Multiple Sclerosis (MS) - please introduce yourself

Yes. Low income a cleaning and cooking. It’s wonderful. I have so many issues and am relating to others finally in this format. My hands are quite crippled and I have trouble navigating the site. I’ll just keep trying thanks you guys

I’m just discovering that there is specific pt for ms. I go onlin and do some stretches and relaxation exercises. I also am a strong proponent of meditation.

Hi yulander I’m Annie. I too used to be a healthcare professional. I hope to make friends with others with MS. I’ve never met anyone withMS

My name is Annie. I have MS but don’t have a clear diagnosis of what type

Hi, @asquires - have you met @brightwings @grammadoro @brightwings @babette and @johnbishop? They may have some input about your diagnosis of MS without a clear diagnosis of type as of yet, and may also have some thoughts about the stretches, relaxation exercises and meditation you talked about practicing.

@legalese1972 @vivib and @bumble81 - how are you doing lately?

@srountree3006 - what happened with the MRI you were hoping to have?

Hi @asquires -- Here is a workbook I found online that you can download and print that may be helpful for you. I think it's really great that you are proactive with your health.

Everybody Stretch: A Physical Activity Workbook for People with Multiple Sclerosis
-- https://mssociety.ca/en/pdf/EverybodyStretch.pdf

My name is Annie. I was diagnosed with MS five years ago. Somehow I Lost my diagnosis. I am almost bedridden 24 hours a day. My neurologist confirms that I have MS but not which type.
I have pins and needles all over my body. Add exhaustion all the time. My muscles have aytrophied to the point that they don’t support my weight.I have neurological pain, muscle pain, and joint stiffness. It feels like there’s sludge in my bloodstream.

My neurologist has not prescribed or referred me for treatment. The pain doctor she Referred refused to see me because my hands are too crippled to write. I’ve been told that there is nothing wrong with me in the past. I’m thinking about enlisting the aid of an anesthesiologist.

Why isn’t she Helping me? Should I just go to the ER? It’s very hard to hang out with the pain.

I meditate a lot and also try to move the muscles. My physician just gave me a Medrol dose pack. It helps so much with inflammation. My pt knows nothing about MS.
My Dr. is referring me to a better PT. This pattern repeats over and over. I can’t get the help I need where I live.
I’m hoping for an appointment with the Mayo Clinic.
Each day the pain gets intolerable .
Any advice?

Hi, @asquires - that sounds frustrating to not be getting the help you feel you need with your MS. If you are interested in going to one of the Mayo Clinic locations for a second opinion, you can do that online or via a phone call with this link
http://mayocl.in/1mtmR63.

Glad you've met @johnbishop. I'd like to introduce you to another Connect member who was treated at Mayo Clinic for another neurologic condition, @jenniferhunter. She may have some thoughts about getting a second opinion in general and about her care at Mayo Clinic.

Is there anything that would prevent you from going to Mayo Clinic or another major university hospital to get more input on the specifics of your diagnosis and treatment available, asquires?

The Mayo Clinic denied me. After 15 years of constant pain and misdiagnosis many surgeries I just don’t want to continue anymore. My neurologist refuses to help me. My physician wants to help, but the university doesn’t take my insurance. I’m just in bed. My hands are so crippled I can’t use the remote . I have a great dog but that’s really all I have. I’ve done lots of research and there are lots of different options for me. I know it but can’t get help. I can no longer use the internet. No way to leave my apt. Thank you for responding.

Ty so much. It’s exactly what I want to do! My physician started me on carbamazepine. What a relief! I’m now searching for an MS specialist in Colorado.