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Fibromyalgia pain: Let's connect
Fibromyalgia | Last Active: Dec 4 9:55am | Replies (1335)Comment receiving replies
I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can't think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don't know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?
Replies to "I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions...."
We do have a lot of the same stuff, @sandytoes14. It took me a long time to mentally sort through whether my heat issues were hormonal or not. It was about 4-5 after menopause when that all started. I was frustrated with no one having any answers or suggestions for my misery. Previously, I thought maybe I had gotten away scot-free without menopausal hot flashes, mood swings, etc. This was way worse. >:-( Almost like a chemical burning sensation under my skin. Then this year, I began to have an aversion to touching cold things, even a frozen juice can. This year my Reynaud’s came galloping back, after a hiatus of several years. Didn’t miss it. However, I perceive the two issues (cold hands/feet) as likely separate things from the Reynauds, but I dunno.
@oregongirl, I have never seen such amazing dispensaries as in OR and WA. They are indeed on every corner.
I’m in MA, and we’re not as advanced and free-wheeling with the Taj Mahal-like dispensaries. But I’m facing a possible move to Virginia, the DC area, and VA DOESnt even have medical.
Just imagine if we did not have to take the killer drugs. And, that the pain literally seems to go away. I know it doesn't but when you are relaxed it is a better feeling. You can deal with the pain as you are getting a good night sleep.
I did not sleep a wink last night. Having trouble relaxing my entire body. I’ve read explanations for muscle weakness and fatigue in FMS, and it involves depleting your energy supply on a cellular level. I’ve found a product that helps replenish that precursor substance, D-Ribose, which is a 5 Carbon sugar, (C5H10O5)which has kept me upright and walking on vacation activities and such, but I’m starting to feel kind of overtired...
I've heard of D-Ribose but never tried ,thanks will start on it.I didn't sleep either last night
Yesterday s AO came in for infusion therapy. So it is treatable
Hi Jen!
I could not tolerate Cymbalta or Lyrica so other than something to get into deep sleep was all the meds I took.
Fibro fog is one of the biggest things, other than pain, that patients complain about. Not only do I forget words and lose a train of thought, I forget complete things ever happened. So, you are not alone. I think it happens to everyone at some point.
ronnie
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Hi @doxyjune I have not gained any weight from Cymbalta or Lyrica. My thyroid is normal. More than 10 years ago I had gastric bypass because I was diagnosed with a metabolic disorder. Like you, I gained weight no matter what. I was diabetic too. I lost 135 pounds and have kept it off. I'm sorry to hear you have tremors too. Have you ever been to a neurologist about the tremors?