← Return to Epilepsy and experiencing different types of seizures

Discussion
Comment receiving replies
@stayfree

Hello. I am new to this. I recently had an appointment with the Mayo Clinic in Rochester for the Epilepsy I have experience for the last 15 years. I will say that everyone was wonderful and professional. I will say that over the last several years I have been on many different medications and can not tolerate the side effects. The medications I am currently taking - Low dose of Topiramate, Vimpat, and was tried on Briviact - really has me sick. I am dizzy, off balanced, blurred vision and just feel bad. Unfortunately, when my neurologist try to "wean" me off any of the medications, I will have auras or an absent seizure. I feel stuck at this point.
At the Mayo Clinic, they are thinking I may be a candidate for laser ablation. There is a 50-50 chance that it may not work and I will need full surgery. Great odds right???? There is also the chance of memory loss etc. It is scary. I need to work since I am single with a limited support system.
At this point, I feel I have no choice and I am willing to go for it.
Has anyone had the surgery and can share more about it?

Jump to this post


Replies to "Hello. I am new to this. I recently had an appointment with the Mayo Clinic in..."

Welcome to Connect, @stayfree. While it is scary, you sound encouraged that you have an option.

You might wish to watch this webinar on Adult Epilepsy: Common Clinical Issues and New Therapies http://mayocl.in/29ci8kL featuring Mayo Clinic neurologists Jeffrey Britton, MD, Gregory Cascino, MD, Jerry Shih, MD, and Joseph Sirven, MD. Dr. Cascino speaks last about new surgical therapies such as laser thermoablation.

When will you find out if you are a candidate for the surgery? How is it decided?

You might also wish to listen to this talk by Nicholas Wetjen, M.D., a Mayo Clinic pediatric neurosurgeon https://connect.mayoclinic.org/discussion/what-is-epilepsy-surgery/ He talks about adult and pediatric surgical options.

@dawn_giacabazi and @matermiracle will you join me in welcoming Stayfree?