraging than a physician that "blows you off" with your concerns. There is nothing wrong with saying that you are "not compatible" with a certain doctor and ask for a different one. If you have insurance, the customer representative will often times help you find a doc that suits you!

REPLY

Greetings all,
Thank you for this group!
I have a family history of atrial fibrillation, mother, father, 2 brothers, and a sister (that's all I know of). I had a cryoablation about 3 years ago and that controlled my a-fib for almost 2 years. When it popped up again, my cardiologists determined that it was because of a leaking mitral valve getting worse, which they have been monitoring for around 5 years. Last April I had a minimally invasive mitral valve repair (they went in between the ribs instead of a sternotomy, put in an annuloplasty ring to tighten the valve and added a couple chordae - it's amazing what they can do these days!). Surgery was successful. I have recently noticed, or think I notice occasional irregular heart beats - not a-fib - and recently am experiencing what I would call bradycardia, with a heart rate around 40 when I am lying down in bed. Wondering if it is something I should be concerned about.

REPLY
Please sign in or register to post a reply.