Fibromyalgia pain: Let's connect

No ... Please don't mix meds with alcohol. It can have a fatal outcome. Do you have a good doctor? I have had fibromyalgia for 36 years. Some yoga moves help, but hard work does not. Even cooking and baking causes a lot of pain in my case. I eat gluten free, no additives, colors, or pesticides. I was told all night shade vegetables could add to the problem of arthritis. It is a dilemma. Taking a tub bath helps to relax muscles. Calcium supplement also relax muscles. Eight hours of sleep, and rest periods during the day when you just can't take another step is helpful as well. Doctor's do not advise patients of practical or alternative methods as a rule. Perhaps a wellness clinic might.

Yes, Dr. Weil has good ideas. I have been doing this type of breathing for many years. It is similar to yoga breathing.

@wandamiller I love them too. I eliminated them from my diet and didn't notice any difference. I added one at a time in then took it back out. Bottom line...they didn't seem to have an effect on me.

Hi r ... I read some very interesting info re fascia. I will look up my notes and forward the links to you all. Ciao, Lucia

I take magnesium for dancing lefs and Charlie horses. I do love sugar but am trying to make an honest effort to stay away from it. I pay for it every time I eat it. Knowing that im not alone and having a support arena helps too. Thank you.

Hi again, I am sorry to read that you have multiple problems. I also have a combination of maladies. I will have to take up these problems with my new doctor.
To the lady who started w fibro after her husband died. It is like a traumatic experience, well it is, that's why I mentioned earlier about having had extreme stress factors. Shock brought on my fibro. Good luck to every one.

I have just recently started taking Tumuric 1300mg and it has done wonders for the all over pain. However, I have osteoarthritis in my hands that is very painful and I take Bayer Back and Body with Tramadol and that helps tremendously. I know we have to keep moving but there are days where that is almost impossible but I still try. I use Bio-Freeze on my back and hips, heat on my hands and back - I just keep trying different things and go and do as much as I can.

<br><br><br><br><br><br><br><br>Desperate, depressed, and feeling like I’m dying. That sounds like me!<br>One book on pain management has a meditation on pain “It’s just pain”, but<br>Sometimes I feel like screaming because it hurts so much everywhere.<br>I don’t take any pain medication other than aspirin with caffeine.<br>It seems like anytime I ask for pain meds, my doctor puts me off.<br>Maybe it is time to seek out a pain management something.<br>Robbinr<br><br> <br><br><br>

hello all. i am asking about fibromyalgia also. can everyone w/ fiber please describe (in detail) their symptoms and pains (where, and with what severity), how long you've had it, and what are your medications? also, does anyone also have ptsd?

i have been suffering for approx 1 1/2 years now, with multiple potential diagnoses, finally settling on fiber it seems. i find it hard to believe that fibro can cause me SUCH intense pain, so consistently. it is often in my joints and very often deep in my bones. my whole left leg feels like it's broken sometimes! femur, hip joint, knee joint, shin...

i have been taking sulfasalazine and cymbalta- am currently upping the cymbalta to 90mg/day and have cut out sulfa.
i have been tested for seemingly everything- am i missing something???? can fibro REALLY be this debilitating????

i am a shell of the person i once was. maybe 10-20% of what i used to be.

In response to nakee99's request for a description of Fibro symptoms: I was diagnosed with Fibromyalgia in 1995. I had sudden onset after a car wreck in 1991 - I was an older new mother, was trying to start my own contract writing business, and worked a full time job. I stopped sleeping with any regularity after my son was born (most new parents suffer from sleep-deprivation, mine just didn't go away even after my son slept through the night.
The onset was debilitating overall pain, extreme fatigue, and increased depression.
I still exercised, ate a good diet, and worked scads of hours.
When diagnosed, I started on Ambien (5mg), Percocet as needed, and a variety of arthritis meds that have since been pulled from the market. I don't remember the names of them all, but they really helped with general pain. Too bad that they were linked to stroke...
Twenty-three years after the diagnosis, I am still experimenting with what helps and what doesn't.
I have lots of aches, I injure easily, I now take 10 mg of Ambien and 50 mg of Seriquel to sleep, 60-90 mg of Cymbalta, and Adderall to get me going in the morning. It sounds like a Paul Simon song, I know.
I went to a Fibro-and-Fatigue clinic for about two years starting in 1999 - Very Expensive. They had a concoction that was administered in a intravenous drip - lots of vitamins and lidacaine from what I remember. It was a long drive, took an entire afternoon every two weeks, and I would wind up with violent diarrhea after the infusion. The one good thing that I got from the clinic was (remember this was many years ago) an epie-pen with HGH - the real stuff, not a precursor. I used that for two years, with a remarkable cessation of pain, and much greater energy; but then the Doctor I was seeing at the clinic left with differences of opinion after the clinic changed hands - she told me that they had started using inferior supplements, and wouldn't condone the use of HGH.
So now, I do yoga, tai chi, take my Adderall in the morning and my sleep meds at night.
I often have overall pain that responds to large doses of Aspirin, but it upsets my gut. I recently tried Tramadol, but it gave me a blinding headache and then I hurled all night, so that's not going to work.
Because Fibromyalgia is such a bucket diagnosis, and the symptoms are the general symptoms of almost any onset illness, I think it is important to determine what started the cycle - a bug bite? a trauma? And I know that good sleep, not drugged sleep, is a primary factor on how you are going to feel. Also, you Have to Keep Moving. It all goes to heck if you don't! My mantra is; "It's just pain, you are going to hurt anyway, might as well be pain for a reason."
I wish there was a magic bullet, but I haven't found it yet. Now, HGH is highly controversial, too expensive, and virtually impossible to get (and know what you are really getting.) I know that there are "blood-doping" medications out there that work to make competitive athletes perform better and recover faster, I don't understand why such meds can't be offered to people really struggling with having enough energy and well being to make it through the day. Even if there were a trade-off between longevity and use, or even a potential cancer risk; I'd rather be able to live fully than continue to drag myself through day after pain-filled day. There you go, that's my story and I'm sticking to it:} Many Regards, Robbinr