Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for Jessica @jmenassaka

I’m Jessica and I have fibromyalgia with a side of IBS, Pelvic Floor Dysfunction, Depression, and a number of other issues. The years of dealing with this and being isolated have now given me severe social anxiety. This is especially hard since I used to be an outgoing people-person. Just trying to take things one day at a time.

Jump to this post

You’ve got this 🙌 we’re all here to help each other get through it day by day…xx

REPLY
Profile picture for itchyd @itchyd

Heisenberg Uncertainty Principle. Not to be confused with the Hindenburg Certainty Principle: "With what's floatin' us, I'm certain we're headed for trouble in Lakehurst."

Jump to this post

Love the "Hindenberg Certaintity Principle. Yes, floating along in a giant bag of hydrogen would give me serious pause. Those dirigibles were HUGE! I seem to recall that they wete 700 to 800 feet long.

REPLY

Hello,
I had a back operation in January 2022, in regard to not having a disk between S1-L5. The repair was successful, but I suffered terrible collateral damage from Sciatica in both legs, Piriformis Syndrome in both buttocks, and Neuropathy in both feet. My surgeon said all this happened because pressure was taken off of the Sciatic nerve, of which had been pinched really bad. He said the tremendous pain I was in was temporary, and would ease up after a while. Wrong!! I have been in chronic pain for almost 3 years. I started out on Gabapentin, and after a while, was put on Lyrica. I take 75 mg in the morning, and 125 mg at night. My pain is so bad, that I have to take a narcotic (Ambien) just to be able to get some sleep. Currently, my major pain is in my right buttock, and goes down the back of my right thigh. Also, the Neuropathy in my feet is really bad. So, I know we are all different, but I would really appreciate some help. Thanks, in advance.

REPLY

Hi everyone, I am Claudia and I live with chronic pain since around I was 11 years old. Now I am turning 50, and it is really causing limitations to my life. Thanks for having me.

REPLY
Profile picture for fibropositive14 @fibropositive14

Hi I’m Debbie from England West Yorkshire..uk..
I’m 42 and have fibromyalgia/pots syndrome/psoriatic & rheumatoid arthritis…oh and I’ve just started the perimenopause too 😭 the pain affects me daily and every week guaranteed I have a flare up and I’m bedbound for 2-3 days, it’s horrendous! The chronic pain and fatigue, so debilitating. I often get depressed 😔 especially on my bad days usually when I have a flare up. It’s frustrating because in my mind, I want to get up and get things done so if I do get a good hour I’ll blitz the house but then I end up paying for it when the flare starts! Just need to learn to pace myself…
I stay hydrated and rest whenever it’s can, so important to listen to our bodies..I’m on pregablin, nefopam and codeine & also (mirtazerpine antidepressants).
I take all the vitamins b12, c & d as well as magnesium as that’s really helping! I drink electrolytes too and they give me a boost, make me feel more normal and function better…
(needed as I’ve got pots syndrome) nice to meet you all, I’m so happy I’ve found such a lovely group, who understands exactly how chronic pain affects us physically and mentally. Other people just don’t get it xx

Jump to this post

Hi Debbie, I vam going through menopause and my pain got worse, I have cramps all over my body. I am not on medication but I also take the same vitamins and magnesium is really helpful. With my mood going up and down plus the pain (sometimes I cry until I sleep) I feel exhausted. Some days, mostly weekends, it feels like a dementor (Harry Potter movies) just sucked the life out of me...😢

REPLY
Profile picture for claudialima @claudialima

Hi Debbie, I vam going through menopause and my pain got worse, I have cramps all over my body. I am not on medication but I also take the same vitamins and magnesium is really helpful. With my mood going up and down plus the pain (sometimes I cry until I sleep) I feel exhausted. Some days, mostly weekends, it feels like a dementor (Harry Potter movies) just sucked the life out of me...😢

Jump to this post

Oh nooo I’m so sorry to hear this! It sucks bigtime..I’m sick of it xx

REPLY
Profile picture for claudialima @claudialima

Hi everyone, I am Claudia and I live with chronic pain since around I was 11 years old. Now I am turning 50, and it is really causing limitations to my life. Thanks for having me.

