My wife has Parkinson’s disease. Can she participate in a research?

Posted by jameswright @jameswright, Dec 19, 2023

Is there a Mayo number to call for my wife(has Parkinson’s) to participate in a research study for stem cell therapy?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Teresa, Volunteer Mentor | @hopeful33250 | Dec 20, 2023

In reply to @jameswright "Did you receive my reply regarding my wife’s PD onset?" + (show)

@jameswright
No, I'm sorry but I don't see that reply about your wife's onset with PD. If you could post that again, I'd appreciate it.

Teresa, Volunteer Mentor | @hopeful33250 | Dec 20, 2023

In reply to @tsch "It involves alot: he just had a scan looking at ldopa in the brain, upcoming could..." + (show)

Thanks for the additional information, @tsch. I'll have to look this up and see what I can find.

jameswright | @jameswright | Dec 20, 2023

In reply to @hopeful33250 "@jameswright No, I'm sorry but I don't see that reply about your wife's onset with PD...." + (show)

My wife was first diagnosed in Dec 21 with early stage PD. Feb 24/22, she was mistakenly given the contraindicated drug metapropchlomide to treat her nausea, while doing tests in hospital here in BC.
She quickly(within minutes) crashed, resulting in loss of mobility, speech and swallowing. Then dual diagnosed with prescription drug induced Parkinsonism with underlying PD(now stage 5). To this date, speeech, mobility swallowing and pain has not improved with current medications and physio. Psibicylin has improved her pain somewhat. We are seeking an opportunity to be part of a stem cell research program as she remains, emotionally and physically strong and determined.

tsch | @tsch | Dec 20, 2023

In reply to @hopeful33250 "Hello @tsch Thanks for adding to this discussion about clinical trials and studies. If you are..." + (show)

https://www.ppmi-info.org/

jameswright | @jameswright | Dec 20, 2023

In reply to @tsch "https://www.ppmi-info.org/" + (show)

Yes she can participate.

jameswright | @jameswright | Dec 20, 2023

In reply to @jameswright "Yes she can participate." + (show)

Are there any Parkinson’s stem cell research studies
in progress now at Mayo or elsewhere?

sillyblone | @sillyblone | Dec 9, 2024

I know Mayo has been active with trying to find a solutions. The Parkinsons Association has alot of information as well.

stephencbabcock | @stephencbabcock | Dec 14, 2024

http://www.trialsearch.com
There is also a:
http://www.clinicaltrials.gov

You could even contact known Medical Institutions, ie. Cleveland, Mayo, and inquire if certain departments are interested, funding is everything. (Or contact drug producers (manufacturers) on what they are working on).

Perseverance is 50% of survival. The medical world is rapidly changing, Search, search. & Search! Don't give up the fight!!

jaybee51 | @jaybee51 | Dec 14, 2024

In reply to @tsch "University of Indiana has a long term study for people with and without PD. Funded in..." + (show)

I also participated in that one too but dropped out after awhile. Did he get a DATScan and spinal tap yet?

tsch | @tsch | Dec 14, 2024

In reply to @jaybee51 "I also participated in that one too but dropped out after awhile. Did he get a..." + (show)

He had spinal tap and skin punch but was not told results. He had some kind of scan, not sure of DAT type. He does not have PD as far as we know, though he has some precurser symptoms. He is a five year participant.