Grover's Disease: What works to help find relief?

Posted by 43219876x @43219876x, Sep 23, 2016

I have been diagnosed with Grover's disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?

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JustMeMyself- The zinc oxide ointment I ordered on the internet is in a 16oz jar, Rugby. No fragrance: active ingredient zinc oxide 20%, inactive just mineral oil and petrolatum. I avoid all products with fragrances and Balsam of Peru is a big no no for many.
Would you tell us the name of the .44 % zinc oxide you use with and menthol? That could also be helpful for my husbands jock itch which he gets once the summer heat kicks in.

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I just Googled GD and it's link to mercury. I don't remember seeing any posts about the relationship between the two, mostly about Aluminum. Apparently there is a probability that high levels of mercury can cause an outbreak of GD. Not sure whether or not this has been addressed.

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Even if cilantro doesn't help some with their GD, both cilantro and chorella remove mercury from the body, yet couldn't find dosing info.
I did read that after injesting cilantro for 45 days it removes 87% of lead 91% of mercury and 74% of aluminum.

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The research linking Grover's Disease to high mercury levels is scant. One researcher, Dantzig, has published most of the articles linking the two. The fact that so many on this site have responded to ingestion of cilantro and chlorella implies heavy metal in etiology because these two foods are known to be detox agents for heavy metals. The problem is that the research of Grover's Disease is scant and dermatologists don't seem all that interested. We're on our own here, pretty much.

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@mariannj

I have been Grovers free for about a year now. I continued with the cilantro long past the time that Grovers disappeared JUST IN CASE! Recently, I have a cilantro shake only about once a week. On the GD Facebook site I continue to read that many have obtained success using Gold Bond powder. One person did an experiment and used a prescription on one half of her chest/midriff and Gold Bond on the other half. 4 to 6 weeks later she showed her derm the results. The Gold Bond side was completely clear. The prescription drug side was hardly clearing at all. She had been a GD sufferer for years. There are many other reports of the Gold Bond powder helping. Apparently, it is the menthol in the powder. She used extra strength. I am mentioning this because it might be something to try. I shall do so if my GD returns.

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I just bought my Gold Bond powder yesterday. It does make a bit of a difference. Thanks for mentioning it.

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@gardeningjunkie

Even if cilantro doesn't help some with their GD, both cilantro and chorella remove mercury from the body, yet couldn't find dosing info.
I did read that after injesting cilantro for 45 days it removes 87% of lead 91% of mercury and 74% of aluminum.

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Thanks. I've been taking the cilantro for at least 45 days and will continue to do so.

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Everyone here seems to have their own method, their own partial solution. Here's one I found just recently when I thought my skin was 'on fire' yet itchy beyond belief. I couldn't sleep at all, skin was hot, hot hot, even with A/C on. So I started cooling my skin with cold wet cloths. I did this 3X & after about 1 hr, I even felt calmer, my itch was at bay, my head was calm. This was at 1:00 a.m. I laid down to sleep & voila I did until about 6:30. The same scenario happened again last night(06/10/2020) so I did the same cool down procedure and once again I felt better & my itches were temporarily calmed to the point I could fall asleep. My treatment regimen looks like this: Right now I am having UV phototherapy, Accutane, and Blestex an anti-histamane, Lyrica, and a store full of anti-itch creams, ointments, including Zinc-Oxide, EmuAide, CortAide, & more. I'm still convinced it is related to the metal in my blood,Aluminum. Getting re-tested next week. More to come. As I write this I am obsessed with scratching everywhere!

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A newcomer to this site so I really don't know how it works. . I was diagnosed last August with Grovers and nothing prescribed or recommended relieved the symptoms. Blood work showed I was deficient in vitamin D3. I started 2000ius a day and within two weeks the GD cooled down and disappeared. The systoms returned this April while self isolating because of Covid-19. I went to 5000 Ius of D3 daily and again the symptoms faded. My dermotolgist poo-poos my findings but for what it may be worth, this is my experience.

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@gardeningjunkie

JustMeMyself- The zinc oxide ointment I ordered on the internet is in a 16oz jar, Rugby. No fragrance: active ingredient zinc oxide 20%, inactive just mineral oil and petrolatum. I avoid all products with fragrances and Balsam of Peru is a big no no for many.
Would you tell us the name of the .44 % zinc oxide you use with and menthol? That could also be helpful for my husbands jock itch which he gets once the summer heat kicks in.

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@gardeningjunkie - The cream is Zinc-Oxide Plus by First Aid Research Corp (no big brand name).

When it comes to mercury, Dr Dantzig is actually a dermatologist connected with Columbia University. Some people with terrible persistent cases on the Skin Cell forum reached out to his office when they finally found a doctor locally willing to listen. Reportedly, his office boasts over a 90% cure/treatment rate via testing for mercury and using Chemet (a DMSA) to treat. Chemet is strong and will clear our everything — not just mercury — so it may not be specific to that one heavy metal. But between his success and cilantro, there appears to be a decent correlation to heavy metal toxicity or at least an individual’s natural ability to excrete those toxic substances. There was one woman with persistent GD for 10 years who had hers clear up with his protocol and it has not returned (although she periodically has to go back on Chemet as her body accumulates heavy metals and she routinely tests high).

On an unrelated note, has ANYONE had a dermatologist that is anything other than indifferent or interested in doing more than the usual lazy prescribing of steroids, etc.? I’m typically a supporter of science and following your doctor’s advice but the utter disinterest in — admittedly anecdotal — cheap treatments that don’t do any harm (cilantro, zinc oxide, etc.) or investigating the possibilities presented by Dr. Dantzig is disheartening.

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@scraperinc

A newcomer to this site so I really don't know how it works. . I was diagnosed last August with Grovers and nothing prescribed or recommended relieved the symptoms. Blood work showed I was deficient in vitamin D3. I started 2000ius a day and within two weeks the GD cooled down and disappeared. The systoms returned this April while self isolating because of Covid-19. I went to 5000 Ius of D3 daily and again the symptoms faded. My dermotolgist poo-poos my findings but for what it may be worth, this is my experience.

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If it works for you, why would your doc discount what works. Arrogant.

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