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Fibromyalgia pain: Let's connect

Fibromyalgia | Last Active: May 9 4:21pm | Replies (1332)

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@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can't think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don't know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

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Replies to "I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions...."

Hi lioness here In so sorry for what your going through.I was diagnosed with Fibromyalgia in 1998 in Pa.I 11of 18 presure points There was a support group a the hospital One thing they told me was do isometric exercises for your arms@legs this helps to remove the tight muscles,since then I've found a Tens unit does this ,this will help you.Burning up I still have this keep your body cool,take cool showers or just wring out a cool washcloth and wear light weight clothing.Find a rheumatologist if you haven't.I take Tramadol and one Aleve at the same time.Hope this information will help you.one more thing do light exercising or water aerobics ,hard exercise will hurt you.Good luck

Crazy isn't it c
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Hi randee, I am also a newbie. I got a bundle of problems 20 years ago. Thyroid and adrenals failed and I could not even walk. My legs were so weak that i collapsed. I was only 40 when this happened. I am 60 now. Your story sounds a bit like mine. Most of my pain is numbness and tingling that causes weakness in my calves. I too have to take Norco and Ultram to numb my legs so that I can function at 20 percent of what I used to. I know 100% what u mean about doctors. Here on Long Island 99.9% of pain doctors won't see me due to the opoid epidemic so my mother's dr. in the city writes me the pain meds. But she doesn't understand what is going on. I was given a diagnosis of fibro about a year ago from a rheumatologist -- she ran lots of blood work and after she discounted lupus and MS she didn't want to see me again???? They write u off very fast these dr's. I also have extreme insomnia and I am exhausted most days leaving me almost house bound and I have no one to help me. When I feel good I have to do as many errands as possible or I won't have food here. I have 2 little doggies and they are my life. But I worry about getting them healthcare if they need it. I don't know how u can live without the pain meds. Sorry about your mom and son and everything else but I wanted to let you know that you are not alone. No one asks for any of this - I read that fibro patients have bad childhoods. I know I did, perhaps the stress from that contributes to a weak constitution. I know I was on a diet at age 10 and could never lose weight due to a weak thyroid. Who really knows?

Foxyjune...don't give up. I am so sorry you have this affliction. If you are a member of a church, you CD get help. You can order groceries on line. Call Sr center for meals on wheels. They bring weekend food with Fri delivery. You are not asked to pay but it helps them if you do. I wish you well I will pray for you right now.

Hi Sandytoes14, I was given cymbalta by my psychiatrist but an endo was trying to transition me onto synthroid from natural thyroid - which was a big bust for the 4th time so I haven't tried the cymbalta yet. I am afraid of gaining more weight. Since my thyroid failed I have gained alot of weight. I can't lose weight cause it is 100% hormonal. Have you gained weight from cymbalta? I was told not to try lyrica as that was also a weight gainer. I could literally starve myself but gain water weight. There have been times when I haven't eaten anything due to a flu and I don't lose weight. Now my endo won't even return my phone calls because I could not stay on the synthroid. It is really sickening with what goes on with doctors. I would do anything to ease my thyroid / fibro symptoms but about 10 percent of thyroid patents can't metabolize synthroid. Oh I also have tremors like you in my legs and hands. I don't know what to do. I have bought hemp gummies but not sure if they are doing anything.

I've been on Cymbalta for over 10 years, and had not noticed that it promotes weight gain. But then again, I've gained 20 pounds in the last year, which has made everything more difficult. Maybe it IS the Cymbalta, or the other combinations of meds that I use to get a measly 5-6 hours of uninterrupted sleep. I suggested that my PCP and my Rhuemy (who has been useless) sit down together and talk about a comprehensive plan, but that was vetoed. My hands and legs always shake and always have. Didn't know it wasn't normal. The Gummys won't hurt even if they don't help.

When will they approve Marijuana through out our Country. It is the drug companies holding it back. I move from Oregon where there is a shop on every corner. The first time I went in there, I saw more SENIOR than younger people. They separate the medical from the Recreational. The medical is stronger. My friend who has MS has almost a normal life. Actually two friends, they transferred from Calif to Oregon so her could get the medical Marijuana.

I agree. I live in N.Y. where its been legalized but its a long waiting list to actually get to see the Dr. Its also nearly unaffordable. I wish the insurance companies would pay for medical marijuana. We all know its better for us.

Oh yes. Kradom

I agree 100 percent. I think medical marijuana would help, not hurt. In NY it is hard to get it but I will start the process and maybe I will get lucky. Thanks for your input.