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Anybody have trouble regulating body temperature after COVID?

Posted by da69 @da69, May 29, 2024

Has anybody else had trouble regulating their body temp after getting covid?
Am i crazy here?.....But i am always hot then cold....Or cold then i get hot.
On with sweatshirt....Then off with the sweatshirt..........
I can never seem to find the comfortable spot.

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mindygirl62 | @mindygirl62 | Dec 13, 2024
In reply to @moxiel "Hi @mindygirl62 I live in MA, but just had autonomic testing done at the Wentworth-Douglass Hospital..." + (show)
@moxiel

Hi @mindygirl62
I live in MA, but just had autonomic testing done at the Wentworth-Douglass Hospital Portsmouth Outpatient Center. I was referred by a doctor at the Long Covid Clinic at Brigham and Women's Hospital in Boston. It took seveeral months for insurance to clear and then to get an appointment, and it will take a few weeks to get the results. There were four parts to the test, and it seemed to me that the testing was quite thorough. Good luck!

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Thank you! Did they say what doing the testing would do for helping you?

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moxiel | @moxiel | Dec 13, 2024

@mindygirl62
My symptoms are all consistent with dysautonomia, but the specialist that the doctor would like to send me to will only see patients with a clear diagnosis based on the autonomic tests.

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1 reply
mindygirl62 | @mindygirl62 | Dec 13, 2024
In reply to @moxiel "@mindygirl62 My symptoms are all consistent with dysautonomia, but the specialist that the doctor would like..." + (show)
@moxiel

@mindygirl62
My symptoms are all consistent with dysautonomia, but the specialist that the doctor would like to send me to will only see patients with a clear diagnosis based on the autonomic tests.

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Gotcha!

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blessedsista24 | @blessedsista24 | Dec 14, 2024
In reply to @patrickterri "I’m 67 and have had hot flashes for years. I’m a female. Since covid they’ve increased..." + (show)
@patrickterri

I’m 67 and have had hot flashes for years. I’m a female. Since covid they’ve increased tremendously. I now sleep naked with a ceiling fan and 66 house temp. Hot cold hot cold is constant. I feel your pain.

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Exactly..
So many things happening after covid for 23 day's.
Neuropathy and vestibular Hypofunction are the worst 😫.
But Dr's want say long covid . I'm only 59
Haven't worked on a year because of unsteadiness. And bloodwork is a mess but they say and joke don't show my oncologist..
I don't have one 😕
And it's not Bppv.
I'm trying to get into Mayo

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1 reply
patrickterri | @patrickterri | Dec 14, 2024
In reply to @blessedsista24 "Exactly.. So many things happening after covid for 23 day's. Neuropathy and vestibular Hypofunction are the..." + (show)
@blessedsista24

Exactly..
So many things happening after covid for 23 day's.
Neuropathy and vestibular Hypofunction are the worst 😫.
But Dr's want say long covid . I'm only 59
Haven't worked on a year because of unsteadiness. And bloodwork is a mess but they say and joke don't show my oncologist..
I don't have one 😕
And it's not Bppv.
I'm trying to get into Mayo

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What is 23 days mean? Sounds like you need new doctors. I’m sorry for what you’re going through. I hope you can get into Mayo.

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1 reply
blessedsista24 | @blessedsista24 | Dec 14, 2024
In reply to @patrickterri "What is 23 days mean? Sounds like you need new doctors. I’m sorry for what you’re..." + (show)
@patrickterri

What is 23 days mean? Sounds like you need new doctors. I’m sorry for what you’re going through. I hope you can get into Mayo.

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I had Covid for 23 days in 2021 it was Horrible.

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mspaminreno | @mspaminreno | Dec 14, 2024
In reply to @andrewrothfl "I have had Covid 3 times and long haul issues on and off for years. This..." + (show)
@andrewrothfl

I have had Covid 3 times and long haul issues on and off for years.
This is what happens to me generally a couple of times per year.
I first get a cough and loss of appetite. After the cough for several weeks and less appetite the unregulated body temperature begins and can last from a few weeks to 3 months.
It just came back with a vengeance, first time in over a year. I thought I was finally over it. Now I can start sweating for no reason. I sweat profusely; cheat, back, face and head. It’s so bad I need to towel dry my hair and a new shirt. I sit in a bathrobe or with only a towel over my upper body when home.

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I'm 82 years old and have been battling Long Covid for just over 4 years. My mitochondria has been damaged thanks to Covid and my immune system doesn't work very well so I catch everything that comes along.
Most recently, I caught one of the flu bugs and it causes drenching sweats in addition to 'the cough from hell'.
And, regarding body temps, I learned that our nervous system governs our body temps and so, yes...I feel the cold more that I once did; same situation with the summer heat. My best to all.

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tomfg | @tomfg | Dec 29, 2024

Hello, new to this website and was looking for info on others' experiences with thermostat issues (and also mouth sores, will do that on another thread). Was hospitalized with serious Covid in December 2020 and was on oxygen for months but fully recovered except for two weird ongoing issues, which hit a couple times a year -- until recently when two bouts occurred in a week. Main symptom is chills (temperature drops to 95s, 96s - my normal is low - 97.4). Occasionally feel really warm. But then will feel normal. Symptoms are periodic, can last 1-2 days. Has anyone found any remedy - I see the nicotine patch etc - or just ride it out.... ?

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