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Living with LPSVS (long post-COVID vaccination syndrome)

Posted by sandtoes @sandtoes, Jan 11 10:17am

Has anyone experienced long-covid symptoms from the vaccines. I have been searching for 10 months now for the cause of my severe fatigue. I have been sent to an ENT, a cardiologist, a hematologist and undergone so many tests/scans. My doc told me a few days ago that he is stumped. No idea. Come back in a month. I pace myself to get through a day. Is this LPCVS? Is there something to do besides pace oneself? Should I ever get another covid vaccine?

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jvalentine9 | @jvalentine9 | Nov 3 9:21pm
In reply to @spittendrigh "Yes. I've had Covid twice, LC all along. Various vaccines and boosters boosted LC symptom,. Dramatically,..." + (show)
@spittendrigh

Yes. I've had Covid twice, LC all along. Various vaccines and boosters boosted LC symptom,. Dramatically, at least until I stopped having them.

Ironically Covid itself was mild. Mar 2020 first case.
Substantially better now, but not 100%

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How long did it take you to feel better after the boosters? I was finally getting better from LC and had a booster. Have never been so ill since that booster (shot #5). 9 months in and just want to get past it.

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rsteven | @rsteven | Nov 4 6:42am

Do NOT get another jab. Check out Triple Therapy for LPCVS. There is an excellent clinic in Birmingham run by Dr. Jordan Vaughn: https://medhelpclinics.com/service/long-covid-clinic

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cally0082 | @cally0082 | Nov 8 8:21pm
In reply to @arichards3 "That's a new classification for LC that I haver not heard before. I began experiencing LC..." + (show)
@arichards3

That's a new classification for LC that I haver not heard before. I began experiencing LC symptoms in November '21 after my first (and last) Moderna booster. I have been to Mayo and followed their program. When I posed the "am I crazy to think that my LC was caused by the booster" question, medical professionals at Mayo all responded "we have heard that before". So while there is no proved cause and effect, we are not alone. I feel better, not 100%, but better. You are not crazy and not alone. I have only tested positive twice for COVID, both cases being 'bad cold like' and both at least 6 months after my booster. My symptoms were PEM, Exercise Intolerance, Brain Fog, and a head sensation kind of like dizzy and light headed (but at no time have I fallen or really felt like I was going to fall).

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Hey I have a lot of the same going on as you, for the last 4 years have you found any relief?? And if so what are you doing?? Thanks hope all is well

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1 reply
kellysmail2016 | @kellysmail2016 | Nov 8 8:40pm
In reply to @lkirnbauer "Oh good lord! I’m so sorry you’re suffering so. You mentioned you’re seeing an Endocrinologist, please..." + (show)
@lkirnbauer

Oh good lord! I’m so sorry you’re suffering so. You mentioned you’re seeing an Endocrinologist, please have them test your Thyroid levels. You could either have hypothyroidism or hyperthyroidism or Hashimoto’s. I have hypothyroidism with Hashimoto’s (autoimmune) disease and am being treated with Synthroid. I had brain fog and began gaining weight rapidly. It could make a big difference in your body if you have either of these and are not being treated. Good luck!

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I am seeing the head of EVMS Endocrinology School. I hope he can help. He is best of the best here. I gained so much weight and all I get basically is you are fat. That’s all they see. 125-130lbs is a lot to add to oneself over a short period of time. My Cardiologist referred me. He knows I’m suffering and thinks this guy can help. Thanks and chat soon and fill you in! ☺️

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beachbum | @arichards3 | Nov 10 9:39am
In reply to @cally0082 "Hey I have a lot of the same going on as you, for the last 4..." + (show)
@cally0082

Hey I have a lot of the same going on as you, for the last 4 years have you found any relief?? And if so what are you doing?? Thanks hope all is well

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@cally0082 candidly I can't point to any one thing that I've done and I wish that I could. Every test under the sun locally and then at Mayo Rochester (where I set a personal record for numbers and types of blood tests) and the only finding of all types of tests was from 2 tilt table tests where there was "some indication of dysautonomia". My first tilt table was at home (some indication), second at Mayo (no indication). Mayo's test was negative and Doctors there saw the difference as healing. I've followed Mayo's program of prescriptions, supplements, moderation. Throw in time (it's been 3 years for me) where the body should be working to heal itself and it's impossible to tell. I've even done acupuncture, cranial sacral, and 4 X 4 breathing mediation. I would guess it's just managing my symptoms and knowing what not to do with the biggest thing being not overdoing things. Thus my view of "better not 100%". I certainly wish that medical science would have an ah hah moment and point to something.

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beachbum | @arichards3 | Nov 10 3:54pm
In reply to @rsteven "Hi there… I don’t think the problem is low blood oxygen in the blood. Dr. Vaughn..." + (show)
@rsteven

Hi there… I don’t think the problem is low blood oxygen in the blood. Dr. Vaughn has never suggested this. Whenever an oxygen sensor is placed on my finger, my blood oxygen is normal. The problem, as I understand it, is that the endothelium that lines the capillaries are clogged with microclots, preventing oxygen from being absorbed by the tissues they are meant to feed. Thus, chronic fatigue and a host of other problems. BTW, search for Dr. Jordan Vaughn on YouTube and you’ll find many interviews with him that go into detail describing his work and the “Triple Therapy” he uses to break up microclots.

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@rsteven Apologies if you already answered my question somewhere in this thread. Reads like you are being treated? How does one get started with an evaluation by Dr Jordan Vaughn?

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rsteven | @rsteven | Nov 10 4:02pm
In reply to @arichards3 "@rsteven Apologies if you already answered my question somewhere in this thread. Reads like you are..." + (show)
@arichards3

@rsteven Apologies if you already answered my question somewhere in this thread. Reads like you are being treated? How does one get started with an evaluation by Dr Jordan Vaughn?

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I’m not being treated by Dr. Vaughn. I’m being treated by my family doctor with the Triple Therapy approach used at Dr. Vaughn’s clinic. How to get started? Just phone his clinic, I suppose.

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btomyl60 | @btomyl60 | 3 days ago

Geezus, you have just perfectly described what I have been going through for four months. I have days where I can't get out of my own way in addition to my pain being much worse. Like you I have seen a slew of specialists and I could literally be the walking talking Poster Child for COVID and Influenza A & B Testing. It's beyond frustrating and I have days where I start to get depressed because I have never been the type of person to lie around and watch TV all day and all night. I am so glad that I came to this site to see what type of doctor I should actually see.

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