@matermiracle this topic is dear to my heart. 2 of my children found me during a seizure and I will never forget the look on their sweet faces. They were so afraid. The best thing you can do is educate yourself, family and friends. Be prepared. You will soon learn your patters and warning signs. They are certainly different for everyone. Here are some amazing tools that still help me today. My family practices the plan every other month. Since my recent seizure followed none of my pathologies we had to tweak our plan alittle. But I pray you and your physicians can figure out a great plan to prepare for and prevent any future injuries.
@matermiracle this topic is dear to my heart. 2 of my children found me during a seizure and I will never forget the look on their sweet faces. They were so afraid. The best thing you can do is educate yourself, family and friends. Be prepared. You will soon learn your patters and warning signs. They are certainly different for everyone. Here are some amazing tools that still help me today. My family practices the plan every other month. Since my recent seizure followed none of my pathologies we had to tweak our plan alittle. But I pray you and your physicians can figure out a great plan to prepare for and prevent any future injuries.
@matermiracle this topic is dear to my heart. 2 of my children found me during a seizure and I will never forget the look on their sweet faces. They were so afraid. The best thing you can do is educate yourself, family and friends. Be prepared. You will soon learn your patters and warning signs. They are certainly different for everyone. Here are some amazing tools that still help me today. My family practices the plan every other month. Since my recent seizure followed none of my pathologies we had to tweak our plan alittle. But I pray you and your physicians can figure out a great plan to prepare for and prevent any future injuries.
As a caregiver I am trying to learn as much as possible about the different seizures. It is helpful because my husband has had 1 seizure in 12/2013 and we think the recent ones have been nocturnal. I like his neurologist but I also would like a second opinion. The diagnosis came after doing eeg & sleep deprivation eeg of right temporal lobe epilepsy. The vimpat at 100mg morning and night seems to be working at the moment. But I also work at a nursing home/ skilled facility and find this helpful for some of the resident in recognizing seizures in patients
As a caregiver I am trying to learn as much as possible about the different seizures. It is helpful because my husband has had 1 seizure in 12/2013 and we think the recent ones have been nocturnal. I like his neurologist but I also would like a second opinion. The diagnosis came after doing eeg & sleep deprivation eeg of right temporal lobe epilepsy. The vimpat at 100mg morning and night seems to be working at the moment. But I also work at a nursing home/ skilled facility and find this helpful for some of the resident in recognizing seizures in patients
Thank you for joining the conversation here Sall. Should you wish to consider a second opinion at Mayo Clinic, here are the contact numbers at all 3 campuses http://mayocl.in/1mtmR63
Hello. I am new to this. I recently had an appointment with the Mayo Clinic in Rochester for the Epilepsy I have experience for the last 15 years. I will say that everyone was wonderful and professional. I will say that over the last several years I have been on many different medications and can not tolerate the side effects. The medications I am currently taking - Low dose of Topiramate, Vimpat, and was tried on Briviact - really has me sick. I am dizzy, off balanced, blurred vision and just feel bad. Unfortunately, when my neurologist try to "wean" me off any of the medications, I will have auras or an absent seizure. I feel stuck at this point.
At the Mayo Clinic, they are thinking I may be a candidate for laser ablation. There is a 50-50 chance that it may not work and I will need full surgery. Great odds right???? There is also the chance of memory loss etc. It is scary. I need to work since I am single with a limited support system.
At this point, I feel I have no choice and I am willing to go for it.
Has anyone had the surgery and can share more about it?
Hello. I am new to this. I recently had an appointment with the Mayo Clinic in Rochester for the Epilepsy I have experience for the last 15 years. I will say that everyone was wonderful and professional. I will say that over the last several years I have been on many different medications and can not tolerate the side effects. The medications I am currently taking - Low dose of Topiramate, Vimpat, and was tried on Briviact - really has me sick. I am dizzy, off balanced, blurred vision and just feel bad. Unfortunately, when my neurologist try to "wean" me off any of the medications, I will have auras or an absent seizure. I feel stuck at this point.
At the Mayo Clinic, they are thinking I may be a candidate for laser ablation. There is a 50-50 chance that it may not work and I will need full surgery. Great odds right???? There is also the chance of memory loss etc. It is scary. I need to work since I am single with a limited support system.
At this point, I feel I have no choice and I am willing to go for it.
Has anyone had the surgery and can share more about it?
Welcome to Connect, @stayfree. While it is scary, you sound encouraged that you have an option.
You might wish to watch this webinar on Adult Epilepsy: Common Clinical Issues and New Therapies http://mayocl.in/29ci8kL featuring Mayo Clinic neurologists Jeffrey Britton, MD, Gregory Cascino, MD, Jerry Shih, MD, and Joseph Sirven, MD. Dr. Cascino speaks last about new surgical therapies such as laser thermoablation.
When will you find out if you are a candidate for the surgery? How is it decided?
Hello. I am new to this. I recently had an appointment with the Mayo Clinic in Rochester for the Epilepsy I have experience for the last 15 years. I will say that everyone was wonderful and professional. I will say that over the last several years I have been on many different medications and can not tolerate the side effects. The medications I am currently taking - Low dose of Topiramate, Vimpat, and was tried on Briviact - really has me sick. I am dizzy, off balanced, blurred vision and just feel bad. Unfortunately, when my neurologist try to "wean" me off any of the medications, I will have auras or an absent seizure. I feel stuck at this point.
