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Fibromyalgia pain: Let's connect

Fibromyalgia | Last Active: Feb 26 8:41pm | Replies (1327)

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@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can't think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don't know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

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Replies to "I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions...."

Well, I am not alone.

I do exactly the same, @sandytoes, right down to the mid-sentence thing. I seem to have lost my ability to retrieve words I’m looking for.

@lynneb2110 If I had a nickel for every time I lost my words I'd be rich!

I find I can't retrieve the word I want ,it makes me so mad since I've gotten older it's getting worse .It must be a part of fibromyalgia ,dreaded dis-ese

Have any of you ever had horrendous heat intolerance? It has been so bad for about 6 years now. I’d sweat until my hair was dripping, face bright red. It wasn’t hormonal, we tried to fix it with store-bought hormones but no luck. I’m now also having terrible problems with cold hands and feet. Even when I’m hot.

Yes, I can heat up instantly. Middle of the night, or shopping just anytime. I am 75, it is not hormonal. It is RA

You are not alone. I have dealt with fibromyalgia-symptoms most of my life, 77 yrs old.

I heat up or get cold alot has to do with climate Back east the cold made me hurt if I didn't wear enough clothes,out here now when I get to hot I hurt so I have to wear the proper clothes and if my body is to hot I take a cool shower so alot has to do with weather the barometer also.It's 84 here and I have heavy socks on my feet as I also have cold hands and feet.Fibro does this also as I have O.A.so it's a toss up I think.Guessing game but I do believe it's alot of the climate as I write I'm sweating with cold feet ,go figure?

@lioness, Osteo Arthritis isn’t systemic, so much as joint tissue wearing out and/or rubbing unnaturally, so I don’t know that that’s a likely cause, but the cold hands and feet I believe are typical of fibro. I could think I was cold, because of the feet especially, and put covers on at night. Then I’d immediately be WAY too hot, not even normal heat, like an unpleasant burning hot, and this would keep me flapping covers on and off forever. I finally figured out the need for socks even if it was rather warm. And otherwise, a temp that was normal for everyone else had me sweating with my hair wet, even when sitting still. NOT MY BEST LOOK. :-/

Hi, I am newbie here, I was dx with FIbro in 1996 went on disability Jan 1997. My symptoms include, 21 tender points, I am in pain 24/7 365. At first the pain was truly unbelievable, I didn’t know anyone who didn’t “look” sick could have such horrible pain, my muscles tighten, I feel like I am gonna burst into flames at any given moment. My blood vessels will break because my muscles get so tight from the horrific pain. As a result I have been put on every pain medication out there only to put me in a state of bein a zombie, or in the hospital due to interaction from medications from a pain clinic results no in a overdose of meds. That will never happen again, not in my lifetime. I found Norco 7.5/325 and while I need to take 4 every 6 hours until I am way ahead of my pain that would be under a 7-8. I will go to 3 a day. But once I get behind, which happens only when a dr will retire and in their place is a dr that refuses to give Norco, I am 65 and never have abused any medications. I have always asked for a contract and blood test to keep my dr honest and myself to others. Right now I have had to relocate to care for my mom in law who has Alzheimer’s and mostly blind. So to get a Dr has been a challenge because as I was told today that one dr found my issues to complicated for.him. Really? He needs to walk in my shoes, he’s the dr. So I have zero medication and have had zero since October 2017 when another dr retired. I have Lupus, FMS, MPS, insomnia, aorta anurisium, PTSD. ADD, major depression, panic and Anxiety disorder, to the point now that I’m afraid to leave my home by my self. Thank you Drs very much. Now my pain level is off the charts for reals, I’m thinkin I will burst into flames at anytime. I didn’t ask for any of this in my life. I was a doer, always on the go. Now I can’t find a dr to help me so I will go to the county mental health office.
And I am double covered. I don’t understand it. The medication for my emotional and mental health is due to our younger son at the age of 25 being murdered in our home and me findin him alone. That was almost 10 yrs ago this yr November. And now it is like yesterday all over again. That day plays over and over daily now because I need a referral from my primary dr to see a shrink. And no dr is takin me. How fun.... drs aren’t drs anymore. Most just in it for the money and the ones who really care retire early in their career. I’m lookin here below it says pet? A bird? Yes We have 3 digs, one cat, 2 parrots and salt water fish 50 gallons! It doesn’t help, they are just more children to love and care for. That don’t move away at their adult life.
Anyway
Thanks for readin.