Grover's Disease: What works to help find relief?

All at once

nodgabnoj- OMG- Guess what I just thought of. My last post mentioned no change in diet or products or heat or sweat to bring on GD recurrence. I had a shingles vaccine before I got GD in my late 50's without an issue and decided to get the new senior SHINGLES vaccine about 2 weeks ago. Now after being in remission for 14 months since using cilantro my GD is back. You gave a warning call about the senior Shingles vaccine coinciding with your GD. I ignored that based on my past history. What have I done to myself? All I can think of is to drink 2 smoothies daily, yet traveling for a week, such a challenge. I had planned to go off the smoothie like Frogger as I had been clear. I am staying with family and do have access to grocery stores and full kitchen so not difficult to manage that.

I just read your posts. Again I am pretty sure that it was the shingles vaccine that gave me the GD. The only other thing that I can think of is that I work out quite a bit and I used to get a rash from sweating right around my solar plexus. I could usually eliminate it with a skin lubricant. Strangely, at this point, despite my working out 4 times a week, it seems to be a non issue at that location. I have started the cilantro smoothies, and they seem to be doing a little bit of good. I might try two a day. I find that for me the two worst times are just after I get up in the am and sometime later in the evening. Motrin is an effective itch stopper for me. I am reluctant to take too much of it as I know it has some negative side effects. At one point I was taking 6 a day, and despite my Dr. saying it was well below the recommended maximum, I try to take two at most. I buy the otc, which is 200 mg. Last night a woman I work with mentioned her Dr. prescribed her the 600 mg. for headaches. I never knew there was one and am wondering as to its effectiveness. Of course I could try 3 200's. Who knows !!!! I have seen a bunch of topicals that I never heard of on other people's posts. If I do try any of them and I find them effective I will let you know. I guess the only positive thing I can come up with is, there is a lot of stuff out there that is much worse than gd. Other than it being a major pain in the neck, it doesn't inhibit me in any other way. I wish us both the best. Have a happy holiday.

I thought about replacing metal fillings, but after studying the internet I read that actual removal releases more mercury into our bodies than just leaving old fillings alone. I only have a couple and if GD is triggered by mercury or other metals I think it's likely I picked up metals from other sources like seafood or water No metal testing done to other siblings but I have had blood tests and am allergic to aluminum and nickle as well as 3 other metals. Maybe my family has a weakness with metal allergies. As mentioned it's very coincidental that out of 4 children in my family, one sister has GD and my brother now has Parkinson's. My youngest sister is 10 years younger and the 3 of us that are afflicted all came down with GD or Parkinson's at about age 65 and youngest sister is now only 61,

Two months ago I too was diagnosed with Grover's Disease. It is VERY itchy. Is your Grover's very itchy? It's so itchy, and it's worst in the evening, so I can't help but think it could be scabies. However, two biopsies have come back negative for scabies and "consistent with Grover's disease". A 20 day course of prednisone did relieve the itch quite a bit and the rash got better and almost went away. But it came back once I was off prednisone. I am on a topical steroid that helps with the itch for a while, then it comes roaring back. What to do?!?!

Merry Christmas to all on this group who have sustained me through the intense itch/pain of Grovers. Thanks to cilantro and cotton I am a new person. My only recurrence since January was two months ago when I needed to use heat for an injury on my back. I got some outbreak there for the first time but discontinued the heat immediately and went to ice again. Some days I skip a smoothie but I have found the health benefits to be too wonderful to ignore. I always use frozen cilantro now. The Grover's disease Facebook support site has many members reacting positively to the cilantro also. The word is spreading.

Hi, I am struggling with this miserable disease and trying, like every body else to manage it. I do take two smoothies a day, but I don't freeze my cilantro. Do you think there is a benefit to doing so ? I will try it. When you mention cotton, what are you referring to ? Witch Hazel ? I am going to run right out and buy some. How do you make your cilantro? I use a lot of fruit, honey and yogurt and worry that I am putting too much stuff in it possibly off setting the benefits of the cilantro, although I don't see how that could effect it. Any advice you can offer me will be much appreciated. Thanks very much, Happy New Year.

I used to take a cup or two of cilantro (frozen only because it's easier to keep and crush in blender) I would just blend it in orange juice and a yoplait flavored yogurt. Once daily. after about 2 months my GD had stopped in it's tracks but I kept with it for 10 months. Had another biopsy done and there was no trace. I stopped the smoothies but will go back on them if I start being symptomatic again.