Apical Cardiomyopathy

Posted by mistymopps3 @mistymopps3, Oct 13, 2016

I have apical cardiomyopathy which I believe is quite rare. My wall thickness is 1.34cm. Can anyone tell me how bad this is or whether it is just a bit thicker than normal. I have no obstruction. The thickness hasn't increased since diagnosis 3 years ago

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Thanks Pat. I wonder if that's why the doctors in A&E were so concerned and insisted that I saw a cardiologist before I could go. She came in at 10 pm and said it's OK you can go now. No explanation but now I'm thinking that A&E doctors perhaps over-reacted. I am really stressed out about the driving licence as I can't do without it. I've voluntarily given up my C1 bit which allows me to drive my horsebox. I can re-apply for that if I get to keep my ordinary licence. At the moment I'm able to drive pending medical enquiries but I can't make too many plans as a letter in the post tomorrow may change everything. My cardiologist has to complete a questionnaire in support but arrhythmia which I had in A&E is taken very seriously I understand from a driving point of view (my pulse was irregular but I had been out in the sun stupidly on perhaps the hottest day of the year) Actually I feel better just typing this out and telling you - hope I'm not burdening you with it.

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I've signed up to the webinar on 2nd November. I hope I've done it OK. It did say internal error but I was still able to go on and register

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@mistymopps3

I've signed up to the webinar on 2nd November. I hope I've done it OK. It did say internal error but I was still able to go on and register

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I checked. You are registered successfully 🙂

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Hiya Misty. I'm sorry I didn't respond sooner, I've been pretty busy lately, but when I seen Colleen's post I wanted to come on here & let you know your not alone. I was diagnosed with Apical HCM Non Obstructive too. I also have trouble climbing stairs, exhaustion, the heat, or the Cold. I end up with chest pain, and trouble breathing if I climb stairs, and I have trouble breathing in the heat. I've noticed that I have swollen legs as well, usually it's limited to my left leg, but sometimes my right leg swells. I was first diagnosed with it because I was waking up at night with severe chest pain, and felt like I was suffocating, I'd hear wheezing in my chest with a snap crackle pop sound, and I'd have to sit up to be able to catch my breath. It still happens at times, It's pretty horrible. 🙁 My Cardiologist told me I didn't really need any new medications for my HCM, he said that the Metroprolol is the best thing for it and I was already on that. But one of my local Cardiologist increased my dose of Metroprolol cause the chest pain I've had at night has increased in frequency lately. So he prescribed me an extra 50mg of Metroprolol to take at night before I go to sleep. Unfortunately we are tight on money & I ran out of those pills. 🙁 So now I gotta wait til Lee gets off of LayOff and gets his first paycheck from going back to work before I can get more Metroprolol. Anyways I hope everything turns out ok with your 24 hour halter monitor! *hugs*

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Thank you @PatMattos and @Sensation for answering my virtual "page". It is so good to know that I can rely on you to be there to help out a fellow HCM-er. #gratitude!

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I have apical HCM but I am a HOCM with mid-ventricular obstruction. I also had an apical aneurysm which was resected during my apical myectomy. I am not sure if it is true to say that apical HCMers do not have obstruction.

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It is true. As Vivian says, having apical HCM does not automatically mean you do not have obstruction. Everyone's anatomy is different. You can certainly have apical HCM and have obstruction. It is highly individual.

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