Fibromyalgia pain: Let's connect

I agree with you. There are areas of medicel care to deal with drug abuse. Pain management needs to be treated on an individual basis for whatever disease, etc. We dont need government intrusion or influence. It's affected what drugs my pharmacy will order. I'm sick & definitely dont have the energy to deal with it.

Cloe, I understand how you feel. I went to grocery store with my kids tonight. I became very I'll. It's not vomiting it is weakness and trying to work thru pain

I cannot work.bi just don't buy anything. Rent, insurance, Uber rides, acripts and money gone for another month

How do you write your own scripts..

@oregongirl

Hi, I'm a Volunteer Mentor and I've been reading the posts here. I'm concerned about your statement about dying being a "miracle drug". My concern is around you being in so much pain that dying seems preferable to living with the pain. I have taken Tramadol in the past, but it's for moderate pain. It sounds as if your pain exceeds what it's helpful for. I have a couple of questions:
- Have you had genetic testing to determine what medications will work best for you?
- Are you taking an antidepressant right now? If so, which one?
- Is there a possibility you could go to a Mayo Clinic for evaluation and diagnosis? For me, Mayo has been the best at finding the right answers to my issues in the past when others could not.
- Do you live in a state that allows use of medical marijuana? I have found medical marijuana helpful for my anxiety and some help with pain. I like CBD which is the part of marijuana that doesn't make you high. It helps my emotions to calm which in turn helps my pain.

I sincerely hope you find some help and relief from your pain by participating on Mayo Connect. Please let us know the answers to the questions I asked so we can get to know you better. Thanks and warm regards,

Gail B
Volunteer Mentor

@oregongirl

Please clarify what you mean by "writing your own scripts". If you're talking about prescriptions, you can't do that legally. A physician must write prescriptions for you. If you mean something else, please explain.

Gail B
Volunteer Mentor

@lioness

I am 69 and I don't have the same experience of being disrespected by my doctors or their staff. I do think that often what I "see" is what I get. What I'm saying is if I respect myself and others, that's what I get in return. To tell you the truth, if someone in one of my doctor's offices didn't show me respect, I probably wouldn't even notice because I'm not into that. I enjoy life and people more now than when I was younger.

I have a hunch that your level of pain has you down so you see things from a negative point of view right now. Are you taking antidepressants? If you are, you may want to ask your doctor about possibly changing your med. As I said to Oregongirl, genetic testing is available that will show the antidepressant that will work best for you. If you're not taking an antidepressant, you may want to consider talking with your doctor about starting one. I take Citalopram and it changed my life once I adjusted to it. I started about 6 years ago and I have lost many of my fears. I think it also helped with my pain levels.

I'm not a medical professional so I'm not diagnosing your need. I'm just going by the emotions expressed in your posts. You seem down right now. Please correct me if I'm not reading this right. I want you to find relief for your pain.

Warmly,
Gail B
Volunteer Mentor

Even calling a Pain Mgt doctor feels like I am calling in and required to present all my prison records. I don't have any. But the receptionist take their job serious. Obviously, they are young and have not yet experienced the pain we have and going through old age with pain. Their answer to my call is for the doctor himself to send the referral, not give it to me. OMG. So, now I have called the University of Texas where I am seen and asked that the doctors refer me to them. TWO of my doctors on my team have referred me to Pain Mgt. So maybe within a month I MIGHT have some help. I am sorry to say that Seniors will probably die sooner due to lack of pain control. When I am having a flare, I would welcome peace. Fortunately, I am a Christian and I pray instead of getting depressed. I laugh at the idiots who have made this path to relief impossible to breach.

Thanks for your input I am on a new med Cymbalta it took awhile to adjust to it but it is helping me I think when I was in so much pain I sounded negative about everything but normally I am positive person I found the right Dr,s last year the Dr.I had did,nt help me at all ,he listened but didn't try to help me ,some Dr,s still don't believe in fibromyalgia.I didn't realize how negative I was sounding ,that's not me.

What is LDN?