My name is Annie. I was diagnosed with MS five years ago. Somehow I Lost my diagnosis. I am almost bedridden 24 hours a day. My neurologist confirms that I have MS but not which type.
I have pins and needles all over my body. Add exhaustion all the time. My muscles have aytrophied to the point that they don’t support my weight.I have neurological pain, muscle pain, and joint stiffness. It feels like there’s sludge in my bloodstream.

My neurologist has not prescribed or referred me for treatment. The pain doctor she Referred refused to see me because my hands are too crippled to write. I’ve been told that there is nothing wrong with me in the past. I’m thinking about enlisting the aid of an anesthesiologist.

Why isn’t she Helping me? Should I just go to the ER? It’s very hard to hang out with the pain.

I meditate a lot and also try to move the muscles. My physician just gave me a Medrol dose pack. It helps so much with inflammation. My pt knows nothing about MS.
My Dr. is referring me to a better PT. This pattern repeats over and over. I can’t get the help I need where I live.
I’m hoping for an appointment with the Mayo Clinic.
Each day the pain gets intolerable .
Any advice?

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