At the Mayo Clinic, they are thinking I may be a candidate for laser ablation. There is a 50-50 chance that it may not work and I will need full surgery. Great odds right???? There is also the chance of memory loss etc. It is scary. I need to work since I am single with a limited support system.
At this point, I feel I have no choice and I am willing to go for it.
Has anyone had the surgery and can share more about it?
Welcome @stayfree. I to have epilepsy. I am blessed to have great seizure control accept a minor hiccup couple weeks ago.
I absolutely love Dr Jeffrey Britton!!! We finally reach a great control after alittle over a week stay in the epilepsy clinic. They took me off all the current meds, at that time and tried to re create a seizure which helped us get on the right medication for my types of seizures. I now only take 1 medication for control.
Have they been able to diagnose the cause of your seizures?
Personally there have been unbelievably so many different forms of Seizures experienced maybe some could be Grand Mal or Pettie Mal whilst presently there are others which are called Non-Epileptic Seizures along and surrounding unbelievable amounts regularly throughout life.
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@matermiracle this topic is dear to my heart. 2 of my children found me during a seizure and I will never forget the look on their sweet faces. They were so afraid. The best thing you can do is educate yourself, family and friends. Be prepared. You will soon learn your patters and warning signs. They are certainly different for everyone. Here are some amazing tools that still help me today. My family practices the plan every other month. Since my recent seizure followed none of my pathologies we had to tweak our plan alittle. But I pray you and your physicians can figure out a great plan to prepare for and prevent any future injuries.
http://www.epilepsy.com/get-help/seizure-first-aid/seizure-response-plans/developing-my-seizure-plan-101Staying safe
http://www.epilepsy.com/get-help/staying-safe
Symptoms/causes
http://www.mayoclinic.org/diseases-conditions/epilepsy/symptoms-causes/dxc-20117207
Be prepared
Dawn
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2 Reactionsthank you for trying to help i have 2 days till i go back to my gp and 3 days till i'm in hospital.
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1 Reaction@dawn_giacabazi Dawn: What a great tool for anyone with epilepsy! Thanks for sharing this website.
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1 ReactionAs a caregiver I am trying to learn as much as possible about the different seizures. It is helpful because my husband has had 1 seizure in 12/2013 and we think the recent ones have been nocturnal. I like his neurologist but I also would like a second opinion. The diagnosis came after doing eeg & sleep deprivation eeg of right temporal lobe epilepsy. The vimpat at 100mg morning and night seems to be working at the moment. But I also work at a nursing home/ skilled facility and find this helpful for some of the resident in recognizing seizures in patients
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2 ReactionsThank you for joining the conversation here Sall. Should you wish to consider a second opinion at Mayo Clinic, here are the contact numbers at all 3 campuses http://mayocl.in/1mtmR63
The Epilepsy Foundation has an extensive listing and description of the types of seizures that you might a useful resource http://www.epilepsy.com/learn/types-seizures.
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1 ReactionHello. I am new to this. I recently had an appointment with the Mayo Clinic in Rochester for the Epilepsy I have experience for the last 15 years. I will say that everyone was wonderful and professional. I will say that over the last several years I have been on many different medications and can not tolerate the side effects. The medications I am currently taking - Low dose of Topiramate, Vimpat, and was tried on Briviact - really has me sick. I am dizzy, off balanced, blurred vision and just feel bad. Unfortunately, when my neurologist try to "wean" me off any of the medications, I will have auras or an absent seizure. I feel stuck at this point.
At the Mayo Clinic, they are thinking I may be a candidate for laser ablation. There is a 50-50 chance that it may not work and I will need full surgery. Great odds right???? There is also the chance of memory loss etc. It is scary. I need to work since I am single with a limited support system.
At this point, I feel I have no choice and I am willing to go for it.
Has anyone had the surgery and can share more about it?
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Like -
Helpful -
Hug
2 ReactionsWelcome to Connect, @stayfree. While it is scary, you sound encouraged that you have an option.
You might wish to watch this webinar on Adult Epilepsy: Common Clinical Issues and New Therapies http://mayocl.in/29ci8kL featuring Mayo Clinic neurologists Jeffrey Britton, MD, Gregory Cascino, MD, Jerry Shih, MD, and Joseph Sirven, MD. Dr. Cascino speaks last about new surgical therapies such as laser thermoablation.
When will you find out if you are a candidate for the surgery? How is it decided?
You might also wish to listen to this talk by Nicholas Wetjen, M.D., a Mayo Clinic pediatric neurosurgeon https://connect.mayoclinic.org/discussion/what-is-epilepsy-surgery/ He talks about adult and pediatric surgical options.
@dawn_giacabazi and @matermiracle will you join me in welcoming Stayfree?
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1 ReactionWelcome @stayfree. I to have epilepsy. I am blessed to have great seizure control accept a minor hiccup couple weeks ago.
I absolutely love Dr Jeffrey Britton!!! We finally reach a great control after alittle over a week stay in the epilepsy clinic. They took me off all the current meds, at that time and tried to re create a seizure which helped us get on the right medication for my types of seizures. I now only take 1 medication for control.
Have they been able to diagnose the cause of your seizures?
Prayers for control
Dawn
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Like -
Helpful -
Hug
2 ReactionsPersonally there have been unbelievably so many different forms of Seizures experienced maybe some could be Grand Mal or Pettie Mal whilst presently there are others which are called Non-Epileptic Seizures along and surrounding unbelievable amounts regularly throughout life.
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Like -
Helpful -
Hug
1 Reaction