Jump to this post

I have a lot of sympathy for you Claudia. It is hard to live with the chronic pain and then to have family who think you should push through it like an athlete is so hard. My family thinks my fibromyalgia and osteoarthritis is not as bad as I make out and although my knees are getting so bad it's almost time for a knee replacement I should just keep walking and pushing it..

REPLY
Profile picture for 1kay2 @1kay2

I have a lot of sympathy for you Claudia. It is hard to live with the chronic pain and then to have family who think you should push through it like an athlete is so hard. My family thinks my fibromyalgia and osteoarthritis is not as bad as I make out and although my knees are getting so bad it's almost time for a knee replacement I should just keep walking and pushing it..

Jump to this post

I am so sorry for you, and for all of those who do not ha e the support of the family. It os the same to me. They always ask me: what happened this time for you to be in pain? As we know, it is a sum of events or sometimes one event, but the pain never goes away. In my casa it becomes stronger or weaker, but it is always here. Like whitenoise... I hope you can find some emotional support outside your family, because it is hard enough as it is and no one deserves to go through it alone! 🤗❤️

REPLY

I have a question and do not know how to start a new topic. What would make urine test negative for hydrocodone when I take it EVERY DAY? I had Dr appt on the 16th, Monday, and was told the hydrocodone wasn't in my system at last lab test which was Oct 21st. He said only the xanax showed up and I only take a quarter mg daily of that. I have been seeing this pain management doctor for over 10 years and have to do a urine test every visit. It upsets me very much to have something like this happen knowing that you have done nothing wrong yet it affects you negatively and there's not a thing you can do about it. The doctor asked about people having access to my meds, which to me is irrelevant because that would have NOTHING to do with it not showing up in a drug test. I thought about doing my own investigation and contacting the lab that ran the test. I am supposing I have access to my lab results. I called the office back to have the doctor make sure it was MY chart he was looking at because he mentioned a different date when referring to my previous appt. They called back and said no error was made and that if he mistakenly said 24th instead of 21st for my previous appt, it did not change anything. He wants me to bring the bottle next time, again, that would have NO affect on the medication not showing up. Whatever happened, happened after I left the doctor's office that Oct 21st appt. I'm just trying to get to the bottom of this. I do not like it when things don't add up when there's no reason for them not to. I take a MINIMUM of 3 hydrocodone a day so there is ZERO reason for them not to be in my system. It's just not possible. I have no idea where to start. How do you begin to defend yourself against a lab? I know they aren't perfect and mistakes can be made and I'm itching to start trying to figure out just where things run amok. I might add also that my daughter, who is a dialysis nurse in Georgia, I'm in Florida, tested positive for morphine last month at a doctor appt. She doesn't even have access to that drug. I have to do something. I can't just sit and do nothing for 2 months to find out if the urine I left on Monday is going to test ok. It almost feels like I've been wrongfully accused of a crime and my hands are tied and I'm at the mercy of a jury, who got fed the wrong information. Would I be in the wrong, legally, to try to figure out where the mistake was made? Maybe the lab just forgot to input information so it just wasn't there, in my chart results, but could still very well be in the lab report itself. All I know is it is driving my crazy. Thanks in advance for any help or advice I get on this matter.
Carol

REPLY
Profile picture for mkovacic @mkovacic

My name is Sue and I am planning on having a Saphenous Nerve Neurectomy below my knee to eliminate pain caused by nerve compression. I have had two nerve blocks which provided 4-5 hours of pain relief. Any advice?

Jump to this post

@mkovacic Hey - fellow saphenous sufferer, did you have the neurectomy done and how are you today?

REPLY
Please sign in or register to post a reply.