Starved for affection/attention

Posted by judimahoney @judimahoney, Mar 27 2:48am

I feel like I am not married anymore.
When I read about what others are experiencing, I remind myself to be grateful, then quickly wallow in self-pity again (but I am taking action and utilizing resources!).
I am experiencing grief over a loss for a person (my husband) who is still here, and still high-functioning in some ways.
It's soul-crushing to not receive the human touch that we all need, when my loved one is right next to me.
When he was first diagnosed I would ask for affection and let him know I have needs; seems like a waste of time now.
I am not just talking about the behind-closed-doors intimacy, but the little things couples usually share like holding hands, a special look and smile.
I asked my husband for a hug today to see what would happen. He started laughing, but did give me a hug that set a record for brevity. Affection and touch seem to make him uncomfortable now. Before this diagnosis I just thought we were having trouble in our marriage.
Coping strategies, counseling, chatting with friends and loved ones only goes so far.
At the end of the day I'm left feeling lonely in my marriage, and feeling like I just have a friendly roommate now.
Heavy sigh..

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

@bonnie48

Last week my LO sneaked out of our local grocery store & walked 3 miles along a highway. Local police brought him home 5 hours later. Yesterday a social worker with Adult Protective Services showed up at our home during a snowstorm & asked me if she could help us. When she heard we are not on Medicaid she had no ideas for me except to ask if I had thought to ask our children for help. So 1) Why do “helpers” insist on telling us to ask adult children for help, as if we are too stupid to consider that? and 2) Can Adult Protective Services punish me somehow for my LO’s act of leaving home? Okay, one more: Do any of you lock your LO in your home?

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I lock our doors and turn on the alarm system at night, during the day when we are both inside and if I am outside working in the yard and can hear the alarm system. When we are outside the house, I have my husband carry a wallet with an apple tag so I can locate him if he gets away from me.

Many local police departments offer tracking systems to keep our loved ones safe. Someone recently told me that hospice can help with some issues if your LO has a terminal diagnosis.

Best of luck to you. It is a problem that we all face with you!

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I don't mean this the wrong way. But I find that the worse life gets, the better my sense of humor needs to get. One day I could find myself homeless, without arms or legs, and that's when humor is what I choose! LOL!

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I'm just wondering if there is something else going on...like embarrassment from your husband in that he feels he cannot "perform" any more...so avoids the whole situation because he is panic stricken.
Do you have children or friends that you can give a big hug to when they come over? I can be kind of manipulative I know but I would just avoid even trying with him but just act breezy and non-demanding. Chat and laugh, but no physical demands. Just be warm and affectionate with others-how about a pet? Take that pressure off--not easy because not being appreciated and loved is a very painful thing to deal with. Think about those of us who do care for you--even us at Mayo! Let us know how you are doing...

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@carrie40

I'm just wondering if there is something else going on...like embarrassment from your husband in that he feels he cannot "perform" any more...so avoids the whole situation because he is panic stricken.
Do you have children or friends that you can give a big hug to when they come over? I can be kind of manipulative I know but I would just avoid even trying with him but just act breezy and non-demanding. Chat and laugh, but no physical demands. Just be warm and affectionate with others-how about a pet? Take that pressure off--not easy because not being appreciated and loved is a very painful thing to deal with. Think about those of us who do care for you--even us at Mayo! Let us know how you are doing...

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You get used to it. It has been so long for me since my hysband and I had any intimacy that the thought of it happening now sort of turns my stomach. I have been his caregiver going on year 15. Celibate the entire time with seperate bedrooms. I am more like his mother and have been in this role so long I barely remember our former life. Intimacy would almost feel rather incestuous. No thanks.

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@carrie40

I'm just wondering if there is something else going on...like embarrassment from your husband in that he feels he cannot "perform" any more...so avoids the whole situation because he is panic stricken.
Do you have children or friends that you can give a big hug to when they come over? I can be kind of manipulative I know but I would just avoid even trying with him but just act breezy and non-demanding. Chat and laugh, but no physical demands. Just be warm and affectionate with others-how about a pet? Take that pressure off--not easy because not being appreciated and loved is a very painful thing to deal with. Think about those of us who do care for you--even us at Mayo! Let us know how you are doing...

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I am breezy and non-demanding now, but not at first. I do get more affection from our dog, and hugs from others. I have come to accept (kicking and screaming) that this is my new normal, and keep fond memories of our previous affectionate life close to my heart.

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@judimahoney I miss the intimacy in our marriage but it's another one of those adjustments I've had to make and look at other things that give me joy and make me feel good. My hubby doesn't initiate any affection anymore so I do....like holding hands while laying in bed together and cuddling HIM (instead of him cuddling me) and he responds with a "mmm". I learned a long time ago not to ask for affection, but to just give it to him... like a quick kiss (even if only on the cheek) , a hug when passing by him or a squeeze of his hand when I can. He tends to respond in a positive way (even if its for only a second) each and every time and i'm not disappointed. I know that what works for some of us doesn't work for all of us and i pray that you find that human touch you desire with you loved one.

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Someone who was a caregiver once wrote, “ I am not single, but I am alone.” These simple word speak to me. My husband has dementia due to AD .

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