Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

I am 78 so I had heart issues identified first 51 years ago.

I wish I didn’t have it!

My cousin had heart issues. It didn’t stop him from traveling by car long distances for quite a while.

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@windyshores

https://www.uptodate.com/contents/nonsustained-ventricular-tachycardia-clinical-manifestations-evaluation-and-management
Risk of NSVT for cardiac arrest apparently is when it is accompanied by structural heart issues like valve problems.

@gift440 I have afib with rapid ventricular response with heart rate up to 200. That is why I asked you for more info.

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I see. I am not tracking it. Although I could on my Apple Watch, I’d rather not get anxiety about it.

Do you have a Linq 11 loop a device in your heart to monitor it in real time and see what is going on ?

He told me condition was worse or dangerous because in the lower chamber( s?. Scheduled surgery to put Linq device in 2 days later. I report symptoms and dr reviews as they occur via my Iphone and Medtronic monitor in my heart.

He talked about a pacemaker and defibrillator . I went because I was tired all the time and felt faint a lot for years. Have Ehlers Danlos and was told they are testing whole families that have that because can affect aorta.

My grandson a college junior fainted playing inter-mural football recently. the cardiac the testing Found he does have irregular heart rhthym. He’s in great physical condition. In premed.

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So worrying. I have developed Arrythmia along with RBBB.

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@gift440

I see. I am not tracking it. Although I could on my Apple Watch, I’d rather not get anxiety about it.

Do you have a Linq 11 loop a device in your heart to monitor it in real time and see what is going on ?

He told me condition was worse or dangerous because in the lower chamber( s?. Scheduled surgery to put Linq device in 2 days later. I report symptoms and dr reviews as they occur via my Iphone and Medtronic monitor in my heart.

He talked about a pacemaker and defibrillator . I went because I was tired all the time and felt faint a lot for years. Have Ehlers Danlos and was told they are testing whole families that have that because can affect aorta.

My grandson a college junior fainted playing inter-mural football recently. the cardiac the testing Found he does have irregular heart rhthym. He’s in great physical condition. In premed.

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@gift440 yes NSVT is different from SVT! I am glad that you are having what seems to be good care.

One of my kids may have Ehlers Danlos and nearly faints a lot, often in the heat. Their atria are enlarged and they are just being evaluated. In their teens their resting heart rate was 140, discovered in a physical education class. (I have afib, the common cold of cardiology! My high heart rate is SVT though.)

ps very wise to avoid too much tracking due to the anxiety it can cause!!

Would you feel reassured with a pacemaker and defibrillator? Are you thinking of going ahead with that?

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@windyshores

@gift440 yes NSVT is different from SVT! I am glad that you are having what seems to be good care.

One of my kids may have Ehlers Danlos and nearly faints a lot, often in the heat. Their atria are enlarged and they are just being evaluated. In their teens their resting heart rate was 140, discovered in a physical education class. (I have afib, the common cold of cardiology! My high heart rate is SVT though.)

ps very wise to avoid too much tracking due to the anxiety it can cause!!

Would you feel reassured with a pacemaker and defibrillator? Are you thinking of going ahead with that?

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Yes, I am going to have both when the doctor orders them.

I dismissed near fainting for years. Have only had two weeks to adjust to having a serious heart condition.

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@gift440

Yes, I am going to have both when the doctor orders them.

I dismissed near fainting for years. Have only had two weeks to adjust to having a serious heart condition.

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@gift440 it is a lot to absorb and handle. Keep us posted if you feel it is helpful!

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@gift440

I have had near fainting light headed symptoms for decades .
My OBGYN heard something and had me referred to heart Dr who had me wearing a heart monitor while I was 6 months pregnant. I was 27.
There were complications with C- section delivery ( Ehlers Danlos) . I stayed in hospital over 3 wks . No further follow-up was for heart testing came after.

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I think you might learn more if you were to wear a digital device like a smart watch and have it record your HR and an ECG when you feel the faint coming on...if you can manage to set your watch in time. Or set the watch to record continuously, but live with having to charge the watch twice a day or more often due to the large draw on the battery. Or, if it is becoming more intrusive with time, and more worrying, have a Loop Recorder implanted and it will monitor you for signs of arrhythmia 24/7.

Consult a 'great' electrophysiologist about this.

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@gloaming

I think you might learn more if you were to wear a digital device like a smart watch and have it record your HR and an ECG when you feel the faint coming on...if you can manage to set your watch in time. Or set the watch to record continuously, but live with having to charge the watch twice a day or more often due to the large draw on the battery. Or, if it is becoming more intrusive with time, and more worrying, have a Loop Recorder implanted and it will monitor you for signs of arrhythmia 24/7.

Consult a 'great' electrophysiologist about this.

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I have a loop recorder implanted 10 days ago, medtradata

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@gift440

I have a loop recorder implanted 10 days ago, medtradata

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Great, and you'll soon be advised, or perhaps you can read the results yourself, of any arrythmia that you might have, or even a heart moving between two morphologies, or even three. For example, it's not unheard of for a heart to go between flutter, AF, and PACs.

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@dalebout123

I am having the same sort of experience. All my test come back telling me I have no problems with heart, lungs, or vascular area.

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I have one more test coming up on December 3rd -- an overnight sleep apnea test. For the last two weeks I have kept a journal of my pulse and oxygen levels. Take the readings at various times -- even when I awaken at night. Other than the last two nights when I inched the oxygen level up a bit. I was wearing the oxygen with no impact on my levels for a week and a half. I was consistently between 90 and 95. Since I inched up a half measure from the level one, my readings have gone up to between 95 and 98. I still fight lethargy and what I call fuzzy headedness.

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